Search results

Hi - Jason has started with that horrible cough. This time of year we can always count on it a few times. He started with a runny nose, then got congested and then that went away and he woke up Tues. with this cough. The difference this time is that it isn't worse at night and better in the...

Me again. Here is a great link explaining it in detail: <a target=new class=ftalternatingbarlinklarge href="http://www.treasury.gov/offices/public-affairs/hsa/faq_basics.shtml ">http://www.treasury.gov/offices/public-affairs/hsa/faq_basics.shtml </a>

Me again. Here is a great link explaining it in detail: <a target=new class=ftalternatingbarlinklarge href="http://www.treasury.gov/offices/public-affairs/hsa/faq_basics.shtml ">http://www.treasury.gov/offices/public-affairs/hsa/faq_basics.shtml </a>

My husband accidentally gave my son his second TOBI treatment for the day 4 hours early. He also gave him his 2nd pulmozyme for the day 4 hours early. I know they should really be 12 hours apart. Obv. we will try to not have this happen again. Any immed. danger from us doing this? Thanks!

Hi - My 7 year old son is going into the hospital for the first time since diagnosis 5 1/2 years ago. It is for a bronchoscopy and a PICC line. They said they will insert the picc while he is under anesthesia for the bronch. I know how to eplain all of that to him. I am just wondering what...

Hi - I was just curious what settings everyone uses for their vests and do you stop at certain intervals to try and cough up stuff? My son has been using his vest for 4 years and still is not very good at coughing stuff up. Thanks.

Hi Jenica - just thought of something else. When my son was first dx., I contacted the local CF chapter and they connected me with some other Mom's who were able to call me. It was great to talk to other mom's in the local area who had already recently gone through what we were starting. Hope...

Hi Jenica - This is def. a great place for info. and support. Each child with cf is def. different. My son was dx. at 18mos. They did not have the prenatal screening in our state for cf at that time. He is now an energetic, happy 7 year old. If you didn't already know he had cf, you...

Hi Nichole - You can have CF and not have digestive problems. Each person with cf is different as to the extent of the involvement with their lungs, weight and digestion. It makes sense to have him tested. Is he having a sweat test? It is best for him to be tested at a CF center. Best Wishes.

Thanks for you words of help.

Hi - I have bronchitis and I was just wondering if besides the obvious washing hands and keeping my distance from my son, do I need to notify the cf dr for any additional instructions. I remember when I had pnemonia, I had caught it from my son having RSV so he was already on antibiotics. This...

Hi Crissy - my son was dx at 18 mos also. He also has Delta F508 from both parents. The frequency and degree to which each cf child gets sick is quite different for each child. My son has allergies and asthma also so the type of sick he gets is usu. sinus related and asthma related. He...

Hi - thanks so much for all of you responses. I always feel just a little bit better with the more unanswered questions I have. Kaitsmom - when have you told your daughter that she was going in to get the picc line ( the night before, the morning of, earlier than that? ) I know he will be...

Hi all - we just got back from clinic. Jason is 7. His small airway numbers of his pft's have always been lower than they should be. He was dx. at 18 mos. of age. He was very sick at dx. and when a bronchoscope was done, pseud. was present. He has cultured pseud. maybe 3 times since then...

My son is 6 and is also always warm and very sweaty when he sleeps. He also is always warm; he doesn't like to wear a heavy coat, long sleeves or turtlenecks. I wonder if this is common to many with cf.

Hi Jenni - This is a wonderful place to come to get support. My son is almost 7 and he was dx. at 18mos. We live in New Jersey and go to AI Dupont CF clinic. Feel free to email me directly or through the board. tjtj8@comcast.net

Thanks for the fundraising that you do. Our family has been able to raise between $13,000 and $20,000 a year for the past 6 years for my son's team for Great Strides and for our local stair climb. They are both run by the local CFF. Hopefully this is the info. that you were looking for.

Thanks for the fundraising that you do. Our family has been able to raise between $13,000 and $20,000 a year for the past 6 years for my son's team for Great Strides and for our local stair climb. They are both run by the local CFF. Hopefully this is the info. that you were looking for.

Hi Jamie - I understand how you are feeling. My son who is 6 1/2 now was diag. with cf at 18 mos of age. At that time, he also cultured pseudo. It was an extremely high colinization at that time and inhaled TOBI and IV meds took care of it. He did not culture it again for a couple of years...