Cystic Fibrosis Forum (EXP)

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  1. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
  2. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
  3. F

    newly diagnosed at 5months old.

    What is cultured PA? I I know they do a culture everytime we go and her so far are fine. We have to go every two weeks for now because her weight dropped so low and they want to make sure she keeps gaining. She is 10lbs and 21 1/2 inches, which they tell me is the size of a 2month old. She is...
  4. F

    newly diagnosed at 5months old.

    Folione- when was your son diagnosed? How long have you known? Do you have family history? Do you have other children? I do not understand how we could have known. In this day and age we should have known we carried the gene. She should have been tested at brith. Since we found out and she has...
  5. F

    newly diagnosed at 5months old.

    Folione- when was your son diagnosed? How long have you known? Do you have family history? Do you have other children? I do not understand how we could have known. In this day and age we should have known we carried the gene. She should have been tested at brith. Since we found out and she has...
  6. F

    newly diagnosed at 5months old.

    Folione- when was your son diagnosed? How long have you known? Do you have family history? Do you have other children? I do not understand how we could have known. In this day and age we should have known we carried the gene. She should have been tested at brith. Since we found out and she has...
  7. F

    newly diagnosed at 5months old.

    I want to say thank you for your input. I really enjoy reading them. I do not know much about cf. But as of now she has nothing in her lungs can it be that she will never have the lung plm? I am not sure if a person can have one or another. Or do they get both parts of it. I read about there...
  8. F

    newly diagnosed at 5months old.

    I want to say thank you for your input. I really enjoy reading them. I do not know much about cf. But as of now she has nothing in her lungs can it be that she will never have the lung plm? I am not sure if a person can have one or another. Or do they get both parts of it. I read about there...
  9. F

    newly diagnosed at 5months old.

    I want to say thank you for your input. I really enjoy reading them. I do not know much about cf. But as of now she has nothing in her lungs can it be that she will never have the lung plm? I am not sure if a person can have one or another. Or do they get both parts of it. I read about there...
  10. F

    newly diagnosed at 5months old.

    I am new to CF. And I am also a new mom to a baby girl who was diagnosed with CF a month ago at 4months old. I was/am so scared for her. I knew/know nothing about CF. I have learn alot over the last month. And I have found this wonderful website. We have no family history of CF. So we had no...
  11. F

    newly diagnosed at 5months old.

    I am new to CF. And I am also a new mom to a baby girl who was diagnosed with CF a month ago at 4months old. I was/am so scared for her. I knew/know nothing about CF. I have learn alot over the last month. And I have found this wonderful website. We have no family history of CF. So we had no...
  12. F

    newly diagnosed at 5months old.

    I am new to CF. And I am also a new mom to a baby girl who was diagnosed with CF a month ago at 4months old. I was/am so scared for her. I knew/know nothing about CF. I have learn alot over the last month. And I have found this wonderful website. We have no family history of CF. So we had no...
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