Cystic Fibrosis Forum (EXP)

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    O2 sats

    I would say DONT PANIC. Calm down. Wait until the study is over. Take the results. Let your doctor evaluate them. You might be worried for no reason. Everyone is different. Each body functions differently. Ask for blood gas. Start exercising. Test again. Do a stress test. You can see how your...
  2. B

    O2 sats

    I would say DONT PANIC. Calm down. Wait until the study is over. Take the results. Let your doctor evaluate them. You might be worried for no reason. Everyone is different. Each body functions differently. Ask for blood gas. Start exercising. Test again. Do a stress test. You can see how your...
  3. B

    TOBI podhaler

    Im bringing this up because i was wondering if anyone in Europe is using it. I just emailed Novatis to aske why it is not available yet in Greece. I'll let you know!
  4. B

    TOBI podhaler

    Im bringing this up because i was wondering if anyone in Europe is using it. I just emailed Novatis to aske why it is not available yet in Greece. I'll let you know!
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    Bloating

    You mean probiotics on yogurt? After meals?
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    Bloating

    You mean probiotics on yogurt? After meals?
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    Motivating Others

    hey guys! Workout videos? They seem like a great idea! Can you post any? Yoga, dancing, aerobic... Anything! I need to exercise some more!
  8. B

    Motivating Others

    hey guys! Workout videos? They seem like a great idea! Can you post any? Yoga, dancing, aerobic... Anything! I need to exercise some more!
  9. B

    CF and Hair Loss in Women??

    I think you should take vitamins. Aquadek give me great shiny strong hair and nails! Talk to your doctor!
  10. B

    CF and Hair Loss in Women??

    I think you should take vitamins. Aquadek give me great shiny strong hair and nails! Talk to your doctor!
  11. B

    Exercising???

    I try to take up cycling but im so bored! I do the same thing as you Vera. I read testimonials so i feel guilty and finally move my ass. I try to convince myself that cycling for half an hour 4 times a week will make feel better and make my body look fit. Im unconvincable!
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    Exercising???

    I try to take up cycling but im so bored! I do the same thing as you Vera. I read testimonials so i feel guilty and finally move my ass. I try to convince myself that cycling for half an hour 4 times a week will make feel better and make my body look fit. Im unconvincable!
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    Cayston users

    Hey cayston users im gonna need your help! My doctor is considering to put me on Cayston so i have some questions! 1 Do you use it like Tobi? One month on one month off? 2 Do you use Tobi on your month off? 3 Do you think Cayston helped you? How is your PFTS? Do you feel better in general? Do...
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    Cayston users

    Hey cayston users im gonna need your help! My doctor is considering to put me on Cayston so i have some questions! 1 Do you use it like Tobi? One month on one month off? 2 Do you use Tobi on your month off? 3 Do you think Cayston helped you? How is your PFTS? Do you feel better in general? Do...
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    VX 770 / VX 809 / VX 661

    I insist on saying that we are just talkin about one month increase, let alone that we dont know which dosage they are talking about. I mean that i wouldnt mind waking up next mont and take a plus 10% on my FEV1!!!! Bear in mind that its still phase 2. What happens if we doudle the dosage? Or...
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    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I would hope for 2 years saveferris but im too optimistic!
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    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I would hope for 2 years saveferris but im too optimistic!
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    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I think this is very very promising. I mean a 5-10% improvement of FEV1 in a month seems very nice to me. Lets keep our fingers crossed.
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    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I think this is very very promising. I mean a 5-10% improvement of FEV1 in a month seems very nice to me. Lets keep our fingers crossed.
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    link from FB

    I hope we get to hear good news!
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