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I wear my emotions on my sleeve, Emily. I can't easily pretend something isn't funny. Which makes people stare when I randomly recall Family Guy moments (like the festive "You've got AIDS!" theme song) and break out laughing.

Soylent? Nina? Mona? Layla? Sylvia?

Echoing miesl, it cost me $40 for a whole box (something like two months' worth) when I paid for it out-of-pocket once. It was brand-name, had an expiration date in the FAR future (2009, I think) and came in 15 CC vials. According to my docs refrigeration could keep them alive for a day or two...

<blockquote>Quote<br><hr> <i>Originally posted by 65rosessamurai</i> Unfortunately, your view HAS contradicted someone!... I personally believe that your general statement needs correcting, because it seems to me your point of veiw lacks additional facts! <hr></blockquote> It's clearly a...

There's also <a target=new class=ftalternatingbarlinklarge href="http://www.wral.com/news/5129014/detail.html">this WRAL (local news) story that aired two nights ago</a>. In other news, also on the same channel, the reason Medicaid can't afford my transplant: <blockquote>Quote<br><hr><a...

Here, have some good thoughts. And the best part is, they only cost two cents worth of commentary! I try to take solace in the fact that my wife (hopefully) will never have to experience CF, first hand. And it's no small comfort that those we loved would take the disease from us, if they could...

I just had a g-tube installed. Laughing hurts like Hell, and your advice sucks. <img src="i/expressions/face-icon-small-wink.gif" border="0">

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>There is little else more dangerous than a misinformed person.<hr></blockquote> I suppose. With that in mind, could you please post extracts of the scientific journals which led you to conclude "a colonic.... [makes] the...

They can detect CF with ultrasounds now? I didn't know that. How does it work? (Do they look for intestinal blockage in the baby?) Hope you don't mind me asking. As for the name, I'd recommend "Jessica" just because my favorite person in the world is named that.

Hi. <blockquote>Quote <hr>~What are some of the treatments that you... [are] currently taking<hr></blockquote> * Hypertonic saline (10%)/albuterol, nebulized * Pulmozyme, nebulized * Flovent, via "puff" inhaler * Zithromax, for its anti-inflammatory (not antibiotic) effect * Vitamins, calcium...

Wait, you say your <i>husband's</i> meds cost an exasperating amount... does he have an unrelated condition, CF or... did I misread you?

Wait, wait. Is this the result of a "pre-existing condition" exclusion, or some other crappy policy? If it's the former, and your CF kid has had continuous insurance without a 63-day gap in coverage (whether it be Medicaid or private) they cannot, by federal law, avoid paying because he has an...

I wonder why the board didn't recognize me. Nevermind, though: people will know who was writing that, even without an acknowledgment. <img src="i/expressions/face-icon-small-smile.gif" border="0">

<blockquote>Quote<br><hr><i>Originally posted by: <b>abloedel</b></i><br>I wish I would have known what my PFT's were prior to my last hospitalization in January....it would be interesting to know how much lung function was lost then.<hr></blockquote> Ask the docs! I did, recently, and found...

I find it all the more amusing given how they'll readily prescribe prednisone, Megace and other <i>cortico</i>steroids (poisons, if there ever were, which can screw up everything from your pancreas to your spine). Heh. AIDS actually parallels CF in some respects. Incurable, a select few are...

I stuck to that for a while. But then, looking back at the history of life, comparative religion, anthropology, neuroscience... it really, really doesn't seem like there's any master plan at work, or that any of the usual claims made by religions are even slightly borne out. (Forty types of...

I've had intermittent problems since... 4 or so (at least, that's the first time I remember being hospitalized). Five years ago was a turning point, when I got so ill I almost died. My FEV1 score was at almost 60% then, after staying the same for many years, but went downhill ever since (about...

It's very hard to consider counterfactuals (situations that didn't happen) when we're emotionally invested in what <i>did</i> happen. But, I believe, if we try to divorce our reasoning from our emotion, it can be done, and can lead to some startling conclusions. If you have CF, it's true that...

This is a post I made to the Cystic-L mailing list, which I feel expands on my views (about how CF sucks, yadda yadda), in a way that I hope is detailed enough to sound eminently reasonable, isn't contradicting anyone specifically (who might feel they're being attacked, and not just challenged...

It was very nice of you to admit some of the blame, Mockingbird, but in all fairness, you didn't go out and out with the personal attacks. Someone who remained anonymous <i>did</i>, not only making very insidious insults--for the high crime of my posting that CF sucked--but showing a profound...