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<blockquote>Quote<br><hr><i>Originally posted by: <b>Diane</b></i><br>I had one get stuck once where the home nurse could not get it to budge. I also once had one that went in my jugular vein instead of the clavical vein where it is supposed to go <hr></blockquote> Putting a PICC line in...

<hr><i>Originally posted by: <b>stevehof</b></i> Seems backward from when I was in your age group...Back then women didn't get TATs and men did...Not one guy responding to this yet..<hr></blockquote> <blockquote>Quote<br><hr>EB24: I am a guy and I responded.<img...

Seems backward from when I was in your age group...Back then women didn't get TATs and men did...Not one guy responding to this yet...OK I've got a TAT on my shoulder...A midlife crisis TAT at THAT... The TAT artist has just poked hundreds if not thousands of holes into your skin. Keep the TAT...

A physically active lifestyle will surely help. Also, my parents made sure I learned to play a musical instrument. Preferably an instrument that requires 'blowing' through, like a woodwind or brass. I think that helped me quite a bit. My FEV1 was over 130% at one point in my childhood. Make sure...

<blockquote>Quote <hr><i>Originally posted by: <b>serendipity730</b></i> Wow, Steve, I just noticed you are 57. What's your secret?!?<hr></blockquote> 58, last Saturday....Too bad I was on home IV's and too sick to celebrate....:^( I suspect I've made so long primarily because I have very minor...

Not sure of the spelling for the M drug but I was wondering if any of you have ever done these two together. I'm being treated at Kaiser in San Diego and the doctor that usually handles the CF patients is on vacation. The pulmonary doctor I am working with has never had a CF patient...Oh Well....:^)

Thank you all for the useful information! I'll give L-lysine a go. I'm already doing vit K. Can you buy it at the 'vitamin' section of the grocery store or do you need to go to a health food and dietary supplement store?

I've heard that you can nebulize Neosynephrine nose spray during a bleed and slow it down. Has anyone tried this? If so, what's the amount of Neosynephrine you use and what percent Neosynephrine nose spray you use? I think it comes in different percentage dilutions. Any weird side effects? Are...

I've been photographing for nearly 30 years. I hate to sound like an old geezer but I've seen it all photographically speaking, 35mm to 4X5. film. In fact digital SLR's (interchangeable lens 35mm camera systems with digital sensors) do produce better images than 35mm film. I have quite a few...

WinAce, I am the original author of the 'River or lake of Sh-t "Lucky" CF'r analogy. I first posted it on 'Cystic List' which was around 4-8? years ago. I don't know if that forum is still active or not. Due to conflicts between members, there was a split and another forum was started at...

I'm with WinAce on the point of being told I that I'm "Lucky" I'm 57 years old and even though my FEV1 is still a decent 55%, I haven't felt receptive to being told that I'm lucky concerning my CF at anytime in my life. Here's the story I tell the hapless doctor, RT or nurse who, with all good...

Whew, just make sure whoever makes them knows what they are doing. Years ago, at CF camp of all places, I tried a couple of bites from some that were being passed around and nearly came out of my skin over the next 6-8 hours. I could barely see my eyes dilated so much; my throat was so dry I...

Apergillus is a fungus, not a bacteria. Many people with CF will culture it at one time or other during their lives. It can remain in the background for years or if your immune system is not too strong against fungus, it can turn into Aspergilloses <sp?> pneumonia. As with other fungus...

Could be a combination of very dry air and the usual sinus infections we carry with CF. Has he tried any of over the counter saline nasal moisturizing sprays? Nasal Lavage can also be very effective in keeping sinus infections under control. See: <a target="_blank"...

Keeping in mind that CF affects everyone differently; consistent every night soak the sheets sweating is a sign that my lung infection is getting out of hand and it is time for IV's. Your boyfriend is probably getting fairly high night fevers that are causing the sweating.....Unless he's...

I am 57 and still running on OEM lungs...;^) FEV1 of 55%.... It all depends on how well your body does over the years in coping with CF...

Over the years I've had to tell many people that I have Cystic Fibrosis. I AWAYS add the comment that CF is a GENETIC disease; I'm always surprised at how many of them then ask "how long have you had it?" Even people involved my health care have asked this question.

There are people with CF in their 60's. There may even be some 70 year olds out there somewhere. Many of these older people with CF were diagnosed very late in their lives. I am 57 years old and was diagnosed at age 27. One of my best friends is 62 and he has CF. There is a huge range in the...

FYI, Xanax is not an antidepressant. It is not the same class of drug as Prozac, Paxil, Wellbutrin etc. This drug is more commonly used to control anxiety and anxiety attacks. The following quote is from a Google search; "Xanax is used to relieve anxiety, nervousness, and tension associated with...

I wouldn't call myself an athlete but I believe regular exercise has been a significant factor in keeping me relatively healthy. My FEV1 is 55% but I can still tolerate an hour a day of fairly vigorous exercise (at sea level). Currently, I do one of the following daily: skate 8 miles, power walk...