Cystic Fibrosis Forum (EXP)

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  1. L

    Really bad leg cramps!!! HELP!

    Pickle juice!!! It makes sense, athletes do it to give there body the extra salt. Chuck father to Avery 3 with CF and Rhett 2 carrier
  2. L

    Really bad leg cramps!!! HELP!

    Pickle juice!!! It makes sense, athletes do it to give there body the extra salt. Chuck father to Avery 3 with CF and Rhett 2 carrier
  3. L

    Really bad leg cramps!!! HELP!

    Pickle juice!!! It makes sense, athletes do it to give there body the extra salt. Chuck father to Avery 3 with CF and Rhett 2 carrier
  4. L

    How do I beef up

    Avery for the last two years has been on Whole milk (Vitamin D) and Nestle Quick. It seems she has taken off the last few months on her height, her weight has always been pretty good. But she has also been on chocolate milk since we found out she had cf. Like many other parents she has her good...
  5. L

    How do I beef up

    Avery for the last two years has been on Whole milk (Vitamin D) and Nestle Quick. It seems she has taken off the last few months on her height, her weight has always been pretty good. But she has also been on chocolate milk since we found out she had cf. Like many other parents she has her good...
  6. L

    How do I beef up

    Avery for the last two years has been on Whole milk (Vitamin D) and Nestle Quick. It seems she has taken off the last few months on her height, her weight has always been pretty good. But she has also been on chocolate milk since we found out she had cf. Like many other parents she has her good...
  7. L

    Cystic Fibrosis genes

    The most common gene is the DF508, the other could be what the call a non-sense mutation, I for one have not heard of that partucular gene. Your test would have shown if you were a Double Df508, because like I said it is the most common. The M470V is a new one for me, how old are you and when...
  8. L

    Cystic Fibrosis genes

    The most common gene is the DF508, the other could be what the call a non-sense mutation, I for one have not heard of that partucular gene. Your test would have shown if you were a Double Df508, because like I said it is the most common. The M470V is a new one for me, how old are you and when...
  9. L

    Cystic Fibrosis genes

    The most common gene is the DF508, the other could be what the call a non-sense mutation, I for one have not heard of that partucular gene. Your test would have shown if you were a Double Df508, because like I said it is the most common. The M470V is a new one for me, how old are you and when...
  10. L

    Please pray for Lo Detrich

    Will do, she has been a beacon for us all! Chuck father to Avery 3 with CF and Rhett 2/carrier
  11. L

    Please pray for Lo Detrich

    Will do, she has been a beacon for us all! Chuck father to Avery 3 with CF and Rhett 2/carrier
  12. L

    Please pray for Lo Detrich

    Will do, she has been a beacon for us all! Chuck father to Avery 3 with CF and Rhett 2/carrier
  13. L

    KYLE'S FIRST PLAYDATE

    He could be Ashley, and the sisters take care of him like he has "CF". Tries the vest on and afterwards they a tea party, they give him enzymes (applesauce w/o the beads). He has a greater appreciation of CF afftects not only Ashley but the sisters. And how the sisters take care of her as well...
  14. L

    KYLE'S FIRST PLAYDATE

    He could be Ashley, and the sisters take care of him like he has "CF". Tries the vest on and afterwards they a tea party, they give him enzymes (applesauce w/o the beads). He has a greater appreciation of CF afftects not only Ashley but the sisters. And how the sisters take care of her as well...
  15. L

    KYLE'S FIRST PLAYDATE

    He could be Ashley, and the sisters take care of him like he has "CF". Tries the vest on and afterwards they a tea party, they give him enzymes (applesauce w/o the beads). He has a greater appreciation of CF afftects not only Ashley but the sisters. And how the sisters take care of her as well...
  16. L

    Hypertonic Saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
  17. L

    Hypertonic Saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
  18. L

    Hypertonic Saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
  19. L

    Hypertonic saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
  20. L

    Hypertonic saline

    Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the...
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