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Hi,Last year my daughter started in a 2 year pre-k program just 1/2 day, 2 days a week but i was a wreck! Rachel would have to go to the nurse to get her enzymes, I was concered about other people sending their kids in to scjool when they knew they were sick....... So I told everyone who...

Hi,Yes I said sick. You have to remember thqt coughing/runny nose/watery eyes can all mean allergies. My daughter coughs more when she is having reflux problems too. Ask about the policy though, many places take kids even when they have colds as long as there is no fever but our kids can get...

I let my daughter do mostly everything.(within reason-lol) She is four and a half and was diagnosed when she was 9 and a half months. About going to the gym, I would take him and stay with him for a while, talk to whoever is in charge and find out how often things are cleaned, the rules of...

Hi, I think that anyone who's child has ever been diagnosed goes through some sort of depression. We all show it in different ways. If the Celexa isn't working, please, talk to your doc and get something else. There are a ton of different antidepressants. It may take a while to find the...

I would have him re-tested if those are his symptoms. I hope it's not CF but it could be. Also some of the rarer cases have negative sweat tests but positive DNA. or they are diagnosed on symptoms alone. TRY to get to a CF center!Andrea

My best advise is to try and be there for your niece and the family. Find out what you can about CF and offer to help with that fundraiser. (have they run this fundraiser idea past your neice? Some kids do not want any kids at school knowing about their CF and other stuff and prefer to let...

You should report that doctor after you tell him that he is not only wrong but dangerously misinformed. He should not be counciling you when he doesn't have his facts straight! He can't deny you testing to find out if you are a carrier. He should encourage it! I am completely outraged by his...

Hi,I'm from PA but if you go to http://groups.yahoo.com/group/cfparents someone can probably help you. this is an online support group but one of the BEST ladies on there is from FL. She is in the Orlando area but is knowlegeable about the state and extremely well versed in CF related stuff...

Hi,I'm from PA but if you go to http://groups.yahoo.com/group/cfparents someone can probably help you. this is an online support group but one of the BEST ladies on there is from FL. She is in the Orlando area but is knowlegeable about the state and extremely well versed in CF related stuff...

Hi, I wanted to chime in here. There are 2 kinds of social security people can apply for if they have CF. I have only had to deal with one since it is my daughter not myself that has CF. SSI is a FEDERAl program and "should not" vary from state to state, but it seems as though it does. When...

Hi, I wanted to chime in here. There are 2 kinds of social security people can apply for if they have CF. I have only had to deal with one since it is my daughter not myself that has CF. SSI is a FEDERAl program and "should not" vary from state to state, but it seems as though it does. When...

Hi,I am the mom of a 4 and a half year old girl who has CF. She was diagnosed ar 9 and a half months. While all this is quite overwhelming at first, you eventually develop a routine of meds and chest PT to go along with your everyday life. This is a good site to get help. Some other good ones...

Hi,I am the mom of a 4 and a half year old girl who has CF. She was diagnosed ar 9 and a half months. While all this is quite overwhelming at first, you eventually develop a routine of meds and chest PT to go along with your everyday life. This is a good site to get help. Some other good ones...

the reason our kids need so much good and bad fat (with enzymes)s that their bodies have trouble digesting and distributing the fat even with enzymes, they also burn calories much much faster than the rest of us. They need the fats in order to absorb the fat soluable vitamins ADEK's. Because...

the reason our kids need so much good and bad fat (with enzymes)s that their bodies have trouble digesting and distributing the fat even with enzymes, they also burn calories much much faster than the rest of us. They need the fats in order to absorb the fat soluable vitamins ADEK's. Because...

Megan,You can contact the CFF to get info and to offer to volunteer. Ask what fundraisers are comming up or see if your school or religious organization will help you organize a furndraiser. We cannot beat this illness without funding for research. Maybe you can do something in honor of...

Megan,You can contact the CFF to get info and to offer to volunteer. Ask what fundraisers are comming up or see if your school or religious organization will help you organize a furndraiser. We cannot beat this illness without funding for research. Maybe you can do something in honor of...

Try http://groups.msn.com/cysticfibrosis2chat Lots of nice people there and a few of the same nice ones from here are there too! Andrea

Hi Hannah,Try going on to Mycysticfibrosis.com they have info about it there. Also check out http://groups.msn.com/cysticfibrosis2chat there are alot of people there and quite a few of them have CFRD. Andrea

Hi Hannah,Try this group http://groups.msn.com/cysticfibrosis2chat lots of people there with CF or who have kids with CF. I know there are at least a few people there with CFRD. good luck.Andrea