Cystic Fibrosis Forum (EXP)

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  1. I

    Donation of TWO iPad2s

    Got it!! Thanks again! Our team is very excited! (This was just received from the Helen Devos Children's Center)!
  2. I

    New Forums

    The crossover is taking longer...as usual. We won't know for a while whether all the threads have to be archived (still available but archived) or whether it will be seamless. We are hoping for a seamless forum. Standby
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    New Forums

    Our old forums are now being archived and will still be searchable! Why? This new software has the features you have been asking for: easily upload videos and photos, compatible with iPad and Android devices, latest technology for the web and the software comes with an app making...
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    Donation of TWO iPad2s

    <pre>CFTechnology will be sending out two iPad2s marked for Michigan</pre> <pre>(the donor's mother was from MI) </pre> <pre>One to the:</pre> <pre>1. <strong>Helen DeVos Children's Hospital CF Care Center</strong></pre> <pre>"IPad will be used during cf clinic for educational purposes for the...
  5. I

    Oldest Person With CF

    thanks Steven...yes that's good news. Let's change that!
  6. I

    Donation of TWO iPad2s

    So far, one is leaving for a little girl in Michigan. It sounds like she will get lots of use with it! Thanks everyone....
  7. I

    Donation of TWO iPad2s

    Pass it on...maybe the centers have an individual patient...a school child missing school, someone going off to college, a parent needing to keep in touch while they spend a lot of time in the hospital...there are so many reasons...
  8. I

    Donation of TWO iPad2s

    Good News! We received a donation of two iPad2s, but to qualify, we are looking for a CF Center in Michigan and a patient in Michigan. The person donating would like to keep updated on the use of the tablets. If you think you qualify, please fill in the forms...
  9. I

    Praying for Micah

    Thanks for posting this. I think there is strength in numbers! I know the family feels our love and prayers. They have eight children...so each will have their own needs and responses I am sure.
  10. I

    Leaving

    Thanks Joanna! Bingo! Ethics matter! It's also silly to claim ideas are yours alone, when all of healthcare is moving in the same direction. If you Patent something or invent a solution then great and wonderful....you may have ownership...I think people can see where this is heading. Kevin...
  11. I

    Leaving

    We personally paid to find out the single most important thing....there are different goals and (different styles) as may be obvious in the above posts. Best of luck to Sixth Sense as they move on to CF2Chat...We wish you well and expect great solutions. We all have ideas and dreams for changing...
  12. I

    Leaving

    thanks again for the great responses.. I believe many good things happen when people move along and start their own sites, maybe a YouTube or other CF sites. A "split" is a good thing in gardening! When there are different goals, a split is a must. This site has always been open...to...
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    Leaving

    I was at church today and the minister said something so interesting. This may be a good response to Printer, Cherylwithone and Liza (so glad to see you again!) What he said was: Try to Respond and not React. What a lesson for me! I have gone on so many "listening" retreats! I hope I can...
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    Leaving

    Thanks for the replys. Yes, I do own many domain names, from the late 1990's. Community members have even had the opportunity to work on some of them with me. My company Medrise is an on line medical company. I believe I gave the reasons for owning this domain and believing in this community...
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    Praying for Micah

    I missed it too! Dear God, May Tom and Johanna and the children have the strength to live this day with peace. Let them feel the prayers and love of a wide family here and all over the web. Comfort, Jeanne
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    Leaving

    Thanks for the Clarity..and congratulations are the good work you do. We also have a non-profit, giving iPads and tablets to centers and patients. Even charitable sites run on the bottom line. Usually two bottom lines, meeting the needs of the community and keeping the site sustained! God Speed!
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    Leaving

    Thanks Joanna. I know you have been and continue to be stalwart for your son's care. You, and people like you are globally changing the face of clinical trials. Now, trials are becoming more accessible and open. I have personally spoken to people in charge at different pharmas and e-patients...
  18. I

    Leaving

    Patients are in control...I'm just witnessing, sponsoring and reporting. It is about CF awareness...and it has always been about support, education and hope! Good luck to all who are "leaving"....
  19. I

    Leaving

    Also, my expertise is in this patient community as e patients. I know what I have read and reread here. I always write about the need for this community to have digital...from the first I met you in 1996, when no one could even be together virtually, our site being the first, and always open...
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    Leaving

    We are a global site, sites have started here globally. People come here from 121 countries and territories. I'm sorry you didn't know this. Is your site only England?
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