Cystic Fibrosis Forum (EXP)

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  1. L

    just allergies?

    Ugh...I suffer from bad allergies too, so I feel your pain. I would try an over the counter allergy med like zyrtec or claritin. Allegra is really the best for us CFers since it has the least drying effect...but you might need something to hold you over until you can get to the doc and get a...
  2. L

    just allergies?

    Ugh...I suffer from bad allergies too, so I feel your pain. I would try an over the counter allergy med like zyrtec or claritin. Allegra is really the best for us CFers since it has the least drying effect...but you might need something to hold you over until you can get to the doc and get a...
  3. L

    just allergies?

    Ugh...I suffer from bad allergies too, so I feel your pain. I would try an over the counter allergy med like zyrtec or claritin. Allegra is really the best for us CFers since it has the least drying effect...but you might need something to hold you over until you can get to the doc and get a...
  4. L

    Altera/eFlow cleaning

    Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to...
  5. L

    Altera/eFlow cleaning

    Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to...
  6. L

    Altera/eFlow cleaning

    Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to...
  7. L

    Altera/eFlow cleaning

    Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to...
  8. L

    Altera/eFlow cleaning

    Ok...so I just got Cayston in the mail today from the CF Pharmacy. A few years ago I used the eflow when I was in the Aztreonam study, so the device itself is not new to me, but at the time I was not sterilizing my neb sets between each use (shame on me) so I feel like I am learning how to...
  9. L

    New inhaled Aztraneum!!

    My doctor just called in a script to the CF Pharmacy yesterday and I should be starting in the next few days. I had great results when I was in the study a few years ago so I'm excited to start again. As for the price...on the CF Pharmacy's website a 28 day supply of Cayston is listed as the...
  10. L

    New inhaled Aztraneum!!

    My doctor just called in a script to the CF Pharmacy yesterday and I should be starting in the next few days. I had great results when I was in the study a few years ago so I'm excited to start again. As for the price...on the CF Pharmacy's website a 28 day supply of Cayston is listed as the...
  11. L

    New inhaled Aztraneum!!

    My doctor just called in a script to the CF Pharmacy yesterday and I should be starting in the next few days. I had great results when I was in the study a few years ago so I'm excited to start again. As for the price...on the CF Pharmacy's website a 28 day supply of Cayston is listed as the...
  12. L

    New inhaled Aztraneum!!

    My doctor just called in a script to the CF Pharmacy yesterday and I should be starting in the next few days. I had great results when I was in the study a few years ago so I'm excited to start again. As for the price...on the CF Pharmacy's website a 28 day supply of Cayston is listed as the...
  13. L

    New inhaled Aztraneum!!

    My doctor just called in a script to the CF Pharmacy yesterday and I should be starting in the next few days. I had great results when I was in the study a few years ago so I'm excited to start again. As for the price...on the CF Pharmacy's website a 28 day supply of Cayston is listed as the...
  14. L

    allergy to CIpro????

    I am allergic to Cipro and few other abx. I can still take the drug but need to be desensitized. Desensitization is usually done by an allergist in a hospital, although I have found a doc willing to do it for me in his office. They start out giving a very small dose of the med and gradually...
  15. L

    allergy to CIpro????

    I am allergic to Cipro and few other abx. I can still take the drug but need to be desensitized. Desensitization is usually done by an allergist in a hospital, although I have found a doc willing to do it for me in his office. They start out giving a very small dose of the med and gradually...
  16. L

    allergy to CIpro????

    I am allergic to Cipro and few other abx. I can still take the drug but need to be desensitized. Desensitization is usually done by an allergist in a hospital, although I have found a doc willing to do it for me in his office. They start out giving a very small dose of the med and gradually...
  17. L

    allergy to CIpro????

    I am allergic to Cipro and few other abx. I can still take the drug but need to be desensitized. Desensitization is usually done by an allergist in a hospital, although I have found a doc willing to do it for me in his office. They start out giving a very small dose of the med and gradually...
  18. L

    allergy to CIpro????

    I am allergic to Cipro and few other abx. I can still take the drug but need to be desensitized. Desensitization is usually done by an allergist in a hospital, although I have found a doc willing to do it for me in his office. They start out giving a very small dose of the med and gradually...
  19. L

    Temporal Arteritis

    Hey Pat- I am so so sorry to hear that...my grandmother had the same exact thing a few years ago and suffered some vision lost as well. Her doctor said that it is very hard to diagnose because the symptoms mimic lots of other things (her main symptoms were headache and jaw pain.) It is...
  20. L

    Temporal Arteritis

    Hey Pat- I am so so sorry to hear that...my grandmother had the same exact thing a few years ago and suffered some vision lost as well. Her doctor said that it is very hard to diagnose because the symptoms mimic lots of other things (her main symptoms were headache and jaw pain.) It is...
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