Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    when do you stop TOBI

    Jason has been on TOBI from Sept. through May, on 28 and off 28 for the past five years. I don't believe he has cultured pseud. or any of the related bugs for at least three years - only staph. I am just wondering how others that prev. were colonize with pseudo are treated? I am wondering if...
  2. J

    preventative iv course?

    Thanks for your responses. Emily - you always make me laugh when I need it the most! You have all helped to confirm some of my thoughts, give me other things to think about and most importantly info to help us decide what to do. I don't know what I would do without this outlet and information...
  3. J

    preventative iv course?

    Thanks for your responses. Emily - you always make me laugh when I need it the most! You have all helped to confirm some of my thoughts, give me other things to think about and most importantly info to help us decide what to do. I don't know what I would do without this outlet and information...
  4. J

    preventative iv course?

    Thanks for your responses. Emily - you always make me laugh when I need it the most! You have all helped to confirm some of my thoughts, give me other things to think about and most importantly info to help us decide what to do. I don't know what I would do without this outlet and information...
  5. J

    preventative iv course?

    Hi - We went for Jason's annual check at the cf clinic. He has had a pretty good year. His check up went well - xrays good, pft's up from last time, looks good, lungs sound good. We will await blood and culture results. Then whild J was out at the bathroom, the dr. mentioned that sometimes...
  6. J

    preventative iv course?

    Hi - We went for Jason's annual check at the cf clinic. He has had a pretty good year. His check up went well - xrays good, pft's up from last time, looks good, lungs sound good. We will await blood and culture results. Then whild J was out at the bathroom, the dr. mentioned that sometimes...
  7. J

    preventative iv course?

    Hi - We went for Jason's annual check at the cf clinic. He has had a pretty good year. His check up went well - xrays good, pft's up from last time, looks good, lungs sound good. We will await blood and culture results. Then whild J was out at the bathroom, the dr. mentioned that sometimes...
  8. J

    cf centers in philly?

    Hi - We live just over the bridge in south jersey. I take my 9 year old to AI Dupont. We have been pleased with the cf clinic as well as all other departments and hospital for 8 years. The longest we have had to wait in the waiting room for clinic is 5 minutes; we do sometimes have to wait in...
  9. J

    cf centers in philly?

    Hi - We live just over the bridge in south jersey. I take my 9 year old to AI Dupont. We have been pleased with the cf clinic as well as all other departments and hospital for 8 years. The longest we have had to wait in the waiting room for clinic is 5 minutes; we do sometimes have to wait in...
  10. J

    cf centers in philly?

    Hi - We live just over the bridge in south jersey. I take my 9 year old to AI Dupont. We have been pleased with the cf clinic as well as all other departments and hospital for 8 years. The longest we have had to wait in the waiting room for clinic is 5 minutes; we do sometimes have to wait in...
  11. J

    mucous plug????

    Hi all - any feedback would be greatly appreciated. Jason started with a cold 2 weeks ago (we all caught the same cold). We are all better. Jason's as usual is taking longer and causing problems for him. He started on prednisilone 5 days ago with all of his other usual treatments. He has...
  12. J

    mucous plug????

    Hi all - any feedback would be greatly appreciated. Jason started with a cold 2 weeks ago (we all caught the same cold). We are all better. Jason's as usual is taking longer and causing problems for him. He started on prednisilone 5 days ago with all of his other usual treatments. He has...
  13. J

    mucous plug????

    Hi all - any feedback would be greatly appreciated. Jason started with a cold 2 weeks ago (we all caught the same cold). We are all better. Jason's as usual is taking longer and causing problems for him. He started on prednisilone 5 days ago with all of his other usual treatments. He has...
  14. J

    culture results - anyone treat?

    Hi - My original question was in regard to the other things listed in the culture: ACHROMOBACTER XYLOSOXIDANS SS. XYLOSOXIDANS ASPERGILLUS Anyone have any feedback on these? Thanks!
  15. J

    culture results - anyone treat?

    Hi - My original question was in regard to the other things listed in the culture: ACHROMOBACTER XYLOSOXIDANS SS. XYLOSOXIDANS ASPERGILLUS Anyone have any feedback on these? Thanks!
  16. J

    culture results - anyone treat?

    Hi - My original question was in regard to the other things listed in the culture: ACHROMOBACTER XYLOSOXIDANS SS. XYLOSOXIDANS ASPERGILLUS Anyone have any feedback on these? Thanks!
  17. J

    culture results - anyone treat?

    Hi - these are my son's recent results. Just wondering how others are treated. His staph has been like this before - we watch and see as it seems to keep the pseudo at bay. How about the others? Just curious and always thankful for your input. SPECIMEN DESCRIPTION: THROAT CULTURE: 2+...
  18. J

    culture results - anyone treat?

    Hi - these are my son's recent results. Just wondering how others are treated. His staph has been like this before - we watch and see as it seems to keep the pseudo at bay. How about the others? Just curious and always thankful for your input. SPECIMEN DESCRIPTION: THROAT CULTURE: 2+...
  19. J

    culture results - anyone treat?

    Hi - these are my son's recent results. Just wondering how others are treated. His staph has been like this before - we watch and see as it seems to keep the pseudo at bay. How about the others? Just curious and always thankful for your input. SPECIMEN DESCRIPTION: THROAT CULTURE: 2+...
  20. J

    5 minute speech at fundraiser

    Sharon and Lindsay - Thanks so very much for all of the ideas and input. I do think my challenge is wording it all in a way that I am able to say what I want and what will help those attending understand why we need them to help - while keeping it not too scary for Jason. Thanks again. I'll...
Top