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i pretty much like all food. really though im big on things like steak,potatoes(baked,mashed,fried,all types),chicken, pretty much everything. i really like going to steak house buffets that are all-u-can eat,but then i usually eat so much i feel miserably bloated.and desserts, i like all desserts

i totally agree with emily. my ex-girlfriends family used to try shoving the crap down my throat telling me oh the good lord this and the good lord that and he makes everything happen for a reason. so i ask them ok then what is his reason for making infants be born with such a disease not having...

ya me to!!!

dont know about others, but i know i sure cant cause actually i get blood transfusions once in a while,,well 3 times i have

you can tell if it goes bad it gets like a clouded yellow tint to it

i take pancrease Mt16, pulmozyme, albuterol neb.and inhaler,flovent, serevent, spironolactone, adeks, feosol, mephyton, prevacid, ursodiol, minocycline, hydoxyz, and rotate tobi and colistin every other month. and i also do the vest

one thing i hate is when the damn house doctors change things or order tests without first talking to my cf doc. a couple tune ups ago they took me off my water for the whole weekend because they didnt think i needed it. so come monday morning when my doc came in my ankles and feet were so...

last year(2004) i had 6 "tune ups". sometimes i stay and sometimes i do them at home. if i came home though i would go in for a couple days so the doc could get the drug levels correct.then the day i go home they deliver all my stuff to my room before i left and i would take it home. and since i...

the early breakfast thing used to bug me to. but now we get like restaurant style menus and anytime we get hungry we dial 45362on our phone then someone takes our order and you recieve it in about 40 minutes. whatever you want.from 6:30 am till 8pm. even if you just want a milkshake or...

jenna, actually my doc recommended the procedure after discovering i was retaining fluid. no it doesn't hurt, they numb the area. are you retaining fluid or are you just bloated for other reasons?

Debbie, i always was in for iv antibiotics when i happened to need the fluid taken off. done it about 5-6 times but havent needed to for about 7 years.but the doc just would put some type of big needle into my...

i always have had a rather large belly. i used to get a little teasing in school cause of it. i also notice around infection time it sometimes tends to bloat up more.also i retain fluid alot so that doesnt help either. i used to have to get the fluid drained off, once they took off 6.5 liters...

I myself dont think of cf as being an excuse, but as THE REASON WHY.but i never had any troubles all through school, i keep up with other kids fine, played sports, p.e., rollerblading was my favorite, i was very active never having troubles. until i was 19 i got cirrhosis of the liver and after...

perfume, cologne, and candles dont make me really cough but they do make me have a hard time breathing, feel like i am suffocating. especially whatever it is old ladies wear.

this is the first i have ever heard of autogenic therapy. but the only thing ive ever done besides the vest, flutter and manual cpt, is pursed lipped breathing. which i just started that this past year since i get shorter of breathe and on oxygen now. but i find when i get really short of...

i just put mine in the dishwasher whenever it gets ran. i put all my parts in one of those baskets that are supposed to be for baby bottle nipples and rings so they dont fly around. i figure if i can eat off the silverware out of it then it should be ok to clean them to.

thats how they do my cpt when im in the hospital is with the head of my bed tilting down, they call it tridelamberg(spell wrong). the therapists say thats the best way if you can tolerate your head down like that

happy birthday, hope it was great and many more to come.

actually i dont know where you got the "our livers can take it"from, because when i was 19 i got cirrhosis of the liver, and at first i went to the nearest little quack hospital er and they swore i must have been some big teenage alcoholic to get it at 19, since they knew nothing at all about cf...

i agree garbage is where they belong. scandi shakes are for what we need and thats why our dieticians suggest them to us. if the serious mass shakes were oh so great for us then thats what our dieticians would be pushing on us. but hey thats my own oipinion..also has anyone tried the cookies...