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Scarlett,I know that hearing that must be hard. You might want to point out to the teacher that the manner in witch she is mentioning that option might be insensitive to poeple in her class that DO have genetic illnesses. Remind her that not all of them are visible and ask her to reconsider...

I have heard others say that they use plastic or paper cups. that way they can just throw the whole thing out.Andrea

hi,I am the mom of a little girl who has CF. She was diagnosed at 9 & 1/2 months. Our first 2 years were hard but I wouldn't trade them for anything. The last nearly 3 years have been great. It takes a bit of maintenence for her to stay well but that is really not that big of a deal. I...

Risa uses it for her sinuses, because they are still effected by her CF. I believe that the bacteria she is referring to is in her sinuses, not her lungs. Also it is used for the pancreas as well. Hope this helps.Andrea

Hi Melissa, Sorry I don't have an answer to your question but you can see what it might look like and ask questions at http://groups.msn.com/cysticfibrosis2chat if no one answers you here. The pic of what it might look like is listed in the pictures under "Manda's Babies:" on page 7 of the...

I just wanted to add that you could point out that going into the nurses office, where there are sick kids, could adversly effect your son. That he could end up in the hospital if he were to catch something from another student in the nurse's office. I would get a new note from his doc...

My daughter uses Tobi and bactrum for the pseudomonas. She doesn't culture it any more but she did for a long time.Andrea

Risa,I'm glad to see that GSH is working so well for you! I haven't seen any posts lately on the CF2chat board. I'm not sure if you remember Jason from Australia (AKA Gremlin) but he got his triple tx about a month ago and has gone home from the hospital. Just though I would let you know<img...

We use paper tape. Both my daughter and I get irritations from the regular tapes, but the paper tape usually doesn't irritate our skin as much.Andrea

A many people that I know of who are on it say that it makes a huge difference. a few say it made no difference. you might want to try asking that question at http://groups.msn.com/cysticfibrosis2chat over 500 very active members at that site!Andrea

Hi Rami,We have been told that once you have pseudo you always have it if you were fully colonized with it. That said, My daughter cultured it but about a year ago her culture cam back negative. 4 months ago another sputum test showed she was still free of it. I think it is because she has...

Maybe you could ask about Pulmozyme instead of Mucomyst. Pulmozyme also thins the mucus so you can cough it out. My daughter was on mucomyst for a short period whan she was first diagnosed but it didn't make any difference at all. She is on pulmozyme now and when she gets sick it is really...

Here is that addywww.genet.sickkids.on.ca/cftr-cgi-bin/MutationTableHope it helpsAndrea

Hi,questions are never impositions here. FEV's are numbers that are gotten through the pulmonary function tests. they have to do with the velocity of the air when it is forced out of the lungs. You probably won't have to worry too much about them until your child is a bit older. If you are...

Hi,the throwing up and coughing could be caused by reflux. an acid reducer and a med that helps empty the stomach could help with that. My daughter is on Reglan (to empty the stomach) and Zantac (to reduce the acid) they also help the enzymes to be more effective so it might also help with...

Donna,We really had a tough time with the nissan when our daughter got it but in the end I think it was exactly what she needed at the time. She also had a g-tube placet at this time. Feel free to read about our experience with it on our site. http://groups.msn.com/TeamRachelJane Andrea

You actually do not have to get a lawyer. You can appeal on your own. (we did and we won) If you feel like you need a lawyer, go to the legal aid dept in your county. They work on a sliding scale depending on your income and you may not pay anything at all! It did take about a year or so to...

Hi, I just recieved My "CF in the Classroom from the CF Pharmacy and it says that: an IEP covers kids with learning disabilities as well as Other Health Impairments (including CF) but that it only covers kids in public schools and that most of the administrators mistakenly believe that it is...

Go to the CFparents group at yahoo. there are some people experienced with 504 plans there.http://groups.yahoo.com/group/cfparents Andrea

I have to agree with Don here. Unless one of you has (undiagnosed) CF, you should only have to look for the same 2 mutations that your older child has. (excepting, of course that your 2nd child has a different father) Otherwise it wouldn't make sense. There is also the possibility of a...