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Kelly, Your name came up in the families forum. My daughter has the Absessus Mycobacteria and someone said you would be a great person to talk with. Thanks.

Thanks for the website, it was very helpful. Most informatin I was aware of, but I have a question. It says it's an enviromental germ that could be in the water or soil. That if taking showers in stalls or hot tubs that the germ is growing there. We don't have a stall, but we do have two...

Thanks for the website, it was very helpful. Most informatin I was aware of, but I have a question. It says it's an enviromental germ that could be in the water or soil. That if taking showers in stalls or hot tubs that the germ is growing there. We don't have a stall, but we do have two...

Thanks for the website, it was very helpful. Most informatin I was aware of, but I have a question. It says it's an enviromental germ that could be in the water or soil. That if taking showers in stalls or hot tubs that the germ is growing there. We don't have a stall, but we do have two...

Thanks Amber for the message. I feel so inept though because I couldn't figure out how to reply!!! The technology world surpassed me years ago!!!! Anyway, I wanted to tell you that Faith was on Amikacin (sp?) when she was in the hospital, but took us off it and gave us Tygicycline and this...

Thanks Amber for the message. I feel so inept though because I couldn't figure out how to reply!!! The technology world surpassed me years ago!!!! Anyway, I wanted to tell you that Faith was on Amikacin (sp?) when she was in the hospital, but took us off it and gave us Tygicycline and this...

Thanks Amber for the message. I feel so inept though because I couldn't figure out how to reply!!! The technology world surpassed me years ago!!!! Anyway, I wanted to tell you that Faith was on Amikacin (sp?) when she was in the hospital, but took us off it and gave us Tygicycline and this...

It's been a few months since I've been on-line. I wrote back in July of this year about my daughter's hospital visit and her findings on having this mycobacteria. I've just searched past messages about this bacteria. I would love to hear from other people who have it or dealing with a...

It's been a few months since I've been on-line. I wrote back in July of this year about my daughter's hospital visit and her findings on having this mycobacteria. I've just searched past messages about this bacteria. I would love to hear from other people who have it or dealing with a...

It's been a few months since I've been on-line. I wrote back in July of this year about my daughter's hospital visit and her findings on having this mycobacteria. I've just searched past messages about this bacteria. I would love to hear from other people who have it or dealing with a...

Faith has been complaining of tummy aches for the last few months. She was in the hospital over the summer for 7 weeks and ended up contracting a horrible mycobacteria. Her pains started when this occured. They have increased her enzymes to 6 per meal and 4 with a snack. She takes MT12's...

Faith has been complaining of tummy aches for the last few months. She was in the hospital over the summer for 7 weeks and ended up contracting a horrible mycobacteria. Her pains started when this occured. They have increased her enzymes to 6 per meal and 4 with a snack. She takes MT12's...

Faith has been complaining of tummy aches for the last few months. She was in the hospital over the summer for 7 weeks and ended up contracting a horrible mycobacteria. Her pains started when this occured. They have increased her enzymes to 6 per meal and 4 with a snack. She takes MT12's...

We, too, are very confused about this whole neb cleaning. My daughter was diagnosed last November and I feel like I have a baby again cleaning out all those bottles. We have 4 different cups, albuterol, saline, pulmonzyme, and colistine. After every therapy, I rinse them with almost hot water...

We, too, are very confused about this whole neb cleaning. My daughter was diagnosed last November and I feel like I have a baby again cleaning out all those bottles. We have 4 different cups, albuterol, saline, pulmonzyme, and colistine. After every therapy, I rinse them with almost hot water...

We, too, are very confused about this whole neb cleaning. My daughter was diagnosed last November and I feel like I have a baby again cleaning out all those bottles. We have 4 different cups, albuterol, saline, pulmonzyme, and colistine. After every therapy, I rinse them with almost hot water...

I can't believe I found this topic. I have been struggling with this for months now. I'm 43 (44 in December) and my 10 year old was just diagnosed last November. Up until last summer, I had lost 42 pounds. I was in a 14 and for me, looked and felt great. Then after a couple of hospital...

I can't believe I found this topic. I have been struggling with this for months now. I'm 43 (44 in December) and my 10 year old was just diagnosed last November. Up until last summer, I had lost 42 pounds. I was in a 14 and for me, looked and felt great. Then after a couple of hospital...

I can't believe I found this topic. I have been struggling with this for months now. I'm 43 (44 in December) and my 10 year old was just diagnosed last November. Up until last summer, I had lost 42 pounds. I was in a 14 and for me, looked and felt great. Then after a couple of hospital...

We just returned from Disney World in Orlando. I don't know if their policies are different from DisneyLand, but this is what we did in Florida. We went to guest services, got our disabled pass. Basically, it does the same thing as the Fast Pass, but you don't have to go get your "time to...