Cystic Fibrosis Forum (EXP)

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  1. H

    Sinus infection

    My daughter just had a CT scan done last week and the results showed that her lungs are in excellent conditions, but her sinus is very bad. I always thought that sinus is associated with headaches, bad cough, running nose, bad breath etc.... She doesn't show any of these symptoms but her doctor...
  2. H

    Sinus infection

    My daughter just had a CT scan done last week and the results showed that her lungs are in excellent conditions, but her sinus is very bad. I always thought that sinus is associated with headaches, bad cough, running nose, bad breath etc.... She doesn't show any of these symptoms but her doctor...
  3. H

    Sinus infection

    My daughter just had a CT scan done last week and the results showed that her lungs are in excellent conditions, but her sinus is very bad. I always thought that sinus is associated with headaches, bad cough, running nose, bad breath etc.... She doesn't show any of these symptoms but her doctor...
  4. H

    Sinus infection

    My daughter just had a CT scan done last week and the results showed that her lungs are in excellent conditions, but her sinus is very bad. I always thought that sinus is associated with headaches, bad cough, running nose, bad breath etc.... She doesn't show any of these symptoms but her doctor...
  5. H

    Need your opinion about Pulmozyme

    They first found Psudomonas in her during a bronchoscopy procedure 3 years ago. She haven't had any other bronchoscopy since then. Her last 4 sputum culture were negative. keep in mind she is only 6 years old and I have to tell you that it is a pain in the blah to collect her sputum. Anyway...
  6. H

    Need your opinion about Pulmozyme

    They first found Psudomonas in her during a bronchoscopy procedure 3 years ago. She haven't had any other bronchoscopy since then. Her last 4 sputum culture were negative. keep in mind she is only 6 years old and I have to tell you that it is a pain in the blah to collect her sputum. Anyway...
  7. H

    Need your opinion about Pulmozyme

    They first found Psudomonas in her during a bronchoscopy procedure 3 years ago. She haven't had any other bronchoscopy since then. Her last 4 sputum culture were negative. keep in mind she is only 6 years old and I have to tell you that it is a pain in the blah to collect her sputum. Anyway...
  8. H

    Need your opinion about Pulmozyme

    They first found Psudomonas in her during a bronchoscopy procedure 3 years ago. She haven't had any other bronchoscopy since then. Her last 4 sputum culture were negative. keep in mind she is only 6 years old and I have to tell you that it is a pain in the blah to collect her sputum. Anyway...
  9. H

    Need your opinion about Pulmozyme

    They first found Psudomonas in her during a bronchoscopy procedure 3 years ago. She haven't had any other bronchoscopy since then. Her last 4 sputum culture were negative. keep in mind she is only 6 years old and I have to tell you that it is a pain in the blah to collect her sputum. Anyway...
  10. H

    Need your opinion about Pulmozyme

    Need your opinion about Pulmozyme. My daughter is 6 years old FEV1 in the the high 90's. Two years ago she tested positive to pseudonomas. Used tobi for almost a year. Pseudonomas seems to be gone now. Doctor wants to be proactive and start her with pulmozyme. She coughs a bit especially at night.
  11. H

    Need your opinion about Pulmozyme

    Need your opinion about Pulmozyme. My daughter is 6 years old FEV1 in the the high 90's. Two years ago she tested positive to pseudonomas. Used tobi for almost a year. Pseudonomas seems to be gone now. Doctor wants to be proactive and start her with pulmozyme. She coughs a bit especially at night.
  12. H

    Need your opinion about Pulmozyme

    Need your opinion about Pulmozyme. My daughter is 6 years old FEV1 in the the high 90's. Two years ago she tested positive to pseudonomas. Used tobi for almost a year. Pseudonomas seems to be gone now. Doctor wants to be proactive and start her with pulmozyme. She coughs a bit especially at night.
  13. H

    Need your opinion about Pulmozyme

    Need your opinion about Pulmozyme. My daughter is 6 years old FEV1 in the the high 90's. Two years ago she tested positive to pseudonomas. Used tobi for almost a year. Pseudonomas seems to be gone now. Doctor wants to be proactive and start her with pulmozyme. She coughs a bit especially at night.
  14. H

    Need your opinion about Pulmozyme

    Need your opinion about Pulmozyme. My daughter is 6 years old FEV1 in the the high 90's. Two years ago she tested positive to pseudonomas. Used tobi for almost a year. Pseudonomas seems to be gone now. Doctor wants to be proactive and start her with pulmozyme. She coughs a bit especially at night.
  15. H

    PTC124

    Good news for those of you with nonsense mutations or Stop mutations or X ending mutations.(Different names same mutations) Here is the link from the phase 2 results of PTC124 in patients with CF. http://ptcbio.org/4.1_news.aspx#PR10052007
  16. H

    PTC124

    Good news for those of you with nonsense mutations or Stop mutations or X ending mutations.(Different names same mutations) Here is the link from the phase 2 results of PTC124 in patients with CF. http://ptcbio.org/4.1_news.aspx#PR10052007
  17. H

    PTC124

    Good news for those of you with nonsense mutations or Stop mutations or X ending mutations.(Different names same mutations) Here is the link from the phase 2 results of PTC124 in patients with CF. http://ptcbio.org/4.1_news.aspx#PR10052007
  18. H

    PTC124

    Good news for those of you with nonsense mutations or Stop mutations or X ending mutations.(Different names same mutations) Here is the link from the phase 2 results of PTC124 in patients with CF. http://ptcbio.org/4.1_news.aspx#PR10052007
  19. H

    PTC124

    Good news for those of you with nonsense mutations or Stop mutations or X ending mutations.(Different names same mutations) Here is the link from the phase 2 results of PTC124 in patients with CF. http://ptcbio.org/4.1_news.aspx#PR10052007
  20. H

    C/F Walk was today ...

    Our walk was at the louisville Zoo in Kentucky. over $190,000 were raised at this location.
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