Cystic Fibrosis Forum (EXP)

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  1. C

    Low Blood Pressure when sick?

    My previous EKGs and other heart checks have been fine. This just happens when I have a bad exacerbation (which has been much more frequently in the past few years), and was first discovered during hospitalizations for IVs. I now check at home with a home BP monitor. Needless to say, I am now...
  2. C

    Low Blood Pressure when sick?

    My previous EKGs and other heart checks have been fine. This just happens when I have a bad exacerbation (which has been much more frequently in the past few years), and was first discovered during hospitalizations for IVs. I now check at home with a home BP monitor. Needless to say, I am now...
  3. C

    Treating MRSA

    Because MRSA lives in the sinuses, and I have needed oral antibiotics for the MRSA nine times in the past year, my doctor prescribed Genatmycin for nasal application. (I am allergic to Bactrim, and had been taking Doxycycline for MRSA flareups.) It was really easy - I measured the prescribed...
  4. C

    Treating MRSA

    Because MRSA lives in the sinuses, and I have needed oral antibiotics for the MRSA nine times in the past year, my doctor prescribed Genatmycin for nasal application. (I am allergic to Bactrim, and had been taking Doxycycline for MRSA flareups.) It was really easy - I measured the prescribed...
  5. C

    Treating MRSA

    Because MRSA lives in the sinuses, and I have needed oral antibiotics for the MRSA nine times in the past year, my doctor prescribed Genatmycin for nasal application. (I am allergic to Bactrim, and had been taking Doxycycline for MRSA flareups.) It was really easy - I measured the prescribed...
  6. C

    article about a case of pseudo transferred to non-CF parents

    This is pretty scary to me. One of my parents has experienced chronic respiratory infections, but refuses to get a culture (he's in his 60s and set in his ways). I've suggested it many times, based on observation of symptoms and medications that he has/has not responded to. I just wish that I...
  7. C

    article about a case of pseudo transferred to non-CF parents

    This is pretty scary to me. One of my parents has experienced chronic respiratory infections, but refuses to get a culture (he's in his 60s and set in his ways). I've suggested it many times, based on observation of symptoms and medications that he has/has not responded to. I just wish that I...
  8. C

    article about a case of pseudo transferred to non-CF parents

    This is pretty scary to me. One of my parents has experienced chronic respiratory infections, but refuses to get a culture (he's in his 60s and set in his ways). I've suggested it many times, based on observation of symptoms and medications that he has/has not responded to. I just wish that I...
  9. C

    Low Blood Pressure when sick?

    Whenever I am actively sick, having a flareup of my PA, MRSA or Staph, my blood pressure drops. My normal BP is around 120/72, but when I'm sick, it drops (and stays low for periods of time). The lowest was 80/42.<br><br>During these times, I have felt l pretty weak and tired, but it's hard to...
  10. C

    Low Blood Pressure when sick?

    Whenever I am actively sick, having a flareup of my PA, MRSA or Staph, my blood pressure drops. My normal BP is around 120/72, but when I'm sick, it drops (and stays low for periods of time). The lowest was 80/42.<br><br>During these times, I have felt l pretty weak and tired, but it's hard to...
  11. C

    Low Blood Pressure when sick?

    Whenever I am actively sick, having a flareup of my PA, MRSA or Staph, my blood pressure drops. My normal BP is around 120/72, but when I'm sick, it drops (and stays low for periods of time). The lowest was 80/42.<br><br>During these times, I have felt l pretty weak and tired, but it's hard to...
  12. C

    Letting your local 911 Center know that you have medical needs

    My state has a form that can be filled out for people who have medical needs that might need to be known should a 911 call be called from the home number. Although it lists blindness, deafness or other specific "medical condition or disabilities," my state's form doesn't have an option to write...
  13. C

    Letting your local 911 Center know that you have medical needs

    My state has a form that can be filled out for people who have medical needs that might need to be known should a 911 call be called from the home number. Although it lists blindness, deafness or other specific "medical condition or disabilities," my state's form doesn't have an option to write...
  14. C

    Letting your local 911 Center know that you have medical needs

    My state has a form that can be filled out for people who have medical needs that might need to be known should a 911 call be called from the home number. Although it lists blindness, deafness or other specific "medical condition or disabilities," my state's form doesn't have an option to write...
  15. C

    CF Telethon

    That is wonderful! I wish that there was a national telethon, or at least a concerted effort among states that do them (my state does not).
  16. C

    CF Telethon

    That is wonderful! I wish that there was a national telethon, or at least a concerted effort among states that do them (my state does not).
  17. C

    CF Telethon

    That is wonderful! I wish that there was a national telethon, or at least a concerted effort among states that do them (my state does not).
  18. C

    Cipro - how to disguise the taste

    Two stories about taking meds: <br> <br>1. Growing up, I took an enzyme called Cotazym. It came in a green capsule, and as a small kid, I couldn't swallow pills yet. So my mother would open the enzyme contents into a medicine cup, put a little sugar in it, and then mix in the green capsule (she...
  19. C

    Cipro - how to disguise the taste

    Two stories about taking meds: <br> <br>1. Growing up, I took an enzyme called Cotazym. It came in a green capsule, and as a small kid, I couldn't swallow pills yet. So my mother would open the enzyme contents into a medicine cup, put a little sugar in it, and then mix in the green capsule (she...
  20. C

    Cipro - how to disguise the taste

    Two stories about taking meds: <br> <br>1. Growing up, I took an enzyme called Cotazym. It came in a green capsule, and as a small kid, I couldn't swallow pills yet. So my mother would open the enzyme contents into a medicine cup, put a little sugar in it, and then mix in the green capsule (she...
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