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Thank you for the replies. I think I just have to suck it up, because the Vest has been doing amazing work for me. Thanks again!

Have you grown anything new on your sputum cultures? Before I found out that I had MRSA, I was having infections that didn't feel "normal" to me. In other words, they didn't present the way my PA infections did. Finding out that I had MRSA was almost a relief in the sense that I had a name for...

Have you grown anything new on your sputum cultures? Before I found out that I had MRSA, I was having infections that didn't feel "normal" to me. In other words, they didn't present the way my PA infections did. Finding out that I had MRSA was almost a relief in the sense that I had a name for...

I have been taking 10,000 Units of Vitamin D daily since my last hospitalization (almost 2 months) because my levels very very, very low. For the past 3-4 weeks, I have been having severe IBS (irritable bowel) type symptoms - gas, stomach bloating, cramping pain and painful BM. I've had IBS in...

I have been taking 10,000 Units of Vitamin D daily since my last hospitalization (almost 2 months) because my levels very very, very low. For the past 3-4 weeks, I have been having severe IBS (irritable bowel) type symptoms - gas, stomach bloating, cramping pain and painful BM. I've had IBS in...

I just recently started using The Vest (about a month now) and I have correlated an increase in my pacnreatitis pain on days when I spend more time on the Vest. I was wondering if anyone else out there finds that the Vest aggravates their Pancreatitis. Physiologically, it makes sense bc the...

I just recently started using The Vest (about a month now) and I have correlated an increase in my pacnreatitis pain on days when I spend more time on the Vest. I was wondering if anyone else out there finds that the Vest aggravates their Pancreatitis. Physiologically, it makes sense bc the...

Although I've heard that having a port makes things so much more convenient, the idea of having something attached to me, in me, freaks me out. I even have issues with band aids, ripping them off in the middle of the night. I, too, have had quite a few PICC lines, maybe around a dozen. Two of...

Although I've heard that having a port makes things so much more convenient, the idea of having something attached to me, in me, freaks me out. I even have issues with band aids, ripping them off in the middle of the night. I, too, have had quite a few PICC lines, maybe around a dozen. Two of...

Anyone have experience with allergies kicking infections into high gear? I take Flonase and Zyrtec for my allergies (I've also tried all the other chronic allergy meds - Claritin, Allegra, etc. - but Zyrtec works best), and use saline rinses. I just restarted taking them within the past two...

Anyone have experience with allergies kicking infections into high gear? I take Flonase and Zyrtec for my allergies (I've also tried all the other chronic allergy meds - Claritin, Allegra, etc. - but Zyrtec works best), and use saline rinses. I just restarted taking them within the past two...

You need to list your job functions (or general job functions) and explain how your situation negatively affects your performance. Simply saying "I get sick a lot" doesn't tell them anything. The most important thing to do in your application for disability benefits is to document how your...

You need to list your job functions (or general job functions) and explain how your situation negatively affects your performance. Simply saying "I get sick a lot" doesn't tell them anything. The most important thing to do in your application for disability benefits is to document how your...

I feel more tired when my infections are more severe, but being in the hospital makes it difficult to sleep for decent periods of time. At my previous clinic, where we had a dedicated CF floor or wing, the nurses would just hook up my meds whether I am awake or not - I had learned to sleep in...

I feel more tired when my infections are more severe, but being in the hospital makes it difficult to sleep for decent periods of time. At my previous clinic, where we had a dedicated CF floor or wing, the nurses would just hook up my meds whether I am awake or not - I had learned to sleep in...

I once had a near-miss; the nurse came in with inuslin around 5pm and I had not eaten for five hours, and they had not checked my blood sugar since before lunch. I refused the two units and demanded they test. I was around 120. If I had taken 2 units with my BS of 120, I would have been in big...

I once had a near-miss; the nurse came in with inuslin around 5pm and I had not eaten for five hours, and they had not checked my blood sugar since before lunch. I refused the two units and demanded they test. I was around 120. If I had taken 2 units with my BS of 120, I would have been in big...

Couldn't your doctor check for it when he/she sends out your sputum cultures?

Couldn't your doctor check for it when he/she sends out your sputum cultures?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anien2</b></i> Please, tell me you didnt have that conversation!! thats cruel!!! I am glad she didnt chatted with me, she would be dead and I would be in prison!!!</end quote> It was actually based on conversations with two or three...