Cystic Fibrosis Forum (EXP)

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  1. L

    Pulmozyme

    Avery is 3 now, but she has been on Pulmozyme since she was 18 months and never had a problem, also on Hypertonic as well for about 8 months now. She cleared up, and knock on wood has been healthy since she was diagnosed.
  2. L

    Pulmozyme

    Avery is 3 now, but she has been on Pulmozyme since she was 18 months and never had a problem, also on Hypertonic as well for about 8 months now. She cleared up, and knock on wood has been healthy since she was diagnosed.
  3. L

    Pulmozyme

    Avery is 3 now, but she has been on Pulmozyme since she was 18 months and never had a problem, also on Hypertonic as well for about 8 months now. She cleared up, and knock on wood has been healthy since she was diagnosed.
  4. L

    airplanes and oxygen

    If you have a home health company call them to make arrangements or if they know which airlines will consider it apart of your carry on. But also contact your airline about 3 weeks before to see if they'll provide for you. This is what we tell our patients that want to travel with o2 Chuck
  5. L

    airplanes and oxygen

    If you have a home health company call them to make arrangements or if they know which airlines will consider it apart of your carry on. But also contact your airline about 3 weeks before to see if they'll provide for you. This is what we tell our patients that want to travel with o2 Chuck
  6. L

    airplanes and oxygen

    If you have a home health company call them to make arrangements or if they know which airlines will consider it apart of your carry on. But also contact your airline about 3 weeks before to see if they'll provide for you. This is what we tell our patients that want to travel with o2 Chuck
  7. L

    Hypertonic Saline

    You should be able to take it as needed, because of its simple makeup. It not like your mdi's or maybe your pulmozyme, that hae active ingridients that take time. But be careful of irritation. Chuck
  8. L

    Hypertonic Saline

    You should be able to take it as needed, because of its simple makeup. It not like your mdi's or maybe your pulmozyme, that hae active ingridients that take time. But be careful of irritation. Chuck
  9. L

    Hypertonic Saline

    You should be able to take it as needed, because of its simple makeup. It not like your mdi's or maybe your pulmozyme, that hae active ingridients that take time. But be careful of irritation. Chuck
  10. L

    What is Double DF508?

    could someone please tell me where they have found that the double delta f508is the worst to have. I have followed this board for two years and people constantly say delta f 508is the worst to have. Sure it is the most common because of the likelyhood of genes; but also alot of the treatments...
  11. L

    What is Double DF508?

    could someone please tell me where they have found that the double delta f508is the worst to have. I have followed this board for two years and people constantly say delta f 508is the worst to have. Sure it is the most common because of the likelyhood of genes; but also alot of the treatments...
  12. L

    What is Double DF508?

    could someone please tell me where they have found that the double delta f508is the worst to have. I have followed this board for two years and people constantly say delta f 508is the worst to have. Sure it is the most common because of the likelyhood of genes; but also alot of the treatments...
  13. L

    Newly Diagnosed

    Dr. Elsie Schriver @ Knoxville pulmonary group is excellent. I spoke with her the other day and she was saying it may be the first of the year before any of the Drs take on any new patients. If you cannot get with her Dr. Kevin Martinolich is a good one as well In the same office. I hope your...
  14. L

    Newly Diagnosed

    Dr. Elsie Schriver @ Knoxville pulmonary group is excellent. I spoke with her the other day and she was saying it may be the first of the year before any of the Drs take on any new patients. If you cannot get with her Dr. Kevin Martinolich is a good one as well In the same office. I hope your...
  15. L

    Newly Diagnosed

    Dr. Elsie Schriver @ Knoxville pulmonary group is excellent. I spoke with her the other day and she was saying it may be the first of the year before any of the Drs take on any new patients. If you cannot get with her Dr. Kevin Martinolich is a good one as well In the same office. I hope your...
  16. L

    night time oxygen

    To qualify for home O2 your sat has to drop to 88 percent with most private insurances during rest, exercise or in this case sleep. Ask your Dr. to send an order to Lincare or any DME company in your area that can do overnight pulse oximetry. This is covered by insurances or if you have...
  17. L

    night time oxygen

    To qualify for home O2 your sat has to drop to 88 percent with most private insurances during rest, exercise or in this case sleep. Ask your Dr. to send an order to Lincare or any DME company in your area that can do overnight pulse oximetry. This is covered by insurances or if you have...
  18. L

    night time oxygen

    To qualify for home O2 your sat has to drop to 88 percent with most private insurances during rest, exercise or in this case sleep. Ask your Dr. to send an order to Lincare or any DME company in your area that can do overnight pulse oximetry. This is covered by insurances or if you have...
  19. L

    night time oxygen

    To qualify for home O2 your sat has to drop to 88 percent with most private insurances during rest, exercise or in this case sleep. Ask your Dr. to send an order to Lincare or any DME company in your area that can do overnight pulse oximetry. This is covered by insurances or if you have...
  20. L

    night time oxygen

    To qualify for home O2 your sat has to drop to 88 percent with most private insurances during rest, exercise or in this case sleep. Ask your Dr. to send an order to Lincare or any DME company in your area that can do overnight pulse oximetry. This is covered by insurances or if you have...
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