Cystic Fibrosis Forum (EXP)

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  1. A

    It is now official

    Thank you everyone for your thoughts and support!! The poor little guy is ALWAYS congested...and I mean ALWAYS. It sounds like he is sick all the time. Hopefully he will start to get a little less congested soon..He has been on Pulmacort, xopenex, albuteral, prednisone, as well as a bunch of...
  2. A

    We had a negative sweat test AND a great kidney check up

    I am very happy to hear you got some good news!!! It is always a good day when you get good news!!
  3. A

    We had a negative sweat test AND a great kidney check up

    I am very happy to hear you got some good news!!! It is always a good day when you get good news!!
  4. A

    We had a negative sweat test AND a great kidney check up

    I am very happy to hear you got some good news!!! It is always a good day when you get good news!!
  5. A

    It is now official

    Well we got work today that my son does in fact have CF however they are having a very hard time figuring out what mutation he has. Doctors say that there are SO many mutations and he was tested for the most common. He doesn't have the most common ones however he now has some sort of rare...
  6. A

    It is now official

    Well we got work today that my son does in fact have CF however they are having a very hard time figuring out what mutation he has. Doctors say that there are SO many mutations and he was tested for the most common. He doesn't have the most common ones however he now has some sort of rare...
  7. A

    It is now official

    Well we got work today that my son does in fact have CF however they are having a very hard time figuring out what mutation he has. Doctors say that there are SO many mutations and he was tested for the most common. He doesn't have the most common ones however he now has some sort of rare...
  8. A

    Atypical Cystic Fibrosis

    My son goes to St. christopher's children's hospital and they are great there
  9. A

    Atypical Cystic Fibrosis

    My son goes to St. christopher's children's hospital and they are great there
  10. A

    Atypical Cystic Fibrosis

    My son goes to St. christopher's children's hospital and they are great there
  11. A

    ATTENTION! Anyone who has known/loved/cared/chatted/ etc...for/with Mel (Jazzysmom)

    Please let me know what is going on! Thanks!!
  12. A

    ATTENTION! Anyone who has known/loved/cared/chatted/ etc...for/with Mel (Jazzysmom)

    Please let me know what is going on! Thanks!!
  13. A

    ATTENTION! Anyone who has known/loved/cared/chatted/ etc...for/with Mel (Jazzysmom)

    Please let me know what is going on! Thanks!!
  14. A

    Mom knew best I guess

    We went through and continue to go through some of the same things with our little guy. He is now 11months old and has been sick since he was 2 weeks old. He has been in the hospital 7 times with failure to thrive, brochiolitis, pneumonia, RSV and numerous other times with "lung disorders" he...
  15. A

    Mom knew best I guess

    We went through and continue to go through some of the same things with our little guy. He is now 11months old and has been sick since he was 2 weeks old. He has been in the hospital 7 times with failure to thrive, brochiolitis, pneumonia, RSV and numerous other times with "lung disorders" he...
  16. A

    Mom knew best I guess

    We went through and continue to go through some of the same things with our little guy. He is now 11months old and has been sick since he was 2 weeks old. He has been in the hospital 7 times with failure to thrive, brochiolitis, pneumonia, RSV and numerous other times with "lung disorders" he...
  17. A

    Daegan is back in the hospital :(

    Thank you everyone. His symptoms are the same as they have been since he was 2 weeks old. Chronic congestion, coughing, wheezing...they say he has inflammation of his lung lining...failure to thrive...fussy...eats like a pig and sleeps very litte
  18. A

    Daegan is back in the hospital :(

    Thank you everyone. His symptoms are the same as they have been since he was 2 weeks old. Chronic congestion, coughing, wheezing...they say he has inflammation of his lung lining...failure to thrive...fussy...eats like a pig and sleeps very litte
  19. A

    Daegan is back in the hospital :(

    Thank you everyone. His symptoms are the same as they have been since he was 2 weeks old. Chronic congestion, coughing, wheezing...they say he has inflammation of his lung lining...failure to thrive...fussy...eats like a pig and sleeps very litte
  20. A

    Daegan is back in the hospital :(

    Thank you so much!!!
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