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Thank you so much!!!

Thank you so much!!!

Hello there!! Well I don't know if I can be of much help but my son who is only 6 months old is going through all this now. He had a "normal" sweat test and an inconclusive genetic testing and his doctor does still feel he has a rare form of CF. He has been sick since he was 2 weeks old and...

Hello there!! Well I don't know if I can be of much help but my son who is only 6 months old is going through all this now. He had a "normal" sweat test and an inconclusive genetic testing and his doctor does still feel he has a rare form of CF. He has been sick since he was 2 weeks old and...

Hello there!! Well I don't know if I can be of much help but my son who is only 6 months old is going through all this now. He had a "normal" sweat test and an inconclusive genetic testing and his doctor does still feel he has a rare form of CF. He has been sick since he was 2 weeks old and...

Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this...

Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this...

Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this...

Thank you so much for getting back to me. Well I can tell you that I DID ask for the results to be sent to me and what was sent was certainly not the FULL results. The paper for the sweat test just said WNL for the state of PA. I asked the doctor for the actual number and he told me "it was...

Thank you so much for getting back to me. Well I can tell you that I DID ask for the results to be sent to me and what was sent was certainly not the FULL results. The paper for the sweat test just said WNL for the state of PA. I asked the doctor for the actual number and he told me "it was...

Thank you so much for getting back to me. Well I can tell you that I DID ask for the results to be sent to me and what was sent was certainly not the FULL results. The paper for the sweat test just said WNL for the state of PA. I asked the doctor for the actual number and he told me "it was...

Ok guys I need some advice! I am so frustrated I don't know what to do anymore. I have a five month old baby boy. He has been sick since he was literally 2 weeks old. No one knows what is wrong with my little guy. Now his pediatrician thinks he has a rare mutation of CF. Sweat test was...

Ok guys I need some advice! I am so frustrated I don't know what to do anymore. I have a five month old baby boy. He has been sick since he was literally 2 weeks old. No one knows what is wrong with my little guy. Now his pediatrician thinks he has a rare mutation of CF. Sweat test was...

Ok guys I need some advice! I am so frustrated I don't know what to do anymore. I have a five month old baby boy. He has been sick since he was literally 2 weeks old. No one knows what is wrong with my little guy. Now his pediatrician thinks he has a rare mutation of CF. Sweat test was...

Well Daegan was again admitted into the hospital for those poor little lungs. We appriciate all the prayers and hopefully we can go home soon.

Well Daegan was again admitted into the hospital for those poor little lungs. We appriciate all the prayers and hopefully we can go home soon.

Well Daegan was again admitted into the hospital for those poor little lungs. We appriciate all the prayers and hopefully we can go home soon.

Hello. My son is 5 months old. He has been sick since he was 2 weeks old and they have been "trying" to find out wether or not he has CF. He has a normal sweat test "for the state of PA" and his blood test came back "can not rule out CF" I am so confused and I know exactly what you are going...

Hello. My son is 5 months old. He has been sick since he was 2 weeks old and they have been "trying" to find out wether or not he has CF. He has a normal sweat test "for the state of PA" and his blood test came back "can not rule out CF" I am so confused and I know exactly what you are going...

Hello. My son is 5 months old. He has been sick since he was 2 weeks old and they have been "trying" to find out wether or not he has CF. He has a normal sweat test "for the state of PA" and his blood test came back "can not rule out CF" I am so confused and I know exactly what you are going...