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Don't assume that your child will get sick more often. While it is true that she has probably been exposed to more colds and viruses, my daughter, Rachel, hasn't gotten sick from school yet. She started in pre-k 3 September '02 and I was really worried about it. She only was sick once and...

South Eastern Pennsylvania. Down past Philly.Andreamom ot Rachel, 5 with CF

We traveled to Disney the January after 9/11. Our travel day was the day that all sorts of new rules went into effect at the airport. I brought a letter for the meds and the nebulizer too. It was a good thing because I had to completely unpack my med/neb carry on bag and show what that thing...

Jo AnnBe perpared though! Even though the temp is usually in the 70's, when we went this time a few years ago it was in the 80's everyday but one. All the days were very humid. The good thing was that there were hardly any lines for anything since we didn't go during regular "holiday" dates...

hey,That number is scary but it is ONLY an average. I know a woman in her 60's with CF who has a son in his late 30's with CF. She has many relatives in their 60's and 70's with CF too! I also know a man in his 70's. there was a woman who used to post here who wasn't even diagnosed until she...

Hi,I do not have CF either but my child does. I belong to many CF lists. If you want to try http://groups.msn.com/CysticFibrosis2chat or http://groups.yahoo.com/groups/cfparents I can assure you that you will get a positive response from BOTH of these groups. You can even check out my...

We went to DineyWorld 2 yrs ago and it was great!! Just make sure that you have requested a fridge in your room ahead of time if you need it for meds. The travel agent forgot to request it for us ahead of time and it took a few hours to get one. Lucky for us that they were able to get one for...

I can't really give advice on the concerns you have with loosing the benefits that your fiance has but I have a suggestion for work. What about transcription. If he can type and has patience, it might be a good job for him and he can do it from home. <img...

Megan,I have heard of some symptomatic carriers. Also, I have been told ,that there seems to be a correlation with asthma and allergy related problems in carriers. While he has never been diagnosed as having a "bowel problem", my hubby does have some digestive issues and is underweight. He...

Life is the gift. The smile on the face of your child is the gift. The sweet word and silly things that they do and say are the gift. My child's life is worth more than 40 K a year in meds. Her life is worth the world to me.The original author asks "Why have this chld?"I ask " Why kill it...

The standard size for the vest is at least a chest circumferance of 22 inches. Most kids do not hit this size until about 3yrs old or so. That said, the company WILL make custom sized vests for smaller kids but often, the insurers won't cover them until they hit the standard size because they...

Getting a CF diagnosis is like losing the perfect child you thought you had, you will grieve for them and anger is part of the grief process. Soon you will realize that it is better to have the diagnosis because you will be able to get your son the treatment he needs. I am sorry to hear that...

Jo Ann,Hi is the albuterol in a neb or in an inhaler? My daughter is five and in preschool (didn't make the cut off for K) I have always noticed that she is much more hyper than the other kids in her class, but she is more social too. She is a lot more hyper when she is using the albuterol...

Hi,Congradulations on your pregnancy. Having a diagnosis of CF stinks. But it is better to have the diagnosis early rather than late. Since you know now, you can begin to educat yourself about CF, find a doc who you are comfortable with and get info about nutrition and other CF related health...

Some people are carriers of one fully mutated gene and a mutation fragment. I am wondering if having a fragment as well as a fully mutated gene would increase the possibility of being a symptomatic carrier? (just thinking out loud) The genetic test might be covered by your insurance. It...

Hi,I am a carrier and so is my hubby. Our daughter is 5 with CF. I have heard that some carriers can be symptomatic (obviously more mild than someone with CF) I do not have any symptoms excep it takes me longer to get rid of colds and chest infections than the average person, and...

Hi,When you are on antibiotics, yeat infections are so comon. I do not have CF but am the mom of a 5 year old with CF. I get yeast infections whenever they put me on antibiotics. I take a chewable acidopholis and eat a lot of yogurt. Also the diflucan works. I have never had good luck with...

"cannot be treated"? What are you talking about? There are lots of treatments out there for someone with Cf. Albuterol, antibiotics-oral, inhaled and IV, Chest percussion, mucus thinners like pulmozyme, enzymes, glutathione..........the list of treatments goes on and on. None of them are...

What a great Aunt you are trying to find out info ans such. Even from far away you will be a great support person if you are educated. I Your family is MUCH better off knowing early. Now you can gather and go through info about CF before the baby gets "sick" I wish we had known so early...

Val, The best advice I got when my daughter was diagnosed with Cf was always be cautious. I think you did the right thing! First you should call the ped and have them see the baby. If what they do doesn't work, call the CF center. They are there to help you figure out what is going on. If...