Cystic Fibrosis Forum (EXP)

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  1. J

    diagnosed with cfrd today

    Thanks - it most certainly does!!! They have enough to deal with; another choice they are not given.
  2. J

    diagnosed with cfrd today

    Thanks - it most certainly does!!! They have enough to deal with; another choice they are not given.
  3. J

    diagnosed with cfrd today

    Thanks - it most certainly does!!! They have enough to deal with; another choice they are not given.
  4. J

    diagnosed with cfrd today

    After a 2 hour glucose tolerance test confirming the diagnosis - we met with the endocrine team today and they are suggesting a pump for my son. I am a Type 1 diabetic. I am learning all the differences between that and cfrd. I was just wondering if anyone out there is on a pump and has any...
  5. J

    diagnosed with cfrd today

    After a 2 hour glucose tolerance test confirming the diagnosis - we met with the endocrine team today and they are suggesting a pump for my son. I am a Type 1 diabetic. I am learning all the differences between that and cfrd. I was just wondering if anyone out there is on a pump and has any...
  6. J

    diagnosed with cfrd today

    After a 2 hour glucose tolerance test confirming the diagnosis - we met with the endocrine team today and they are suggesting a pump for my son. I am a Type 1 diabetic. I am learning all the differences between that and cfrd. I was just wondering if anyone out there is on a pump and has any...
  7. J

    rash - bactrim or vfend (vorazidole)

    Hi - Jason has been on Bactrim for over a month. He started vfend or vorazidole 2 1/2 weeks ago. He has also been on prednisone for over a month. He was down to 10 mg every other day of the steroid and he started with what looked like a sun burn. Now he has a rash on his arms and chest...
  8. J

    rash - bactrim or vfend (vorazidole)

    Hi - Jason has been on Bactrim for over a month. He started vfend or vorazidole 2 1/2 weeks ago. He has also been on prednisone for over a month. He was down to 10 mg every other day of the steroid and he started with what looked like a sun burn. Now he has a rash on his arms and chest...
  9. J

    rash - bactrim or vfend (vorazidole)

    Hi - Jason has been on Bactrim for over a month. He started vfend or vorazidole 2 1/2 weeks ago. He has also been on prednisone for over a month. He was down to 10 mg every other day of the steroid and he started with what looked like a sun burn. Now he has a rash on his arms and chest...
  10. J

    rash - bactrim or vfend (vorazidole)

    Hi - Jason has been on Bactrim for over a month. He started vfend or vorazidole 2 1/2 weeks ago. He has also been on prednisone for over a month. He was down to 10 mg every other day of the steroid and he started with what looked like a sun burn. Now he has a rash on his arms and chest...
  11. J

    rash - bactrim or vfend (vorazidole)

    Hi - Jason has been on Bactrim for over a month. He started vfend or vorazidole 2 1/2 weeks ago. He has also been on prednisone for over a month. He was down to 10 mg every other day of the steroid and he started with what looked like a sun burn. Now he has a rash on his arms and chest...
  12. J

    culture came back normal flora

    Hi Heather - Jason just had a bronch the end of June. He started in April with adenovirus which we thought turned into a cf exacerbation. Long story short - after many chest xrays, pft's and on and off not feeling good not all matching up - the bronch revealed aspergillus(sp.) which had not...
  13. J

    culture came back normal flora

    Hi Heather - Jason just had a bronch the end of June. He started in April with adenovirus which we thought turned into a cf exacerbation. Long story short - after many chest xrays, pft's and on and off not feeling good not all matching up - the bronch revealed aspergillus(sp.) which had not...
  14. J

    culture came back normal flora

    Hi Heather - Jason just had a bronch the end of June. He started in April with adenovirus which we thought turned into a cf exacerbation. Long story short - after many chest xrays, pft's and on and off not feeling good not all matching up - the bronch revealed aspergillus(sp.) which had not...
  15. J

    culture came back normal flora

    Hi Heather - Jason just had a bronch the end of June. He started in April with adenovirus which we thought turned into a cf exacerbation. Long story short - after many chest xrays, pft's and on and off not feeling good not all matching up - the bronch revealed aspergillus(sp.) which had not...
  16. J

    culture came back normal flora

    Hi Heather - Jason just had a bronch the end of June. He started in April with adenovirus which we thought turned into a cf exacerbation. Long story short - after many chest xrays, pft's and on and off not feeling good not all matching up - the bronch revealed aspergillus(sp.) which had not...
  17. J

    Does anyone go to CHOP?

    Hi Danny's Mom - We go to DuPont in Delaware and are extremely happy there. We are located in between CHOP, St. Christophers and DuPont. We chose AI DuPont. We have friends that go to CHOP and St Christophers also. I think you need to go where you are comfortable. What are you looking for a...
  18. J

    Does anyone go to CHOP?

    Hi Danny's Mom - We go to DuPont in Delaware and are extremely happy there. We are located in between CHOP, St. Christophers and DuPont. We chose AI DuPont. We have friends that go to CHOP and St Christophers also. I think you need to go where you are comfortable. What are you looking for a...
  19. J

    Does anyone go to CHOP?

    Hi Danny's Mom - We go to DuPont in Delaware and are extremely happy there. We are located in between CHOP, St. Christophers and DuPont. We chose AI DuPont. We have friends that go to CHOP and St Christophers also. I think you need to go where you are comfortable. What are you looking for a...
  20. J

    Does anyone go to CHOP?

    Hi Danny's Mom - We go to DuPont in Delaware and are extremely happy there. We are located in between CHOP, St. Christophers and DuPont. We chose AI DuPont. We have friends that go to CHOP and St Christophers also. I think you need to go where you are comfortable. What are you looking for a...
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