Cystic Fibrosis Forum (EXP)

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  1. M

    Welcome Ambry Genetics

    Thank you steve for your feedback. What do you mean when you say you have seen a couple of patients and "a form of CF"? Do you mean that these patients did not have typical CF symptoms? Or that there were different phenotypes associated with these mutations? Were they mostly mild or severe? And...
  2. M

    Welcome Ambry Genetics

    Hi Steve, I posted a question just before jeannes post and I would really appreciate it if you have any information that would help me. Thanks a lot.
  3. M

    What do you all do?

    Thank you all.. You've really put my mind at ease. I was so scared someone was going to tell me that I should try and stay as far away from her as I can if I get sick...glad it's nothing like that <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. M

    What do you all do?

    Thank you all.. You've really put my mind at ease. I was so scared someone was going to tell me that I should try and stay as far away from her as I can if I get sick...glad it's nothing like that <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. M

    What do you all do?

    Thank you all.. <br /> <br />You've really put my mind at ease. I was so scared someone was going to tell me that I should try and stay as far away from her as I can if I get sick...glad it's nothing like that <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br />
  6. M

    What do you all do?

    If one of the parents gets sick, like a cold or the flu (mild or severe) what would you do to protect your CF children from catching it? Like are there certain measures that should be considered when taking care of them? I have an 8 week old baby and I'm her primary caregiver. I'm not sick or...
  7. M

    What do you all do?

    If one of the parents gets sick, like a cold or the flu (mild or severe) what would you do to protect your CF children from catching it? Like are there certain measures that should be considered when taking care of them? I have an 8 week old baby and I'm her primary caregiver. I'm not sick or...
  8. M

    What do you all do?

    If one of the parents gets sick, like a cold or the flu (mild or severe) what would you do to protect your CF children from catching it? Like are there certain measures that should be considered when taking care of them? <br /> <br />I have an 8 week old baby and I'm her primary caregiver. I'm...
  9. M

    Do you need a prescription?

    Do you need a Prescription for the Pari LC Plus nebulizer? And a compressor that goes along with it like PulmoAide or vios? And where did you get yours at? Thanks a lot..
  10. M

    Do you need a prescription?

    Do you need a Prescription for the Pari LC Plus nebulizer? And a compressor that goes along with it like PulmoAide or vios? And where did you get yours at? Thanks a lot..
  11. M

    Do you need a prescription?

    Do you need a Prescription for the Pari LC Plus nebulizer? And a compressor that goes along with it like PulmoAide or vios? <br /> <br />And where did you get yours at? <br /> <br />Thanks a lot..
  12. M

    Our story..need all the help we can get

    Thank you Tammy... I wish your two little girls always stay well and healthy, and your nephew and his fiancee all the luck and happiness in the world <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. M

    Our story..need all the help we can get

    Thank you Tammy... I wish your two little girls always stay well and healthy, and your nephew and his fiancee all the luck and happiness in the world <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. M

    Our story..need all the help we can get

    Thank you Tammy... <br /> <br />I wish your two little girls always stay well and healthy, and your nephew and his fiancee all the luck and happiness in the world <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. M

    Percussors for CPT

    Thank you both.. I don't live in the US and we don't have CF centers in my country. That's why I thought I'd let my husband's friend (who lives in Houston, Texas) know where he can find them, buy them and then mail them to me. Liza you were of great help. I tried buying them online but...
  16. M

    Percussors for CPT

    Thank you both.. I don't live in the US and we don't have CF centers in my country. That's why I thought I'd let my husband's friend (who lives in Houston, Texas) know where he can find them, buy them and then mail them to me. Liza you were of great help. I tried buying them online but...
  17. M

    Percussors for CPT

    Thank you both.. <br /> <br />I don't live in the US and we don't have CF centers in my country. That's why I thought I'd let my husband's friend (who lives in Houston, Texas) know where he can find them, buy them and then mail them to me. <br /> <br />Liza you were of great help. I tried buying...
  18. M

    Help Please!

    Thank you all very much. You won't imagine how important and helpful your answers are to me. This is a really stressful and overwhelming time that I'm going through and the presence of such a supportive community is making it all seem a little bit easier. Thank you Thank you Thank you...
  19. M

    Help Please!

    Thank you all very much. You won't imagine how important and helpful your answers are to me. This is a really stressful and overwhelming time that I'm going through and the presence of such a supportive community is making it all seem a little bit easier. Thank you Thank you Thank you...
  20. M

    Help Please!

    Thank you all very much. You won't imagine how important and helpful your answers are to me. This is a really stressful and overwhelming time that I'm going through and the presence of such a supportive community is making it all seem a little bit easier. <br /> <br />Thank you Thank you Thank...
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