Cystic Fibrosis Forum (EXP)

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  1. B

    link from FB

    I hope we get to hear good news!
  2. B

    Stress Test

    I have one every year along with my anual check up. They do it to test my cardio/pulmonary function during exercising. I hardly make it through but i do. I think they exaggerate a bit having me do it once a year (dexa scan as well) but at least im glad i have normal scores. I hope your results...
  3. B

    Stress Test

    I have one every year along with my anual check up. They do it to test my cardio/pulmonary function during exercising. I hardly make it through but i do. I think they exaggerate a bit having me do it once a year (dexa scan as well) but at least im glad i have normal scores. I hope your results...
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    Kalydeco

    saveferris2009 why dont you make a new update in your blog?
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    Kalydeco

    saveferris2009 why dont you make a new update in your blog?
  6. B

    how many times do you take pulmozyme

    I do it 3 times a wekk like Zithromax!
  7. B

    how many times do you take pulmozyme

    I do it 3 times a wekk like Zithromax!
  8. B

    Any Ideas?

    I think you should consider home Ivs not just for now but in general! It is very comfortable being at your own house. Its a bless! Best of luck sweetie!
  9. B

    Any Ideas?

    I think you should consider home Ivs not just for now but in general! It is very comfortable being at your own house. Its a bless! Best of luck sweetie!
  10. B

    how were you genotyped

    I had the same thoughts too. But being diagnosed as ddf508 isnt valid enough? isnt it beyond doubt even though its been 20 years?
  11. B

    how were you genotyped

    I had the same thoughts too. But being diagnosed as ddf508 isnt valid enough? isnt it beyond doubt even though its been 20 years?
  12. B

    Do you sweat much?

    Well i recently noticed that im sweating too much. On my armpits mostly. You can see it when im wearing a shirt and its get wet almost down to the elbow. Its not when i exercise, then it would be natural i guess, but when i get nervous, anxious or stressed. I suspect it has to do with...
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    Do you sweat much?

    Well i recently noticed that im sweating too much. On my armpits mostly. You can see it when im wearing a shirt and its get wet almost down to the elbow. Its not when i exercise, then it would be natural i guess, but when i get nervous, anxious or stressed. I suspect it has to do with...
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    Any Ideas?

    I would talk to my doctor and explain the situation. I would discuss again the possibility of taking Cipro, by taking advice from an orthopedic maybe.... I would also discuss the possibility of home IVs i do it every time. Two days in the hospital and then I go home. I dont have a port or a Picc...
  15. B

    Any Ideas?

    I would talk to my doctor and explain the situation. I would discuss again the possibility of taking Cipro, by taking advice from an orthopedic maybe.... I would also discuss the possibility of home IVs i do it every time. Two days in the hospital and then I go home. I dont have a port or a Picc...
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    Adults: Do You Still Let Your Parents Help You?

    Well i have to admit that a little help is appreciated by us Cfers. My father always does all the paper work. Goes to public services, deals with insurance issues and collects all the meds from the pharmacy! My mom boils my nebs! And she is also responsible for mixing my IVs (when im on) and...
  17. B

    Adults: Do You Still Let Your Parents Help You?

    Well i have to admit that a little help is appreciated by us Cfers. My father always does all the paper work. Goes to public services, deals with insurance issues and collects all the meds from the pharmacy! My mom boils my nebs! And she is also responsible for mixing my IVs (when im on) and...
  18. B

    How old was your child when they first cultured pseudomonas?

    I think its pretty much a genetic issue. My humble opinion!
  19. B

    How old was your child when they first cultured pseudomonas?

    I think its pretty much a genetic issue. My humble opinion!
  20. B

    Whats the best brand of Nebulizer???

    I have eflow and i am very glad i do! I know its kinda expensive and some of its parts should be replaced every now and then (more money) but its a huge time saver. It takes 5-8 minutes for Bramitob and 4 for Pulmozyme! Very very quick!
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