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Thanks so much for your info. I'm calling CF Pharmacy today. We already buy Pulmozyme and Creon from them. I will ask about MCT Oil. DD weight is the same for almost a year. When she was diagnosed she was 2.5 years old and she kept gaining weight until she was about 4. Now she is 5.5 and her...

I read that MCT Oil can help our kids gain weight. Where is the best place to buy this product? DD hasn't gained any weight in almost a year. I'm trying to find new ways to add calories.

I read that MCT Oil can help our kids gain weight. Where is the best place to buy this product? DD hasn't gained any weight in almost a year. I'm trying to find new ways to add calories.

I read that MCT Oil can help our kids gain weight. Where is the best place to buy this product? DD hasn't gained any weight in almost a year. I'm trying to find new ways to add calories.

Congratulations on your new baby!! I'm sorry about the diagnosis. Enjoy your baby!! Little by litte you get into the routine. DD goes to school, Daycare, mall, etc. I try to make sure she washes her hands often. So far the biggest issue for us is meal times. She is PI and a very picky eater...

Congratulations on your new baby!! I'm sorry about the diagnosis. Enjoy your baby!! Little by litte you get into the routine. DD goes to school, Daycare, mall, etc. I try to make sure she washes her hands often. So far the biggest issue for us is meal times. She is PI and a very picky eater...

Congratulations on your new baby!! I'm sorry about the diagnosis. Enjoy your baby!! Little by litte you get into the routine. DD goes to school, Daycare, mall, etc. I try to make sure she washes her hands often. So far the biggest issue for us is meal times. She is PI and a very picky eater...

Ethan is sure a good looking young man. Adorable!! DD doesn't have the Acapella. Is this device covered by insurance? Sorry I don't have any advice.

Ethan is sure a good looking young man. Adorable!! DD doesn't have the Acapella. Is this device covered by insurance? Sorry I don't have any advice.

Ethan is sure a good looking young man. Adorable!! DD doesn't have the Acapella. Is this device covered by insurance? Sorry I don't have any advice.

I have 4 unopened bottles of Source CF Chewables and 3 unopened of Pancreacarb MS-8 that expire Oct 2011. DD is taking Vitamax and Creon instead. Let me know if someone is interested. First email I receive will get them.

I have 4 unopened bottles of Source CF Chewables and 3 unopened of Pancreacarb MS-8 that expire Oct 2011. DD is taking Vitamax and Creon instead. Let me know if someone is interested. First email I receive will get them.

I have 4 unopened bottles of Source CF Chewables and 3 unopened of Pancreacarb MS-8 that expire Oct 2011. DD is taking Vitamax and Creon instead. Let me know if someone is interested. First email I receive will get them.

A friend just sent me the link. What do you think of this character? *Christopher Morgan is a fictional character created by Novartis Pharmaceuticals Corporation as an educational resource for the cystic fibrosis community. His story is inspired by research and interviews with people with CF...

A friend just sent me the link. What do you think of this character? *Christopher Morgan is a fictional character created by Novartis Pharmaceuticals Corporation as an educational resource for the cystic fibrosis community. His story is inspired by research and interviews with people with CF...

A friend just sent me the link. What do you think of this character? <br /> <br />*Christopher Morgan is a fictional character created by Novartis Pharmaceuticals Corporation as an educational resource for the cystic fibrosis community. His story is inspired by research and interviews with...

DD was tested at almost 3 years old. It came back 15.

DD was tested at almost 3 years old. It came back 15.

DD was tested at almost 3 years old. It came back 15.

I't breaks my heart to imagine that a child with CF is being neglected. Please involve social services, maybe a family member can adopt this child if you are unable to. I'm sorry you are going through this. This is really a concern and you should keep trying to get this kid a better chance to...