Cystic Fibrosis Forum (EXP)

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  1. I

    Leaving

    Every part of this site, is offered by us and we always pay the community for special projects. Websites aren't free...out of curiousity, will you pay for community help or all is volunteer?
  2. I

    Leaving

    Sorry, we host Julie's site/s for free and I think a few others from our community are on our server too. People who have made relationships with us and offer something we don't have. Glad you are offering the community a great page/site? Jeanne
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    Leaving

    Leaving? Perhaps I have it wrong...aren't you starting a new pregnancy site? One that is growing out of your FB site? Good luck if you are! As I said, many sites have started here. We host Julie's IVF site here and maybe even her non profit.
  4. I

    Leaving

    Leaving? Thanks Tombliboo, Frank and Havock. Again, I wish you much success with your businesses. This site is cysticfibrosis.com and is a center and all are welcome. It is when people use it to carp and advertise their own businesses, we may step in. Probably, we are not going to give carte...
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    Leaving

    CysticFibrosis.com has been in existence since 1996! This is before Google and Facebook. Many people, like Frank and Jonathan, have started websites and even businesses from this site. Ronny Sharpe, Jerry Cahill, Emily Schaller and others; lots of bloggers used this site to get started. Peter...
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    findings from our spirometry survey

    We conducted a survey on the use of spirometers for this community from June 14th to the 16th. Our first finding: YOU ARE INTERESTED! More than 450 people took the survey...so More Findings to come! Jeanne
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    Responsible Patients

    <a href="http://social.eyeforpharma.com/opinion/ten-hurdles-patient-adherence">http://social.eyeforpharma.com/opinion/ten-hurdles-patient-adherence</a>
  8. I

    Heart Rescue Video

    <a href="http://www.heartrescuenow.com/">http://www.heartrescuenow.com/</a>
  9. I

    genetic sequencing

    <a href="http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter">http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter</a>
  10. I

    genetic sequencing

    <a href="http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter">http://www.sciencedaily.com/releases/2012/05/120522152655.htm?utm_source=twitterfeed&utm_medium=twitter</a>
  11. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    I am speechless...I KNOW these are for real...I saw you before....now can't wait to see the after
  12. I

    Jerry Cahill is in for lungs for real this time!

    Dear Creator God, your son and our brother Jerry is needing focus and attention from the best doctors in the world. We need them to be at the top of their game...to get our leader Jerry back in our game! Salt and Light! Jeanne
  13. I

    Jerry Cahill is in for lungs for real this time!

    Dear Creator God, your son and our brother Jerry is needing focus and attention from the best doctors in the world. We need them to be at the top of their game...to get our leader Jerry back in our game! Salt and Light! Jeanne
  14. I

    Ted ed

    TED ED love Khan Academy too...
  15. I

    Ted ed

    life long learners! http://www.techcf.org/index.php/2012/03/15/ted-ed/
  16. I

    Reeling tonight

    Oh God where are you? Our hearts are breaking. Send comfort to Tom and Joanna and their beautiful family! Their strength and wisdom in this time of sorrow is a beacon of light for all who love their children.
  17. I

    Reeling tonight

    Oh God where are you? Our hearts are breaking. Send comfort to Tom and Joanna and their beautiful family! Their strength and wisdom in this time of sorrow is a beacon of light for all who love their children.
  18. I

    Audio Note

    I think this has great potential for clinic visits: <a href="http://www.techcf.org/index.php/2012/03/06/audio-note/">http://www.techcf.org/index.php/2012/03/06/audio-note/</a>
  19. I

    Audio Note

    I think this has great potential for clinic visits: <a href="http://www.techcf.org/index.php/2012/03/06/audio-note/">http://www.techcf.org/index.php/2012/03/06/audio-note/</a>
  20. I

    Jerry Cahill got the call for Lung Transplant

    When I met with my good friend Jerry last summer, he had just "found out", he was Number 13 on the transplant list. Jerry was in disbelief. Jerry, as you know, does everything to keep himself healthy. Many of you now exercise with oxygen and follow his lead. Jerry also thought he was high on...
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