Cystic Fibrosis Forum (EXP)

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  1. L

    Avery in for her bronchoscopy

    this is her third trip and she is yet to have a picc. She has done a great job with her meds over the last year, but as her dad there is always the fear of the uncertain. Our neighbor is also in for hers as well. keep us all in your thoughts. Chuck father to Avery 3 with ddf508 and Rhett 2...
  2. L

    Avery in for her bronchoscopy

    this is her third trip and she is yet to have a picc. She has done a great job with her meds over the last year, but as her dad there is always the fear of the uncertain. Our neighbor is also in for hers as well. keep us all in your thoughts. Chuck father to Avery 3 with ddf508 and Rhett 2...
  3. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  4. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  5. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  6. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  7. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  8. L

    What to feed a 1 yr old?

    Whole Milk with Nestle Quik is what Avery loved at 1, but she has grown out of the Mac and Cheese wth everything. But whole milk got her weight up quit a bit, she is 3 and weighs 38 lbs. She was doing about 3-4 8oz a day, now she is down to 1-2. Chuck father to Avery 3 DDF508 and Rhett 2 carrier
  9. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  10. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  11. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  12. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  13. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  14. L

    Double Delta F508

    Avery was dx at 18months, due to failure to thrive. That was like many cases the last test ran. She is almost 4, and her health as been nothing short of spectacular. 3rd bhronc coming up in late July! Weighs around 39 lbs, and is growing like a weed. Chuck father to Avery 3 with DDF508 and...
  15. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
  16. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
  17. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
  18. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
  19. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
  20. L

    MTV honors Frankie!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Prussian</b></i> I am sorry she passed away but I can't say I'm shocked. She smoked so heavily and drank all the time (at least on the show) it's a wonder she lasted this long. She probably could have lived many more years if she...
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