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Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the...

Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the...

Ryan, Which mycobacterium does she have? My son has mycobacterium abssescus and is being treated with 12-18 months of IV amikacin and tygacil. He has a port put in three months ago. At first it was hard on us. I think we associated the port with being "very sick". Also, it hurt him for a few...

Ryan, Which mycobacterium does she have? My son has mycobacterium abssescus and is being treated with 12-18 months of IV amikacin and tygacil. He has a port put in three months ago. At first it was hard on us. I think we associated the port with being "very sick". Also, it hurt him for a few...

Ryan, Which mycobacterium does she have? My son has mycobacterium abssescus and is being treated with 12-18 months of IV amikacin and tygacil. He has a port put in three months ago. At first it was hard on us. I think we associated the port with being "very sick". Also, it hurt him for a few...

Ryan, Which mycobacterium does she have? My son has mycobacterium abssescus and is being treated with 12-18 months of IV amikacin and tygacil. He has a port put in three months ago. At first it was hard on us. I think we associated the port with being "very sick". Also, it hurt him for a few...

Ryan, <br /> Which mycobacterium does she have? My son has mycobacterium abssescus and is being treated with 12-18 months of IV amikacin and tygacil. He has a port put in three months ago. At first it was hard on us. I think we associated the port with being "very sick". Also, it hurt him for a...

My son is on amikacin for 12-18 months. I know it can cause hearing loss. I don't know if there's a bigger risk because of the amount of time my son's on it though. At first he used inhaled amikacin because it doesn't pose a very big risk of hearing loss. However, it made him throw up (just the...

My son got a port placed a few months ago. He got it in his chest. You can see a little bulge on his chest if you look closely. I honestly thought no one would notice it, but he said kids at school ask him about it. He's in high school also. The lump is bigger than we thought it would be, but a...

My son got a port placed a few months ago. He got it in his chest. You can see a little bulge on his chest if you look closely. I honestly thought no one would notice it, but he said kids at school ask him about it. He's in high school also. The lump is bigger than we thought it would be, but a...

My son got a port placed a few months ago. He got it in his chest. You can see a little bulge on his chest if you look closely. I honestly thought no one would notice it, but he said kids at school ask him about it. He's in high school also. The lump is bigger than we thought it would be, but a...

My son got a port placed a few months ago. He got it in his chest. You can see a little bulge on his chest if you look closely. I honestly thought no one would notice it, but he said kids at school ask him about it. He's in high school also. The lump is bigger than we thought it would be, but a...

My son got a port placed a few months ago. He got it in his chest. You can see a little bulge on his chest if you look closely. I honestly thought no one would notice it, but he said kids at school ask him about it. He's in high school also. The lump is bigger than we thought it would be, but a...

I would address questions as they came up. My son is a teen and that's how we handled it. My son started asking about life expectancy when he was about 12 years old. At the time, I told him that people with CF can have complications with their lungs that could be fatal and that's why it's...

I would address questions as they came up. My son is a teen and that's how we handled it. My son started asking about life expectancy when he was about 12 years old. At the time, I told him that people with CF can have complications with their lungs that could be fatal and that's why it's...

I would address questions as they came up. My son is a teen and that's how we handled it. My son started asking about life expectancy when he was about 12 years old. At the time, I told him that people with CF can have complications with their lungs that could be fatal and that's why it's...

I would address questions as they came up. My son is a teen and that's how we handled it. My son started asking about life expectancy when he was about 12 years old. At the time, I told him that people with CF can have complications with their lungs that could be fatal and that's why it's...

I would address questions as they came up. My son is a teen and that's how we handled it. My son started asking about life expectancy when he was about 12 years old. At the time, I told him that people with CF can have complications with their lungs that could be fatal and that's why it's...

My son is also having trouble gaining weight. At his last appointment, his doctor said it's time for aggressive intervention. However, he never mentioned a g-tube, only an appetite stimulant. I fear that a g-tube is next. I think I will fight it as my son is in high school and is so self...

My son is also having trouble gaining weight. At his last appointment, his doctor said it's time for aggressive intervention. However, he never mentioned a g-tube, only an appetite stimulant. I fear that a g-tube is next. I think I will fight it as my son is in high school and is so self...