Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. C

    mother doesnt understand

    I't breaks my heart to imagine that a child with CF is being neglected. Please involve social services, maybe a family member can adopt this child if you are unable to. I'm sorry you are going through this. This is really a concern and you should keep trying to get this kid a better chance to...
  2. C

    mother doesnt understand

    I't breaks my heart to imagine that a child with CF is being neglected. Please involve social services, maybe a family member can adopt this child if you are unable to. <br />I'm sorry you are going through this. This is really a concern and you should keep trying to get this kid a better chance...
  3. C

    Sterilizing nebs while travelling

    We just came back from Disney World and I used the Medela breast pump bags. They worked great!! Have a great trip!!
  4. C

    Sterilizing nebs while travelling

    We just came back from Disney World and I used the Medela breast pump bags. They worked great!! Have a great trip!!
  5. C

    Sterilizing nebs while travelling

    We just came back from Disney World and I used the Medela breast pump bags. They worked great!! <br />Have a great trip!!
  6. C

    Thoughts on Make a Wish

    We are leaving for Disney in 2 days. My 5 year old daughter is as happy as she can be. She is counting the days. She is doing ok now, but things can change in a flash, Make a Wish representative came to our house, they made us sign papers and we had to wait several weeks until they decided to...
  7. C

    Thoughts on Make a Wish

    We are leaving for Disney in 2 days. My 5 year old daughter is as happy as she can be. She is counting the days. She is doing ok now, but things can change in a flash, Make a Wish representative came to our house, they made us sign papers and we had to wait several weeks until they decided to...
  8. C

    Thoughts on Make a Wish

    We are leaving for Disney in 2 days. My 5 year old daughter is as happy as she can be. She is counting the days. She is doing ok now, but things can change in a flash, Make a Wish representative came to our house, they made us sign papers and we had to wait several weeks until they decided to...
  9. C

    Mom knew best I guess

    We experienced many of the same problems with our DD. She had so many symptoms and her ped would send me home saying I was overeacting. She had a huge belly, rectal prolapse, voracious apetite, several bowel movements a day, Salty skin. Everything was normal for this doctor. I still get mad...
  10. C

    Mom knew best I guess

    We experienced many of the same problems with our DD. She had so many symptoms and her ped would send me home saying I was overeacting. She had a huge belly, rectal prolapse, voracious apetite, several bowel movements a day, Salty skin. Everything was normal for this doctor. I still get mad...
  11. C

    Mom knew best I guess

    We experienced many of the same problems with our DD. She had so many symptoms and her ped would send me home saying I was overeacting. She had a huge belly, rectal prolapse, voracious apetite, several bowel movements a day, Salty skin. Everything was normal for this doctor. I still get mad...
  12. C

    CF Vitamins

    I think is a great idea!! Way to go Emily!!
  13. C

    CF Vitamins

    I think is a great idea!! Way to go Emily!!
  14. C

    CF Vitamins

    I think is a great idea!! Way to go Emily!!
  15. C

    Benecalorie and Beneproteine

    My DD hasn't gained any weight in months. Does anyone know if Benecalorie or Beneproteine would help ? We use heavy whipping cream in her milk, oil or butter on pretty much everything but she is a picky eater and eat very little amounts of food. Does anyone knows another product that could help...
  16. C

    Benecalorie and Beneproteine

    My DD hasn't gained any weight in months. Does anyone know if Benecalorie or Beneproteine would help ? We use heavy whipping cream in her milk, oil or butter on pretty much everything but she is a picky eater and eat very little amounts of food. Does anyone knows another product that could help...
  17. C

    Benecalorie and Beneproteine

    My DD hasn't gained any weight in months. Does anyone know if Benecalorie or Beneproteine would help ? We use heavy whipping cream in her milk, oil or butter on pretty much everything but she is a picky eater and eat very little amounts of food. Does anyone knows another product that could help...
  18. C

    Make a Wish Disney Trip!!!

    I just wanted to share that we are leaving for Disney World next week!! I'm so excited and I know DD is happy too. We've never been there. We tried to take the trip last year but she got sick and we had to cancel. Then I got sick and had to cancel again. We are trying to leave next week hope...
  19. C

    Make a Wish Disney Trip!!!

    I just wanted to share that we are leaving for Disney World next week!! I'm so excited and I know DD is happy too. We've never been there. We tried to take the trip last year but she got sick and we had to cancel. Then I got sick and had to cancel again. We are trying to leave next week hope...
  20. C

    Make a Wish Disney Trip!!!

    I just wanted to share that we are leaving for Disney World next week!! I'm so excited and I know DD is happy too. We've never been there. We tried to take the trip last year but she got sick and we had to cancel. Then I got sick and had to cancel again. We are trying to leave next week hope...
Top