Cystic Fibrosis Forum (EXP)

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  1. P

    Anybody else out there suffering from hearing loss from Tobramyacin?

    We were just told the other day that Faith lost her high frequency hearing. Basically 1500 hz and above. Well that doesn't mean much to me. We just keep observing what she can't hear. So far we've notice the m/w and stove beeper, screaming on the TV, sometimes the phone, and last night the...
  2. P

    where are you from?

    My name is Faith, I'm 11 and I live in Virginia
  3. P

    where are you from?

    My name is Faith, I'm 11 and I live in Virginia
  4. P

    where are you from?

    My name is Faith, I'm 11 and I live in Virginia
  5. P

    does anyone here?

    I had one put in right after this past Christmas. It is so much better than the picc line. I've been in the hospital around 8 times in the last year and a half. Faith
  6. P

    does anyone here?

    I had one put in right after this past Christmas. It is so much better than the picc line. I've been in the hospital around 8 times in the last year and a half. Faith
  7. P

    does anyone here?

    I had one put in right after this past Christmas. It is so much better than the picc line. I've been in the hospital around 8 times in the last year and a half. Faith
  8. P

    any 12 year olds

    Mikayla, I can't seem to get ahold of your e-mail address. It said I wasn't in your address book. Faith
  9. P

    any 12 year olds

    Mikayla, I can't seem to get ahold of your e-mail address. It said I wasn't in your address book. Faith
  10. P

    any 12 year olds

    Mikayla, I can't seem to get ahold of your e-mail address. It said I wasn't in your address book. Faith
  11. P

    any 12 year olds

    Hi, my name is Faith and I'm 11. I was just diagnosed with CF 1 1/2 years ago. Since then I have been in the hospital numerous times. We're getting ready for the CF Walk in a few weeks. Faith
  12. P

    any 12 year olds

    Hi, my name is Faith and I'm 11. I was just diagnosed with CF 1 1/2 years ago. Since then I have been in the hospital numerous times. We're getting ready for the CF Walk in a few weeks. Faith
  13. P

    any 12 year olds

    Hi, my name is Faith and I'm 11. I was just diagnosed with CF 1 1/2 years ago. Since then I have been in the hospital numerous times. We're getting ready for the CF Walk in a few weeks. Faith
  14. P

    How do you handle frustration

    I'm 11 1/2 years old and newly diagnosed. Since then, I have been in the hospital 7 times in 1 1/2 years. I've contracted a mycobacteria, c-diff bacteria,on 3 home IV's, ton's of meds and nebulizers. It seems like I'm never in school and I miss my friends.
  15. P

    How do you handle frustration

    I'm 11 1/2 years old and newly diagnosed. Since then, I have been in the hospital 7 times in 1 1/2 years. I've contracted a mycobacteria, c-diff bacteria,on 3 home IV's, ton's of meds and nebulizers. It seems like I'm never in school and I miss my friends.
  16. P

    How do you handle frustration

    I'm 11 1/2 years old and newly diagnosed. Since then, I have been in the hospital 7 times in 1 1/2 years. I've contracted a mycobacteria, c-diff bacteria,on 3 home IV's, ton's of meds and nebulizers. It seems like I'm never in school and I miss my friends.
  17. P

    11 just found out i have cf

    I found out when I was 10 and I'm now 11 1/2. I still get frustrated, and it seems like we're finding out too many problems, but I just have to press on. Lately, I've been getting backed up with stool which causes me to get enemas. I also have a mico-bacteria which causes many, many problems...
  18. P

    11 just found out i have cf

    I found out when I was 10 and I'm now 11 1/2. I still get frustrated, and it seems like we're finding out too many problems, but I just have to press on. Lately, I've been getting backed up with stool which causes me to get enemas. I also have a mico-bacteria which causes many, many problems...
  19. P

    11 just found out i have cf

    I found out when I was 10 and I'm now 11 1/2. I still get frustrated, and it seems like we're finding out too many problems, but I just have to press on. Lately, I've been getting backed up with stool which causes me to get enemas. I also have a mico-bacteria which causes many, many problems...
  20. P

    oops

    Faith
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