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Thank you :)

I am nervous. We are expecting another child in March and we go in later this month for the anatomy screen. I know I am getting ahead of myself but was just wondering how many of you (with more than one child with CF) experienced an EB or MI issue with both children. I am not doing an amnio...

If there is still malabsorption then the docs should be trying different things. If the enzymes aren't working correctly then it doesn't matter what you feed her (breast or bottle), she's going to malabsorb.

How are her bowel movements? Has the clinic gotten a chance to check and see if there is some malabsorption going on? I know with DS we changed the type and amount of enzymes numerous times when he was little to get the right one. I had to quit BFing at 5months and am still saddened that I...

We do CPT and breathing treatments twice a day and up it when he is sick. Your baby might not like the CPT at first but our child got used to it. Also, not sure why they would not have started CPT with her yet. Our son was under 6lbs when he left the hospital and we started CPT right away...

If they found two known mutations with newborn screening then a sweat test is not necessary. Did you get some information from the clinic? Are they testing to see if she is pancreatic sufficient or did they prescribe enzymes? Did they show you how to do CPT on your little one? I know these...

DS was found to have an echogenic bowel at 17 weeks and at 20 weeks we found out that both DH and I were carriers. We were devastated, completely saddened and scared to death. We decided to do as much research on CF as we could. I came here and got quite a bit of great advice. I switched...

We are pregnant and I am going in for the first trimester screening at 13 weeks. We found out with DS at 20 weeks that he had a bright bowel. Just curious if they would be able to see this at 13 weeks or is it something that shows up later? When did you find out or what is the earliest you...

We should know which teacher he is getting tomorrow. I am planning then on sending a letter to the teacher, nurse and will CC the principal. There is already a record of what he takes and will need to take as far as medicine goes from registration and I have spoken to the nurse in the past...

Thank you everyone for your responses. DS is 5 and starting Kindergarten. With my older, non-CF child, I have always just had him eat school lunch. I was thinking that maybe with the CFer I could do the same but then pack some extra stuff from home. As far as talking with the teacher, we...

DS will be starting school this month and I am a bit confused on how far to go with everything right away and wondered if anyone could tell me what their experience has been. Areas of concern are diet, 504 and other children. I'm curious how I should go about trying to add calories to his diet...

I went ahead and made an appointment at his regular ped's office for tomorrow. We will see what she says and then go from there and of course talk to CF team before starting anything. He is only 5 right now but I am truly worried about his socialization with school coming up for him this year.

Hi everyone! Just curious how many of you parents have dealt with their CFer having ADHD? DS is not formerly diagnosed but his older brother has been (along with other things including Tourette Syndrome) and he is starting to exhibit a lot of the same ADHD symptoms along with a few tics...

Does it not bug anyone else that someone from the CF Foundation said "she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my husband or I would be a carrier, and thus effected with the disease"? That statement is completely false...

Does it not bug anyone else that someone from the CF Foundation said "she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my husband or I would be a carrier, and thus effected with the disease"? That statement is completely false...

Does it not bug anyone else that someone from the CF Foundation said "she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my husband or I would be a carrier, and thus effected with the disease"? That statement is completely false...

We found out at 20 weeks pregnant that DS had CF. I really feel that it was a blessing to know so early. It was hard to find out but gave us so much time to research the disease and get in touch with people who knew more about it - mostly the people on here <img...

We found out at 20 weeks pregnant that DS had CF. I really feel that it was a blessing to know so early. It was hard to find out but gave us so much time to research the disease and get in touch with people who knew more about it - mostly the people on here <img...

We found out at 20 weeks pregnant that DS had CF. I really feel that it was a blessing to know so early. It was hard to find out but gave us so much time to research the disease and get in touch with people who knew more about it - mostly the people on here <img...

We found out at 20 weeks pregnant that DS had CF. I really feel that it was a blessing to know so early. It was hard to find out but gave us so much time to research the disease and get in touch with people who knew more about it - mostly the people on here <img...