Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. F

    Update

    Hello Everyone, Hope all is well with everyone. Well today was the Dr's appointment with the CF team. Liliana is up to 12lbs 6oz!!!!! I'm so happy she is gaining so much weight, not only that she is also 23 inches long. The visit today went very good. They and we were happy. They did up...
  2. F

    Update

    Hello Everyone, Hope all is well with everyone. Well today was the Dr's appointment with the CF team. Liliana is up to 12lbs 6oz!!!!! I'm so happy she is gaining so much weight, not only that she is also 23 inches long. The visit today went very good. They and we were happy. They did up...
  3. F

    Another Game

    Thanksgivin
  4. F

    Another Game

    Thanksgivin
  5. F

    Another Game

    Thanksgivin
  6. F

    join in on the fun

    Quality Walk or Run Jennifer - mom to 5month old w/cf
  7. F

    join in on the fun

    Quality Walk or Run Jennifer - mom to 5month old w/cf
  8. F

    join in on the fun

    Quality Walk or Run Jennifer - mom to 5month old w/cf
  9. F

    join in on the fun

    Quatily Walk or Run Jennifer - mom to 5month old w/cf
  10. F

    join in on the fun

    Quatily Walk or Run Jennifer - mom to 5month old w/cf
  11. F

    join in on the fun

    Quatily Walk or Run Jennifer - mom to 5month old w/cf
  12. F

    newly diagnosed at 5months old.

    I have a plm..... I wake up everyday and think my baby girl has cf. It rips my heart out. Everyday, all day long, before going to sleep at night, that is all I can think of. How can my little girl have such a bad thing. Why didn't was know we wwre carriers. Why Why Why....why is what I keep...
  13. F

    newly diagnosed at 5months old.

    I have a plm..... I wake up everyday and think my baby girl has cf. It rips my heart out. Everyday, all day long, before going to sleep at night, that is all I can think of. How can my little girl have such a bad thing. Why didn't was know we wwre carriers. Why Why Why....why is what I keep...
  14. F

    newly diagnosed at 5months old.

    I have a plm..... I wake up everyday and think my baby girl has cf. It rips my heart out. Everyday, all day long, before going to sleep at night, that is all I can think of. How can my little girl have such a bad thing. Why didn't was know we wwre carriers. Why Why Why....why is what I keep...
  15. F

    newly diagnosed at 5months old.

    The meds are getting a little easier now that she is not throwing up. Before when we would give her the abdek vits and the prevacid she would throw it right up. Since she has been on the creon I think she has throw up once and that was because she was gagging on banana's. She is doing better...
  16. F

    newly diagnosed at 5months old.

    The meds are getting a little easier now that she is not throwing up. Before when we would give her the abdek vits and the prevacid she would throw it right up. Since she has been on the creon I think she has throw up once and that was because she was gagging on banana's. She is doing better...
  17. F

    newly diagnosed at 5months old.

    The meds are getting a little easier now that she is not throwing up. Before when we would give her the abdek vits and the prevacid she would throw it right up. Since she has been on the creon I think she has throw up once and that was because she was gagging on banana's. She is doing better...
  18. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
  19. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
  20. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
Top