Cystic Fibrosis Forum (EXP)

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  1. S

    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
  2. S

    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
  3. S

    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
  4. S

    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
  5. S

    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
  6. S

    For the littlest CFers

    Oh I wish I would have had that link sooner. Even when DS was in NICU after he was born, the doc that did my C-section came in and tried to touch DS without washing her hands. The NICU nurse quickly stepped in and told her to wash up first. I always thought that was funny - and I was very happy...
  7. S

    For the littlest CFers

    Oh I wish I would have had that link sooner. Even when DS was in NICU after he was born, the doc that did my C-section came in and tried to touch DS without washing her hands. The NICU nurse quickly stepped in and told her to wash up first. I always thought that was funny - and I was very happy...
  8. S

    For the littlest CFers

    Oh I wish I would have had that link sooner. Even when DS was in NICU after he was born, the doc that did my C-section came in and tried to touch DS without washing her hands. The NICU nurse quickly stepped in and told her to wash up first. I always thought that was funny - and I was very happy...
  9. S

    For the littlest CFers

    Oh I wish I would have had that link sooner. Even when DS was in NICU after he was born, the doc that did my C-section came in and tried to touch DS without washing her hands. The NICU nurse quickly stepped in and told her to wash up first. I always thought that was funny - and I was very happy...
  10. S

    For the littlest CFers

    Oh I wish I would have had that link sooner. Even when DS was in NICU after he was born, the doc that did my C-section came in and tried to touch DS without washing her hands. The NICU nurse quickly stepped in and told her to wash up first. I always thought that was funny - and I was very happy...
  11. S

    SIBLING TESTING?

    I would set aside the whole sweat test if the gene mutations are known. Then, I would imagine, you should be able to have them tested for the mutations that your CFer has. That's what we did with our DS w/out CF.
  12. S

    SIBLING TESTING?

    I would set aside the whole sweat test if the gene mutations are known. Then, I would imagine, you should be able to have them tested for the mutations that your CFer has. That's what we did with our DS w/out CF.
  13. S

    SIBLING TESTING?

    I would set aside the whole sweat test if the gene mutations are known. Then, I would imagine, you should be able to have them tested for the mutations that your CFer has. That's what we did with our DS w/out CF.
  14. S

    SIBLING TESTING?

    I would set aside the whole sweat test if the gene mutations are known. Then, I would imagine, you should be able to have them tested for the mutations that your CFer has. That's what we did with our DS w/out CF.
  15. S

    SIBLING TESTING?

    I would set aside the whole sweat test if the gene mutations are known. Then, I would imagine, you should be able to have them tested for the mutations that your CFer has. That's what we did with our DS w/out CF.
  16. S

    Culture (staph & h-flu)

    Another thing, we were told that we would know if the albuterol was working if he wan't coughing as much after using it for 3-4 hours. When I do the albuterol neb along with his vest, should he still not cough? Should I worry about this??
  17. S

    Culture (staph & h-flu)

    Another thing, we were told that we would know if the albuterol was working if he wan't coughing as much after using it for 3-4 hours. When I do the albuterol neb along with his vest, should he still not cough? Should I worry about this??
  18. S

    Culture (staph & h-flu)

    Another thing, we were told that we would know if the albuterol was working if he wan't coughing as much after using it for 3-4 hours. When I do the albuterol neb along with his vest, should he still not cough? Should I worry about this??
  19. S

    Culture (staph & h-flu)

    Another thing, we were told that we would know if the albuterol was working if he wan't coughing as much after using it for 3-4 hours. When I do the albuterol neb along with his vest, should he still not cough? Should I worry about this??
  20. S

    Culture (staph & h-flu)

    Another thing, we were told that we would know if the albuterol was working if he wan't coughing as much after using it for 3-4 hours. When I do the albuterol neb along with his vest, should he still not cough? Should I worry about this??
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