Search results

Hi Jamie - I understand how you are feeling. My son who is 6 1/2 now was diag. with cf at 18 mos of age. At that time, he also cultured pseudo. It was an extremely high colinization at that time and inhaled TOBI and IV meds took care of it. He did not culture it again for a couple of years...

Hi Teri, My son is 6 1/2 now and has had sinus involvement since day 1. We started singulair, flonase and zyrtec and it def. seemed to help over the years. We really push the fluids to keep everything moving. A bath or shower in the am really seems to help loosen things up and help them run...

Hi Teri, My son is 6 1/2 now and has had sinus involvement since day 1. We started singulair, flonase and zyrtec and it def. seemed to help over the years. We really push the fluids to keep everything moving. A bath or shower in the am really seems to help loosen things up and help them run...

Hi - My son is also five and wants NOTHING to do with swallowing the MT12's. We usually put them in applesause or something like that. He will also allow us to just drop the contents of the capsule on his tongue and he swishes them down with a drink. He will not swallow the whole capsule;we...

My son was 18 mos. when he was first dx. We found that babyfood bananas or pudding working better when he would fuss as it was thicker and he didn't seem to be as bothered. Hope this helps.

Thanks, I did a little research and it appears as though in 1996 an act was passed regarding preexisting conditions and employer's group insurance. I appreciate your info. Best Wishes!

Hi - We may be getting new health insurance due to a new job for my husband. I was just wondering if anyone has ever encountered a problem with cystic fibrosis being not covered due to being a pre existing condition? Thanks

That is wonderful. What type of fundraiser was it?

I would check with your cf clinic. Our dietician and social worker were able to give us a nice pamphlet on enzemes. Also if you check the cff web site, they have a nice FAQ section where I gathered approp. general info. for our son's babysitters and friend's parents. Hope this helps.

Hi - Just curious, ADD and Asbergerger's? Are those diagnoses from a pediatric neurologist? Just curious because my eight year old, no cf, has Sensory Integration Dysfunction. Originally, the dr.s tried to diagnose him with Asbergers and after consulting with learning specialists and...

Yes you can have asthma and cf. My son has both, as well as seasonal allergies. I hope this helps.

Hi - Did you have the sweat tests done at a cf center? It seems as a rule, that they are pretty accurate when done at such a location. Waiting is very difficult - I wish you and your family the best.

It is my understanding that unfortunately pseud. is and can be in many places around us. That is what make it so difficult for the people with cf. We can try and be as clean and tidy as possible. Other than common sense avoidance I don't think we can do more. We, as parents, need to make and...

Hi - My understanding is that the mystery is in the wording. It seems as though it depends on the colonizing of the bacteria. If it is not colonizing; not apparent in high enough quantity; not symptomatic; it may not be cultured. Also, it may be so far in the lungs or sinus' that it doesn't...

hi - my son had tracheamalasia when he had his bronch at 18 mos. They said he would outgrow it. Originally as an infant, he was diagnosed with laryngomalasia - He had reflux and always sounded like he had croup. He doesn't have reflux anymore and it appears as though he did outgrow or develop...

I know my son has a harder time after being out in the cold air. Where any of the recent poor tests done after being outside recently? Also as far as inhaling the pulmozyme and the TOBI through the mouth without nose clips; the trick with our son is to make sure his lips are closed around the...

Hi Jodi - I don't know if they are documented symptoms. My son did have blue and cold feet and sometimes blue lips for short periods when he was an infant. At the time, we did not know he had cf.