Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. I

    How can you tell Pulmozyme helps you?

    Some people don't notice a big difference when using pulmozyme, but for me it is ESSENTIAL! I do pulmo twice a day and if I miss even one treatment I notice an immense difference in my sputum. It is so much thicker and much harder to cough out. It is actually my favorite med. But as you know all...
  2. I

    How can you tell Pulmozyme helps you?

    Some people don't notice a big difference when using pulmozyme, but for me it is ESSENTIAL! I do pulmo twice a day and if I miss even one treatment I notice an immense difference in my sputum. It is so much thicker and much harder to cough out. It is actually my favorite med. But as you know all...
  3. I

    How can you tell Pulmozyme helps you?

    Some people don't notice a big difference when using pulmozyme, but for me it is ESSENTIAL! I do pulmo twice a day and if I miss even one treatment I notice an immense difference in my sputum. It is so much thicker and much harder to cough out. It is actually my favorite med. But as you know all...
  4. I

    Snorkeling

    I had PFTs around your numbers during my honeymoon and we snorkeled. Actually, I found it much easier than my husband because he had trouble breathing from the tube. I guess I am used to breathing shallow breaths and found the tube breathing to feel rather normal. Even if you aren't a great...
  5. I

    Snorkeling

    I had PFTs around your numbers during my honeymoon and we snorkeled. Actually, I found it much easier than my husband because he had trouble breathing from the tube. I guess I am used to breathing shallow breaths and found the tube breathing to feel rather normal. Even if you aren't a great...
  6. I

    Snorkeling

    I had PFTs around your numbers during my honeymoon and we snorkeled. Actually, I found it much easier than my husband because he had trouble breathing from the tube. I guess I am used to breathing shallow breaths and found the tube breathing to feel rather normal. Even if you aren't a great...
  7. I

    Teaching your lungs to tolerate inhaled meds.

    Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled...
  8. I

    Teaching your lungs to tolerate inhaled meds.

    Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled...
  9. I

    Teaching your lungs to tolerate inhaled meds.

    Several years ago I found that Tobi made me very tight and wheezy to the point that I could no longer use it. I recently started getting wheezy after using Colistin. I am so bummed because I used both these meds for months before the wheezing started. I am down to Cayston as my only inhaled...
  10. I

    Vest Noise

    I have the same problem! I have the really old vest and a loud nebulizer so TV does not work for me. I live in apartments so the neighbors really could hear if I turned the TV loud enough to hear! I found that using headphones and watching things on hulu or movies on the computer works well. I...
  11. I

    Vest Noise

    I have the same problem! I have the really old vest and a loud nebulizer so TV does not work for me. I live in apartments so the neighbors really could hear if I turned the TV loud enough to hear! I found that using headphones and watching things on hulu or movies on the computer works well. I...
  12. I

    Vest Noise

    I have the same problem! I have the really old vest and a loud nebulizer so TV does not work for me. I live in apartments so the neighbors really could hear if I turned the TV loud enough to hear! I found that using headphones and watching things on hulu or movies on the computer works well. I...
  13. I

    The Best Exercise to Raise PFT scores

    I also use a public pool so if I cough while swimming I usually swallow it. Gross I know! Luckily, most of my coughing happens about 10 minutes after I get out of the pool. I usually get out of the pool, dry off, and go directly to my car because I know my coughing will start any minute. I then...
  14. I

    The Best Exercise to Raise PFT scores

    For me the absolute BEST workout is swimming. When I used to swim (years ago) I had the highest PFTs of my life. I have always worked out, but just recently decided to start swimming again. I can't believe the difference it makes! My doc said that it is so beneficial because unlike most workouts...
  15. I

    How long do you do IV antibiotics?

    Sounds like my clinic! I never feel like my Dr is aggressive enough. I used to always have 3 weeks of orals or IVs and recently everything has switched to 2 weeks due to" new studies" and it is a constant battle because I prefer 3 weeks as well. I don't feel like I start to feel well until the...
  16. I

    How long do you do IV antibiotics?

    Sounds like my clinic! I never feel like my Dr is aggressive enough. I used to always have 3 weeks of orals or IVs and recently everything has switched to 2 weeks due to" new studies" and it is a constant battle because I prefer 3 weeks as well. I don't feel like I start to feel well until the...
  17. I

    How long do you do IV antibiotics?

    Sounds like my clinic! I never feel like my Dr is aggressive enough. I used to always have 3 weeks of orals or IVs and recently everything has switched to 2 weeks due to" new studies" and it is a constant battle because I prefer 3 weeks as well. I don't feel like I start to feel well until the...
  18. I

    Spit-rag of choice

    When doing treatments I use a very small Tupperware container and then dump the contents into the toilet when I am done. Don't worry I clean the container very well and I don't use it for storing food <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like using this because it is...
  19. I

    Spit-rag of choice

    When doing treatments I use a very small Tupperware container and then dump the contents into the toilet when I am done. Don't worry I clean the container very well and I don't use it for storing food <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like using this because it is...
  20. I

    Spit-rag of choice

    When doing treatments I use a very small Tupperware container and then dump the contents into the toilet when I am done. Don't worry I clean the container very well and I don't use it for storing food <img src="i/expressions/face-icon-small-smile.gif" border="0"> I like using this because it is...
Top