Cystic Fibrosis Forum (EXP)

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  1. C

    to those who have had sinus surgery

    Here's the long story of my sinus surgery. I've told it before but can't find the thread. <br /> <br />The type of surgery I had was an Extended Endoscopic Frontal Sinus Surgery. I had general anesthesia (unique cocktail that the anesthesiologist created because of certain meds I take, and...
  2. C

    HTS/Prednisone problems...

    My PFTs dropped 30% and I have MRSA pneumonia and a busy PA strain overgrowing. My doctor wanted to admit me immediately, but I begged for orals and inhaled antibiotics first. I was on prednisone, which had helped me immensely, but my doctor made me stop because he said it had the potential to...
  3. C

    HTS/Prednisone problems...

    My PFTs dropped 30% and I have MRSA pneumonia and a busy PA strain overgrowing. My doctor wanted to admit me immediately, but I begged for orals and inhaled antibiotics first. I was on prednisone, which had helped me immensely, but my doctor made me stop because he said it had the potential to...
  4. C

    HTS/Prednisone problems...

    My PFTs dropped 30% and I have MRSA pneumonia and a busy PA strain overgrowing. My doctor wanted to admit me immediately, but I begged for orals and inhaled antibiotics first. <br /> <br />I was on prednisone, which had helped me immensely, but my doctor made me stop because he said it had the...
  5. C

    Do you have friends with CF?

    I only know one person with CF "in person", but haven't seen her in at least fifteen years. The rest are online friends. Growing up, playing with other CF kids was greatly discouraged. I've been old that the reason support groups don't exist due to the risk of cross-contamination. It's weird...
  6. C

    Do you have friends with CF?

    I only know one person with CF "in person", but haven't seen her in at least fifteen years. The rest are online friends. Growing up, playing with other CF kids was greatly discouraged. I've been old that the reason support groups don't exist due to the risk of cross-contamination. It's weird...
  7. C

    Do you have friends with CF?

    I only know one person with CF "in person", but haven't seen her in at least fifteen years. The rest are online friends. <br /> <br />Growing up, playing with other CF kids was greatly discouraged. I've been old that the reason support groups don't exist due to the risk of cross-contamination...
  8. C

    Marriage issues

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i> I know what I am going to say is going to be controversial, but I have no respect nor can muster one iota of sympathy for someone who continues to have children after one child is born with CF.</end quote></div> As...
  9. C

    Marriage issues

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i> I know what I am going to say is going to be controversial, but I have no respect nor can muster one iota of sympathy for someone who continues to have children after one child is born with CF.</end quote> As far as...
  10. C

    Marriage issues

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i> <br /> <br />I know what I am going to say is going to be controversial, but I have no respect nor can muster one iota of sympathy for someone who continues to have children after one child is born with CF.</end...
  11. C

    Be careful fundraising

    Thanks for checking out my blog. If you just go to the homepage, <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/,">http://sproutingdaisies.wordpress.com/,</a> you'll see the post that I was referring to here.
  12. C

    Be careful fundraising

    Thanks for checking out my blog. If you just go to the homepage, <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/,">http://sproutingdaisies.wordpress.com/,</a> you'll see the post that I was referring to here.
  13. C

    Be careful fundraising

    Thanks for checking out my blog. If you just go to the homepage, <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/,">http://sproutingdaisies.wordpress.com/,</a> you'll see the post that I was referring to here.
  14. C

    Gastro Problems

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kramerdog</b></i> This is from a frustrated CF parent. My 24 y/o son has had only gastrointestinal problems so far, several backups/cleanups yearly, one emergency surgery for a blockage, and a few other surgeries for gallbladder...
  15. C

    Gastro Problems

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kramerdog</b></i> This is from a frustrated CF parent. My 24 y/o son has had only gastrointestinal problems so far, several backups/cleanups yearly, one emergency surgery for a blockage, and a few other surgeries for gallbladder...
  16. C

    Gastro Problems

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kramerdog</b></i> <br /> <br />This is from a frustrated CF parent. My 24 y/o son <br /> <br />has had only gastrointestinal problems so far, several <br /> <br />backups/cleanups yearly, one emergency surgery for a blockage, and a...
  17. C

    Be careful fundraising

    No, it's still there: <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/2011/02/26/bullying-for-a-cure/ ">http://sproutingdaisies.wordpr.../bullying-for-a-cure/ </a> Quite a few other articles about CF. Yes, it's my blog. I don't usually advertise it...
  18. C

    Be careful fundraising

    No, it's still there: <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/2011/02/26/bullying-for-a-cure/ ">http://sproutingdaisies.wordpr.../bullying-for-a-cure/ </a> Quite a few other articles about CF. Yes, it's my blog. I don't usually advertise it...
  19. C

    Be careful fundraising

    No, it's still there: <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/2011/02/26/bullying-for-a-cure/ ">http://sproutingdaisies.wordpr.../bullying-for-a-cure/ </a><br /> <br />Quite a few other articles about CF. Yes, it's my blog. I don't usually...
  20. C

    Be careful fundraising

    Blog post about this: <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/2011/02/26/bullying-for-a-cure/">http://sproutingdaisies.wordpr...6/bullying-for-a-cure/</a>
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