Cystic Fibrosis Forum (EXP)

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  1. J

    Any CF'ers with breast implants?

    I was going to get mine done about 5 years ago, but when I told them I had MRSA, they told me that would triple my cost. Needless to say, I didn't get them done, but I wish I could, especially when I lose weight...<BR>
  2. J

    eflow issue

    I was sent a new grey cord and that was the issue!  Thanks for the help.  The PARI people sent it immediately.  <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. J

    eflow issue

    I was sent a new grey cord and that was the issue! Thanks for the help. The PARI people sent it immediately. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. J

    eflow issue

    I was sent a new grey cord and that was the issue! Thanks for the help. The PARI people sent it immediately. <img src="i/expressions/face-icon-small-smile.gif" border="0"><BR>
  5. J

    VX-770 tablets

    I was on the VX-770 drug trial for over a year and just ended it.  Not sure if I am able to talk about it on a public forum, but if you pm me, I would be happy to share.  And yes, it was a pill that was taken every 12 hours. 
  6. J

    VX-770 tablets

    I was on the VX-770 drug trial for over a year and just ended it. Not sure if I am able to talk about it on a public forum, but if you pm me, I would be happy to share. And yes, it was a pill that was taken every 12 hours.
  7. J

    VX-770 tablets

    I was on the VX-770 drug trial for over a year and just ended it. Not sure if I am able to talk about it on a public forum, but if you pm me, I would be happy to share. And yes, it was a pill that was taken every 12 hours. <BR>
  8. J

    cf in ten years?

    When I was born, CFers died in childhood.  When I was 21, the average life expectancy was 18.  Here I am at almost 35 and the average life expectancy is 37.5.  I'm betting in 10 years, the average life expectancy will be about 50.
  9. J

    cf in ten years?

    When I was born, CFers died in childhood. When I was 21, the average life expectancy was 18. Here I am at almost 35 and the average life expectancy is 37.5. I'm betting in 10 years, the average life expectancy will be about 50.
  10. J

    cf in ten years?

    <BR>When I was born, CFers died in childhood. When I was 21, the average life expectancy was 18. Here I am at almost 35 and the average life expectancy is 37.5. I'm betting in 10 years, the average life expectancy will be about 50.
  11. J

    Treatment area

    Everyone has shared great ideas!  The only thing I can add is that I have a large garbage can nearby for tissues and vials and I changed out my nightstand for a fridge, so that I don't have to go out to the kitchen to get my Pulmozyme and Cayston.
  12. J

    Treatment area

    Everyone has shared great ideas! The only thing I can add is that I have a large garbage can nearby for tissues and vials and I changed out my nightstand for a fridge, so that I don't have to go out to the kitchen to get my Pulmozyme and Cayston.
  13. J

    Treatment area

    Everyone has shared great ideas! The only thing I can add is that I have a large garbage can nearby for tissues and vials and I changed out my nightstand for a fridge, so that I don't have to go out to the kitchen to get my Pulmozyme and Cayston.<BR>
  14. J

    Chronic back pain

    I have chronic back pain, but it seems to be my intercostal muscles.  Whenever, I have a coughing fit, it will start hurting and then hurt every time I cough for a couple of months.  I've never had pain in my spine, though.
  15. J

    Chronic back pain

    I have chronic back pain, but it seems to be my intercostal muscles. Whenever, I have a coughing fit, it will start hurting and then hurt every time I cough for a couple of months. I've never had pain in my spine, though.
  16. J

    Chronic back pain

    <BR>I have chronic back pain, but it seems to be my intercostal muscles. Whenever, I have a coughing fit, it will start hurting and then hurt every time I cough for a couple of months. I've never had pain in my spine, though.
  17. J

    new heads for my eflow

    My heads are always getting clogged from using them for other medications--pulmozyme, albuterol and I'm starting back on 7% Hyper Sal. Anyway, what I'm wondering is if anyone has ordered extra heads? Do you need a prescription? How much do they cost?
  18. J

    new heads for my eflow

    My heads are always getting clogged from using them for other medications--pulmozyme, albuterol and I'm starting back on 7% Hyper Sal. Anyway, what I'm wondering is if anyone has ordered extra heads? Do you need a prescription? How much do they cost?
  19. J

    new heads for my eflow

    My heads are always getting clogged from using them for other medications--pulmozyme, albuterol and I'm starting back on 7% Hyper Sal. Anyway, what I'm wondering is if anyone has ordered extra heads? Do you need a prescription? How much do they cost?
  20. J

    Combo Vertex study

    Is anyone here on that study?  I have some questions for you.  Thanks!  <img src="i/expressions/face-icon-small-smile.gif" border="0">
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