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Hi Christi - So sorry this is happening. I also hate bringing them in with the fear that we might have to stay. I will be praying for good news. Take care and I hope he feels better soon!

West Deptford, New Jersey

Hi - We go there for my son who is 8. We see Dr. Chidelel and absolutely love him. We have never seen Dr. Padman.

Many people with cf have an asthma or RAD (reactive airway disease) component to their CF. I do not believe that there is a specific age. Jason is 8 and he was dx w/ CF at 18mos. He has always had asthma/RAD symptoms and has been treated accordingly.

This is soooooooooo exciting. Congratulations times THREE! I will keep all of you in my prayers! Instead of stuttering because I was online when I read it - my hand was on the mouse and I started sort of scrolling without realizing it. I can't even imagine how you and your hubbie felt when...

Hi All - thank you so much for all of your experiences. It is more info in which to make educated decisions in the future. As far as having other options in regards to CHOP, we love DuPont for his CF care. We have an independent contract with our health ins. and my husband's employer that...

Hi - Just curious what everyone else's experiences have been. We get Jason's CF care at DuPont Hospital in DE. He was recently admitted to CHOP (Children's hospital in Philadelphia) for an elbow fracture. It was during his 28 day on cycle of TOBI. Well he couldn't have it while admitted...

Rebecca and Melissa - Thanks so very much for responding and your words of wisdom. I will def. fight for a private room. Sometimes I just get overwhelmed and frustrated. I do good on a daily basis - it just seems that when anything extra in life happens, esp. to Jason, I have trouble not...

Well I haven't been on in a couple of days because Jason broke his elbow. We went to the ortho surgeon today and it looks like he needs surgery for pins. I am so frustrated for him. As if he doesn't have enough to handle. We are going to need to have it done at Children's Hospital which has...

Thanks for all of your input. I have gathered more information. The parents both smoke in the house and in the cars. I talked to Jason and I will be talking to the parents. Most likely, he will be playing outside at their house and they can always play at our house. Jason was fine with that...

Thanks for all of your input. I have gathered more information. The parents both smoke in the house and in the cars. I talked to Jason and I will be talking to the parents. Most likely, he will be playing outside at their house and they can always play at our house. Jason was fine with that...

My son uses advair now. He used to use pulmicort and it works great. We had switched from flovent to pulmicort. The flovent just wasn't working so good for him. The pulmicort def. helped with the inflamatory type cough and so does the advair. The advair is basically a pulmicort type med and...

My son uses advair now. He used to use pulmicort and it works great. We had switched from flovent to pulmicort. The flovent just wasn't working so good for him. The pulmicort def. helped with the inflamatory type cough and so does the advair. The advair is basically a pulmicort type med and...

Thanks! Great Idea.

Thanks! Great Idea.

Hi - Just curious how best to keep the mouthpiece of the advair inhaler clean? Thanks!

Hi - Just curious how best to keep the mouthpiece of the advair inhaler clean? Thanks!

Jason is getting to an age where he is going over friends houses more often to play. He has had about 6 different friends houses so far where we haven't had the issue we recently ran into. He went over to play and when I picked him up I saw the father smoking. Jason didn't smell smokey and...

Jason is getting to an age where he is going over friends houses more often to play. He has had about 6 different friends houses so far where we haven't had the issue we recently ran into. He went over to play and when I picked him up I saw the father smoking. Jason didn't smell smokey and...

Hi - Jason has started with that horrible cough. This time of year we can always count on it a few times. He started with a runny nose, then got congested and then that went away and he woke up Tues. with this cough. The difference this time is that it isn't worse at night and better in the...