Cystic Fibrosis Forum (EXP)

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  1. W

    Please, I need some help (2 terminations mentioned inside)

    Anyone has some fetus recipes I could borrow to further put the mean poster in a tizzy?
  2. W

    Poverty Vs. CF

    Regardless of how you try to quantify "badness," CF is going to come out on top (or very close to it). (1) It affects all aspects of life. Money, diet, school, jobs, vacation, dating, you name it, you probably can't do it without being extra careful. (2) It requires incessant, tedious, often...
  3. W

    Please, I need some help (2 terminations mentioned inside)

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>WinAce- Thank you for replying, and I'm sorry for the loss of your siblings.<hr></blockquote> Well, I appreciate that, but I never knew them. As far as I'm concerned, their story is no more or less tragic than that of...
  4. W

    Poverty Vs. CF

    Care for a lighter to set that strawman on fire with, Mockingbird? I never mentioned <i>myself</i>. So far, I've managed to avoid a lot of the things I've seen happen to friends. Debilitating things. Scary things that make <i>Night of the Living Dead</i> and <i>Alien</i> look like a Barney song...
  5. W

    Please, I need some help (2 terminations mentioned inside)

    <blockquote>Quote <hr><i>Originally posted by: <b>Anonymous</b></i> WinAce- If you don't mind me asking... Why did your siblings die in infancy?<hr></blockquote> It's been a long time, and I wasn't around when that happened, so it's all hearsay that I got from my parents (and may have...
  6. W

    Natuaral Treataments - Recommendations?

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Bill</b></i><br>I'll quote a few comments from them and you can do what you like with the info. "Clinical Symptom Changes in Cystic Fibrosis Patients who Supplemented their Diets with Glyconutrients. 81 of 95 respondents to the survey...
  7. W

    I Have No Idea What to Call This Thread

    It's one thing to kill a person who was unfortunate enough to have CF. It's quite another to prevent more of them from being made. In the same vein, it would be evil to kill those already afflicted with Polio. But making sure it never crippled anyone again, was indisputably right. If a couple...
  8. W

    Please, I need some help (2 terminations mentioned inside)

    I don't see why you should continue trying to "chance" a healthy child. You wouldn't play Russian roulette with your kid, if there was only a 1-in-6 chance of killing or injuring them, would you? You already have a healthy daughter, take pride in her. If, at some point, you really want another...
  9. W

    How Do you manage your CFRD?

    None ? Depending on degree, it's either that, pills, perhaps (if it isn't severe) or ignoring it (not a good idea, probably). Maybe you can look into a pancreas transplant or other experimental treatment, once those come full circle. Do you have an insulin pump? I plan to get one, as the...
  10. W

    can men with cf have children

    I certainly hope not. The last thing I need right now is kids to look after. Maybe in a few dozen years, or so. (And even then, I'd prefer adopting... no use letting a good kid go to waste)
  11. W

    Natural Cures---Kevin Trudeau

    Gods, how I'm tired of idiots like Trudeau claiming some humongous conspiracy to suppress herbs. Docs are fond of this little thing called evidence, which, in the case of treatments, largely comes from double-blind studies. Studies that every drug approved by the FDA has to pass, and that herbal...
  12. W

    OT: Is anyone else creeped out by......

    I've heard that a radio station ran a promotion where they would dress one of their own up as the King and sneak him into your house to scare the crap out of whoever you wanted to pull the prank on. Dunno if it was real or a rumor, I haven't been able to find it on the net lately... Jessica...
  13. W

    cure b4 2020

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i> What about the shirt on your back. Did someone make it because they cared about you - or because wanted to make money.<hr></blockquote> In the case of home-knitted shirts... <img src="i/expressions/face-icon-small-wink.gif"...
  14. W

    Companies, CF, Cures, Irony, and the like

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Mockingbird</b></i><br>The CF Camps may have been deathtraps, but i'll be treasuring the memories forever. =-)<hr></blockquote> Good for you. The mere *risk* of someone culturing B. cepacia or one of the nasty superbugs there, though, would...
  15. W

    just a question ( ur opinion)

    College is often stupid even for those who are healthy. Do it if you feel it's a worthwhile accomplishment, but don't feel like less of a person if you can't (or have better things to do). Amusingly, I learned more in a few years of reading and arguing on the Internet (supplementing with...
  16. W

    how do i tell the guy i'm dating that i have cf?

    <blockquote>Quote<br><hr><a target=new class=ftalternatingbarlinklarge href="http://thesaurus.reference.com/search?q=illness">Main Entry: illness</a> Part of Speech: noun Definition: disease<hr></blockquote> Thanks for the kind words, Jennifer. To put it simply, Medicaid's officials still...
  17. W

    Companies, CF, Cures, Irony, and the like

    The camps were deathtraps. You do NOT intentionally bring together kids who have a strong chance of contaminating each other with deadly bugs. (Even for those who don't immediately decline and die from things like cepacia, just check out the statistics of how they fare years down the line...
  18. W

    Article in Parents Magazine about Herbal Meds

    Where does this idea come from that "natural" stuff is always good for you? Poison nightshade is "natural." Most drugs are "natural" in a way (penicillin, cephalosporins, aspirin, etc. all originally come from nature.) And even natural stuff that is <i>benign</i> can have unforeseen consequences...
  19. W

    how do i tell the guy i'm dating that i have cf?

    For what it's worth, I thought it was unethical not to tell someone I was attracted to, as soon as I realized the feeling was most likely mutual. We've been together for more than a year now, and are never looking back. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. W

    cure b4 2020

    In other words, a "cure for CF!" is a useful fundraising tool, but a pipe dream otherwise. Like any complex illness, this beast is likely going to be overcome with a "death of a thousand papercuts" approach, not one sudden broadstroke that decapitates it.
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