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She's not on either of those meds. Her levels were ok last year, so with the follow up blood work I guess we'll see if they are still high and proceed from there. She was slightly jaundiced at birth, but we didn't know she had cf then, so I don't think they tested her liver enzymes at the...

She's not on either of those meds. Her levels were ok last year, so with the follow up blood work I guess we'll see if they are still high and proceed from there. She was slightly jaundiced at birth, but we didn't know she had cf then, so I don't think they tested her liver enzymes at the...

She's not on either of those meds. Her levels were ok last year, so with the follow up blood work I guess we'll see if they are still high and proceed from there. She was slightly jaundiced at birth, but we didn't know she had cf then, so I don't think they tested her liver enzymes at the...

She's not on either of those meds. Her levels were ok last year, so with the follow up blood work I guess we'll see if they are still high and proceed from there. She was slightly jaundiced at birth, but we didn't know she had cf then, so I don't think they tested her liver enzymes at the...

She's not on either of those meds. Her levels were ok last year, so with the follow up blood work I guess we'll see if they are still high and proceed from there. She was slightly jaundiced at birth, but we didn't know she had cf then, so I don't think they tested her liver enzymes at the...

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

My 2 year old CFer who just had tubes put in her ears today (she's recovering well, by the way) is sched for a Gastric Emptying Scan next Friday. Anyone been through this? Looks like its a long procedure and I'm looking for tips to keep her entertained or at least still during the test. Also...

we just got a puppy . . . springer pup, 12 weeks old, LOTS of work, but also lots of fun. my daughter (21 mos, cf) loves the puppy and since she is (and will be) an only child, we felt it would be great for her to have a little playmate. its going well, but is time consuming and he pees and...

we just got a puppy . . . springer pup, 12 weeks old, LOTS of work, but also lots of fun. my daughter (21 mos, cf) loves the puppy and since she is (and will be) an only child, we felt it would be great for her to have a little playmate. its going well, but is time consuming and he pees and...

we just got a puppy . . . springer pup, 12 weeks old, LOTS of work, but also lots of fun. my daughter (21 mos, cf) loves the puppy and since she is (and will be) an only child, we felt it would be great for her to have a little playmate. its going well, but is time consuming and he pees and...

Thanks for all the great feedback. A lot of stuff that I had been thinking about was definitely re-inforced with all of your thoughts. If I can get it up and rolling, I'll keep the board posted.

Thanks for all the great feedback. A lot of stuff that I had been thinking about was definitely re-inforced with all of your thoughts. If I can get it up and rolling, I'll keep the board posted.

Thanks for all the great feedback. A lot of stuff that I had been thinking about was definitely re-inforced with all of your thoughts. If I can get it up and rolling, I'll keep the board posted.

I'm (sort of) blogging about getting it going and will make the blog public in a few weeks when I get some stuff moving. SO . . . I'll keep you posted! Thanks for the feedback.

I'm (sort of) blogging about getting it going and will make the blog public in a few weeks when I get some stuff moving. SO . . . I'll keep you posted! Thanks for the feedback.

I'm (sort of) blogging about getting it going and will make the blog public in a few weeks when I get some stuff moving. SO . . . I'll keep you posted! Thanks for the feedback.

non-rsv bronchiolitis (i think that's what they called it) was what resulted in our first visit to the hospital just about this time last year--before the cf diagnosis. pretty mild case--no oxygen needed. it was what led us to our pulmonologist referral and eventually to the cf dx (when dd was...