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Blog post about this: <a target=_blank class=ftalternatingbarlinklarge href="http://sproutingdaisies.wordpress.com/2011/02/26/bullying-for-a-cure/">http://sproutingdaisies.wordpr...6/bullying-for-a-cure/</a>

This might be just anecdotal evidence but I finished my second month of Cayston last week. Within a few days, I started getting very drippy, runny clear sinus discharge. It's been four days of nonstop blowing my nose. Today, after coughing out (from the top of my lungs) a lot of clear mucous, I...

This might be just anecdotal evidence but I finished my second month of Cayston last week. Within a few days, I started getting very drippy, runny clear sinus discharge. It's been four days of nonstop blowing my nose. Today, after coughing out (from the top of my lungs) a lot of clear mucous, I...

This might be just anecdotal evidence but I finished my second month of Cayston last week. Within a few days, I started getting very drippy, runny clear sinus discharge. It's been four days of nonstop blowing my nose. Today, after coughing out (from the top of my lungs) a lot of clear mucous, I...

I've been dealing with a change in appetite since I was on IVs two months ago. Many days, I have to force myself to eat. The times/days I do feel like eating, I try to eat as much as possible. I have lost some weight, but thankfully, my activities are less so I am burning less calories. I often...

I've been dealing with a change in appetite since I was on IVs two months ago. Many days, I have to force myself to eat. The times/days I do feel like eating, I try to eat as much as possible. I have lost some weight, but thankfully, my activities are less so I am burning less calories. I often...

I've been dealing with a change in appetite since I was on IVs two months ago. Many days, I have to force myself to eat. The times/days I do feel like eating, I try to eat as much as possible. I have lost some weight, but thankfully, my activities are less so I am burning less calories. <br />...

Can you get a sputum culture to see what grows? My doctor is big on cultures so that he treats the bugs effectively (they have varying sensitivities and resistances).

Can you get a sputum culture to see what grows? My doctor is big on cultures so that he treats the bugs effectively (they have varying sensitivities and resistances).

Can you get a sputum culture to see what grows? My doctor is big on cultures so that he treats the bugs effectively (they have varying sensitivities and resistances).

I completed college and worked for a number of years. Around the age of 30, while working a high-profile job at a major internet company, I was going in and out the hospital way too frequently for way too long, and missed a lot of work. I sometimes worked from the hospital (dialing into work via...

I completed college and worked for a number of years. Around the age of 30, while working a high-profile job at a major internet company, I was going in and out the hospital way too frequently for way too long, and missed a lot of work. I sometimes worked from the hospital (dialing into work via...

I completed college and worked for a number of years. Around the age of 30, while working a high-profile job at a major internet company, I was going in and out the hospital way too frequently for way too long, and missed a lot of work. I sometimes worked from the hospital (dialing into work via...

Ugh, I cannot imagine "using" my CF to manipulate people. What do you do, and what are you manipulating them into doing? Asking, "can you help me carry push the grocery cart because it's heavy and I am short of breath due to pneumonia and lowered Oxygen levels" manipulation? No, that's asking...

Ugh, I cannot imagine "using" my CF to manipulate people. What do you do, and what are you manipulating them into doing? Asking, "can you help me carry push the grocery cart because it's heavy and I am short of breath due to pneumonia and lowered Oxygen levels" manipulation? No, that's asking...

Ugh, I cannot imagine "using" my CF to manipulate people. What do you do, and what are you manipulating them into doing? <br /> <br />Asking, "can you help me carry push the grocery cart because it's heavy and I am short of breath due to pneumonia and lowered Oxygen levels" manipulation? No...

When I am growing a multi-resistant bug and I am symptomatic (increased cough and sputum, change in color and consistency of sputum, shortness of breath, wheezing, decreased PFTs and O2, chest Xray evidence). If several bugs of varying resistances are growing at the same time (one strain is...

When I am growing a multi-resistant bug and I am symptomatic (increased cough and sputum, change in color and consistency of sputum, shortness of breath, wheezing, decreased PFTs and O2, chest Xray evidence). If several bugs of varying resistances are growing at the same time (one strain is...

When I am growing a multi-resistant bug and I am symptomatic (increased cough and sputum, change in color and consistency of sputum, shortness of breath, wheezing, decreased PFTs and O2, chest Xray evidence). <br /> <br />If several bugs of varying resistances are growing at the same time (one...