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We're doing 3, sometimes 4, therapies a day. It is really best if she gets one during school. Does anybody else do it during school and who does it? Carol

We're doing 3, sometimes 4, therapies a day. It is really best if she gets one during school. Does anybody else do it during school and who does it? Carol

We're doing 3, sometimes 4, therapies a day. It is really best if she gets one during school. Does anybody else do it during school and who does it? Carol

We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the upper...

We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the upper...

We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the upper...

Wow, that was some wonderful information. Faith has been on inhaled TOBI in the past, but has been on Colistin since last summer when she contracted this mycobacteria. She was on home IV Tobramyacin for the last 2-3 months. We think this is the culprit. This was also the one that gave her...

Wow, that was some wonderful information. Faith has been on inhaled TOBI in the past, but has been on Colistin since last summer when she contracted this mycobacteria. She was on home IV Tobramyacin for the last 2-3 months. We think this is the culprit. This was also the one that gave her...

Wow, that was some wonderful information. Faith has been on inhaled TOBI in the past, but has been on Colistin since last summer when she contracted this mycobacteria. She was on home IV Tobramyacin for the last 2-3 months. We think this is the culprit. This was also the one that gave her...

Hi, My name is Faith too and I'm 11. My mom also types for me because she can type a lot faster than me. I was just diagnosed almost two years ago and boy have I had lots of problems. I'm pretty frustrated most of the time because I can't spit up the mucous and everybody gets mad at me. Faith

Hi, My name is Faith too and I'm 11. My mom also types for me because she can type a lot faster than me. I was just diagnosed almost two years ago and boy have I had lots of problems. I'm pretty frustrated most of the time because I can't spit up the mucous and everybody gets mad at me. Faith

Hi, My name is Faith too and I'm 11. My mom also types for me because she can type a lot faster than me. I was just diagnosed almost two years ago and boy have I had lots of problems. I'm pretty frustrated most of the time because I can't spit up the mucous and everybody gets mad at me. Faith

Get ahold of Debra Abney at dabney@cff.org. She is in Richmond Va and we're getting ready to do 3 walks. Don't know if she knows about your book or not. We purchased one I think through Amazon. We haven't received it yet. Carol

Get ahold of Debra Abney at dabney@cff.org. She is in Richmond Va and we're getting ready to do 3 walks. Don't know if she knows about your book or not. We purchased one I think through Amazon. We haven't received it yet. Carol

Get ahold of Debra Abney at dabney@cff.org. She is in Richmond Va and we're getting ready to do 3 walks. Don't know if she knows about your book or not. We purchased one I think through Amazon. We haven't received it yet. Carol

Mike, Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very...

Mike, Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very...

Mike, Welcome to the site. Our daughter, Faith, was diagnosed almost 2 years ago at the age of 9. It has been an absolute roller coaster. She is also on IV's as well. One of her hospital visits, she contracted a myco bacteria and for CF patients, it is the worse kind of bacteria. Very...

We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the...

We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the...