Cystic Fibrosis Forum (EXP)

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  1. L

    Hypertonic saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
  2. L

    Anyone live in NC or TN???

    We live in Knoxville TN raising our little girl who is 3 with CF. The heat is not so bad for the most part, but the humidity can be pretty bad on some days. If you have allergies/asthma I would put that into serious consideration as these parts are always at the top of the list for worst places...
  3. L

    Anyone live in NC or TN???

    We live in Knoxville TN raising our little girl who is 3 with CF. The heat is not so bad for the most part, but the humidity can be pretty bad on some days. If you have allergies/asthma I would put that into serious consideration as these parts are always at the top of the list for worst places...
  4. L

    Anyone live in NC or TN???

    We live in Knoxville TN raising our little girl who is 3 with CF. The heat is not so bad for the most part, but the humidity can be pretty bad on some days. If you have allergies/asthma I would put that into serious consideration as these parts are always at the top of the list for worst places...
  5. L

    Gene therapy

    I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a like diabetes. I don't think I'm wrong for saying that. Now, I'm not a Doctor by...
  6. L

    Gene therapy

    I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a like diabetes. I don't think I'm wrong for saying that. Now, I'm not a Doctor by...
  7. L

    Gene therapy

    I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a like diabetes. I don't think I'm wrong for saying that. Now, I'm not a Doctor by...
  8. L

    Questions about Oxygen

    <i><b>am a little confused. When i was very unwell last year, and my pft was around 15%, i was given o2 at home. at the moment my pft has doubled and is now around 30%. i still feel like i "need" o2, but my o2 sats have always been pretty high. At rest my o2 sats are 97% at best. When i sleep...
  9. L

    Questions about Oxygen

    <i><b>am a little confused. When i was very unwell last year, and my pft was around 15%, i was given o2 at home. at the moment my pft has doubled and is now around 30%. i still feel like i "need" o2, but my o2 sats have always been pretty high. At rest my o2 sats are 97% at best. When i sleep...
  10. L

    Questions about Oxygen

    <i><b>am a little confused. When i was very unwell last year, and my pft was around 15%, i was given o2 at home. at the moment my pft has doubled and is now around 30%. i still feel like i "need" o2, but my o2 sats have always been pretty high. At rest my o2 sats are 97% at best. When i sleep...
  11. L

    Taking CF kids out in public

    different parents feel differently about this subject as well, we let our kids be kids. Germs are eveywhere no matter how clean we try to make the outside world, wash the kids hands afterwards is what we do and the our little girl has been healthy as a horse.
  12. L

    Taking CF kids out in public

    different parents feel differently about this subject as well, we let our kids be kids. Germs are eveywhere no matter how clean we try to make the outside world, wash the kids hands afterwards is what we do and the our little girl has been healthy as a horse.
  13. L

    Taking CF kids out in public

    different parents feel differently about this subject as well, we let our kids be kids. Germs are eveywhere no matter how clean we try to make the outside world, wash the kids hands afterwards is what we do and the our little girl has been healthy as a horse.
  14. L

    What is the age for a vest or acapella?

    Avery got on the Vest at 19 months (1 month after being dx), and she has been doing the acapella since she was a little over 2 (roughly). She has been a dream to work with, we dont let her being a age decide if we try new things on her. We showed her how to swollow enzymes whole, then gave them...
  15. L

    What is the age for a vest or acapella?

    Avery got on the Vest at 19 months (1 month after being dx), and she has been doing the acapella since she was a little over 2 (roughly). She has been a dream to work with, we dont let her being a age decide if we try new things on her. We showed her how to swollow enzymes whole, then gave them...
  16. L

    What is the age for a vest or acapella?

    Avery got on the Vest at 19 months (1 month after being dx), and she has been doing the acapella since she was a little over 2 (roughly). She has been a dream to work with, we dont let her being a age decide if we try new things on her. We showed her how to swollow enzymes whole, then gave them...
  17. L

    When and how to tell my son?

    this one is a tricky question, because different families face different obsticles. With Avery who is 3, it has been alot easier than what either one of us thought it would be. One day my wife just started talking to her when she was 2 years old in the bath tub. She told her why she has to take...
  18. L

    When and how to tell my son?

    this one is a tricky question, because different families face different obsticles. With Avery who is 3, it has been alot easier than what either one of us thought it would be. One day my wife just started talking to her when she was 2 years old in the bath tub. She told her why she has to take...
  19. L

    When and how to tell my son?

    this one is a tricky question, because different families face different obsticles. With Avery who is 3, it has been alot easier than what either one of us thought it would be. One day my wife just started talking to her when she was 2 years old in the bath tub. She told her why she has to take...
  20. L

    For basketball fans

    Here is the article! Chuck daddy to Avery 3 years old with CF PRINT THIS STORY | E-MAIL THIS STORY Young woman's zest for life celebrated By Millete Birhanemaskel, birhanemaskelm@knews.com March 8, 2007 If it is true that life is not measured in years but rather in the impressions one...
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