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mamaScarlett thank you so much for the suggestion, it definitely makes sense what you said about linking between the CF specialist that we see abroad and our pediatrician here. I didn't think of that really <img src="i/expressions/face-icon-small-smile.gif" border="0"> We are seriously...

mamaScarlett thank you so much for the suggestion, it definitely makes sense what you said about linking between the CF specialist that we see abroad and our pediatrician here. I didn't think of that really <img src="i/expressions/face-icon-small-smile.gif" border="0"> We are seriously...

mamaScarlett thank you so much for the suggestion, it definitely makes sense what you said about linking between the CF specialist that we see abroad and our pediatrician here. I didn't think of that really <img src="i/expressions/face-icon-small-smile.gif" border="0"> We are seriously...

Does anyone know where I can get baby size percussors for CPT? Can I order them online? Or if anybody here lives in Houston, Texas and has an idea where they are sold please tell me. My husband's friend lives there and I will tell him to buy them and mail them to me. I appreciate your help...

Does anyone know where I can get baby size percussors for CPT? Can I order them online? Or if anybody here lives in Houston, Texas and has an idea where they are sold please tell me. My husband's friend lives there and I will tell him to buy them and mail them to me. I appreciate your help...

Does anyone know where I can get baby size percussors for CPT? <br /> <br />Can I order them online? <br /> <br />Or if anybody here lives in Houston, Texas and has an idea where they are sold please tell me. My husband's friend lives there and I will tell him to buy them and mail them to me...

Hi all, I apologize in advance for the long post, but I really have to ask all these unanswered questions that I have or I will literally go crazy! Either from not knowing enough or from thinking I'm not doing enough for my baby. My daughter is almost 7 weeks old now and has no symptoms. We...

Hi all, I apologize in advance for the long post, but I really have to ask all these unanswered questions that I have or I will literally go crazy! Either from not knowing enough or from thinking I'm not doing enough for my baby. My daughter is almost 7 weeks old now and has no symptoms. We...

Hi all, <br /> <br />I apologize in advance for the long post, but I really have to ask all these unanswered questions that I have or I will literally go crazy! Either from not knowing enough or from thinking I'm not doing enough for my baby. <br /> <br />My daughter is almost 7 weeks old now...

Thank you Tammy. It's always great and reassuring to hear what other families are doing to deal wiht this horrible disease. And I really become hopeful when I see that so many kids with CF have managed to grow up into healthy adults. I hope you and your family always stay well and healthy.

Thank you Tammy. It's always great and reassuring to hear what other families are doing to deal wiht this horrible disease. And I really become hopeful when I see that so many kids with CF have managed to grow up into healthy adults. I hope you and your family always stay well and healthy.

Thank you Tammy. It's always great and reassuring to hear what other families are doing to deal wiht this horrible disease. And I really become hopeful when I see that so many kids with CF have managed to grow up into healthy adults. <br />I hope you and your family always stay well and healthy.

Hi Steve, I have more than one question and I would really apprecitae any kind of information you can give me. My 6 week old daughter was just diagnosed with CF, she has no symptoms and her diagnosis was based on the newborn screening. We found the mutations 2183aa>g (A to G at 2183 and...

Thank you all so much for your kind words and good advice. My husband and I are actually considering the idea of going somewhere where good CF care is available. My brother currently works and lives in Newcastle, UK so that was our first option, since we could stay with him at his appartment and...

Thank you all so much for your kind words and good advice. My husband and I are actually considering the idea of going somewhere where good CF care is available. My brother currently works and lives in Newcastle, UK so that was our first option, since we could stay with him at his appartment and...

Thank you all so much for your kind words and good advice. My husband and I are actually considering the idea of going somewhere where good CF care is available. My brother currently works and lives in Newcastle, UK so that was our first option, since we could stay with him at his appartment and...

Thank you for your quick reply. We're still not sure whether she's pancreatic sufficient or not. She doesn't have diarrhea but her stool started smelling a little soury recently. I asked the doctor to do a fecal fat test but he said it would not really help us decide and that it would set us...

Thank you for your quick reply. We're still not sure whether she's pancreatic sufficient or not. She doesn't have diarrhea but her stool started smelling a little soury recently. I asked the doctor to do a fecal fat test but he said it would not really help us decide and that it would set us...

Thank you for your quick reply. We're still not sure whether she's pancreatic sufficient or not. She doesn't have diarrhea but her stool started smelling a little soury recently. I asked the doctor to do a fecal fat test but he said it would not really help us decide and that it would set us...

Hi all, First of all let me apologize for the long post. I'm new here and this is my first time writing, but to be honest I've been lurking around for a couple of weeks now and I've seen how a great community you are and what a good source of support this website is, and when my daughter's...