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Hi,Unfortunately it could still be CF. The unabsorbed fat, slow growth and pancreatic issues are all a big part of CF. While most people have lung involvement too, others don't or only have it to a lesser degree. The same goes for the digestive issues. I hope the sweat test is negative.Andrea

Hi Mary,My daughter is four and a half with CF. Hew mutations are G551D and 1898+1G<A The first one is fairly common to German. Welsh, Polish and Slovic people as I understand it and I don't have much info on the other one. Up until her 2nd birthday Rachel's CF seemed very severe, but she...

Hi Melanie,My daughter loves this, chocolate fiend that she is.......1 scoop Breyers (higher calories than most) chocolate ice cream,1 cup whole milk1/2 packet chocolate flavored carnation instant breakfast 2 tbs Ovaltine3 tbs heavey whipping cream1- 2 tbs DuoCal (fat & carb powder)whip in...

Hi,Some people are able to absorb normally for a while, It depends on how much mucus blocks the passage between the pancreas and the intestines. My daughter did fine with her digestion for the first few months but some with CF can go years without having a problem. Some never need to take...

Don't forget that many people post tx feel that their "quality" of life improves dramaticly as well as their "quantity" of life post tx. I will never have to make this decision, but my daughter might. Good luck with whatever you choose.Andrea

Hey it seems to me that the quickest thing to do while waiting on the genetic tests is to re-test for CF. It wouldn't be the first time that a sweat test came back wrong. Make sure it is done at the CF center not at a "local" hospital since CF centers have a better track record than other...

Oops!Ok, I am a bit confused today.How does your child have 3 mutations for CF? each parent can only give one mutation, if one of the parents has 2 mutations then by definition, that parent must have CF but they can still only give one mutation to the child............ Maybe Try going to...

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Hi,I find this all quite disturbing. While I agree with many of you that having CF and HIV and a boyfriend withCF too, Cindy should have been more careful and not gotten pregnant. We can't turn back the clock and the fact is, she did get pregnant. That doesn't mean that she doesn't care for...

Hi Katrina,My daughter is 4 &1/2 and and has told me that she "hates CF, PT and Nebs" And that she doesn't want "special lungs" anymore. She would love to write to your son. She loves to sing and dance,draw and play in the water (she wants swimming lessons too!) I'm the mom with the site...

Hi, It does sound like your little one is healthy, but mine didn't really start getting sick until she was about 6 months. Rachel thrived until she was 6 months old and she got a cold that we couldn't get rid of. Then she started loosing weight and having diarrhea all the time (malabsorbtion)...

Hi, My daughter prunes up within the first few min. of being in the water. Sometimes she is salty other times she is not. Is there a reason that you think your baby might have CF? Is it in the family that you know of? Does she have any other symptoms? Ceck out our site...

Is there a site for this or what? I'd like to give it to my child's teachers if there is. Please let me know at http://groups.msn.com/TeamRachelJane or e-mail TeamRachelJane@msn.comthanksAndrea

The article is about Laura Rothenberg, the young woman (22years old) who was featured in a national public radio program and who also wrote a book before she passed away called "Breathing fo a Living" It is inspirational and sad. I was glad to learn from this post about the article and I...

I would ask for her to be re-tested. 37 is fine but 68 is in the CF range.Andrea

Check into legal assistance or legal aid. they are lawyers who work for you with little or no cost (depending on your income) If you cannot find info on them in your phonebook, call the county courthouse, someone there should be able to direct you to legal help. Congrats on your new baby. I...

Jenifer,Have you tried the flutter or acapella? Some people prefer these methods to the vest. It's too bad that things haven't worked out to Seans liking with it. Follow what your new docs say if you trust them- if not keep doing it and find another doc. Has this new one told you what PT you...

Sean,I'm sorry you feel it is necesary to hurl insults here on this forum. Calling anyone a "stupid retard" is both unkind and unnecessary. I am sorry if you are in pain, but that is no excuse for nasty behavior. If you would have read all of Dea's post you would have seen that she also has...

Hi, if a person who has CF has a child with a person that doesn't have CF and doesn't carry the CF gene then the there is a 100% chance of the children being just carriers. If the CF person has a child with a carrier eache child has a 50% chance of having CF and a 50% chance of just being a...