Cystic Fibrosis Forum (EXP)

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  1. L

    Temporal Arteritis

    Hey Pat- I am so so sorry to hear that...my grandmother had the same exact thing a few years ago and suffered some vision lost as well. Her doctor said that it is very hard to diagnose because the symptoms mimic lots of other things (her main symptoms were headache and jaw pain.) It is...
  2. L

    Temporal Arteritis

    Hey Pat- I am so so sorry to hear that...my grandmother had the same exact thing a few years ago and suffered some vision lost as well. Her doctor said that it is very hard to diagnose because the symptoms mimic lots of other things (her main symptoms were headache and jaw pain.) It is...
  3. L

    Temporal Arteritis

    Hey Pat- <br /> <br />I am so so sorry to hear that...my grandmother had the same exact thing a few years ago and suffered some vision lost as well. Her doctor said that it is very hard to diagnose because the symptoms mimic lots of other things (her main symptoms were headache and jaw pain.)...
  4. L

    My Hospital-Center is closing

    Hey Christian- Just wanted to let you know I am kind of in the same boat. I have been treated at Long Island College Hospital in Brooklyn for my entire life and at the beginning of this year my doctor and nurse moved to St. Vincent's. I haven't even had a visit at St. Vincent's yet and all I...
  5. L

    My Hospital-Center is closing

    Hey Christian- Just wanted to let you know I am kind of in the same boat. I have been treated at Long Island College Hospital in Brooklyn for my entire life and at the beginning of this year my doctor and nurse moved to St. Vincent's. I haven't even had a visit at St. Vincent's yet and all I...
  6. L

    My Hospital-Center is closing

    Hey Christian- Just wanted to let you know I am kind of in the same boat. I have been treated at Long Island College Hospital in Brooklyn for my entire life and at the beginning of this year my doctor and nurse moved to St. Vincent's. I haven't even had a visit at St. Vincent's yet and all I...
  7. L

    My Hospital-Center is closing

    Hey Christian- Just wanted to let you know I am kind of in the same boat. I have been treated at Long Island College Hospital in Brooklyn for my entire life and at the beginning of this year my doctor and nurse moved to St. Vincent's. I haven't even had a visit at St. Vincent's yet and all I...
  8. L

    My Hospital-Center is closing

    Hey Christian- <br /> <br />Just wanted to let you know I am kind of in the same boat. I have been treated at Long Island College Hospital in Brooklyn for my entire life and at the beginning of this year my doctor and nurse moved to St. Vincent's. I haven't even had a visit at St. Vincent's...
  9. L

    How responsive is your clinic?

    I pretty much always hear back from someone the same day unless they are not in obviously. I also have my nurses home phone and cell phone, and my doctor has a pager service which he always responds to pretty quickly...so one way or another I can track someone down if I need too. My doctor is...
  10. L

    How responsive is your clinic?

    I pretty much always hear back from someone the same day unless they are not in obviously. I also have my nurses home phone and cell phone, and my doctor has a pager service which he always responds to pretty quickly...so one way or another I can track someone down if I need too. My doctor is...
  11. L

    How responsive is your clinic?

    I pretty much always hear back from someone the same day unless they are not in obviously. I also have my nurses home phone and cell phone, and my doctor has a pager service which he always responds to pretty quickly...so one way or another I can track someone down if I need too. My doctor is...
  12. L

    How responsive is your clinic?

    I pretty much always hear back from someone the same day unless they are not in obviously. I also have my nurses home phone and cell phone, and my doctor has a pager service which he always responds to pretty quickly...so one way or another I can track someone down if I need too. My doctor is...
  13. L

    How responsive is your clinic?

    I pretty much always hear back from someone the same day unless they are not in obviously. I also have my nurses home phone and cell phone, and my doctor has a pager service which he always responds to pretty quickly...so one way or another I can track someone down if I need too. My doctor is...
  14. L

    please help need advice

    You are correct that Colisitn is not FDA approved for inhalation, although it is pretty widely used that way in the CF community. There was a death a couple of years back where a patient went into respiratory failure after using colistin....but this was because the patient was using a premixed...
  15. L

    please help need advice

    You are correct that Colisitn is not FDA approved for inhalation, although it is pretty widely used that way in the CF community. There was a death a couple of years back where a patient went into respiratory failure after using colistin....but this was because the patient was using a premixed...
  16. L

    please help need advice

    You are correct that Colisitn is not FDA approved for inhalation, although it is pretty widely used that way in the CF community. There was a death a couple of years back where a patient went into respiratory failure after using colistin....but this was because the patient was using a premixed...
  17. L

    please help need advice

    You are correct that Colisitn is not FDA approved for inhalation, although it is pretty widely used that way in the CF community. There was a death a couple of years back where a patient went into respiratory failure after using colistin....but this was because the patient was using a premixed...
  18. L

    please help need advice

    You are correct that Colisitn is not FDA approved for inhalation, although it is pretty widely used that way in the CF community. There was a death a couple of years back where a patient went into respiratory failure after using colistin....but this was because the patient was using a premixed...
  19. L

    Med organization

    I have an excel spreadsheet of all my meds organized by which pharmacy I get them at. I have all prescription #'s, pharmacy phone #'s and # of refills in the spreadsheet so when I see I am running low on something I have all info in one place. I recently started using pharmacy websites to do...
  20. L

    Med organization

    I have an excel spreadsheet of all my meds organized by which pharmacy I get them at. I have all prescription #'s, pharmacy phone #'s and # of refills in the spreadsheet so when I see I am running low on something I have all info in one place. I recently started using pharmacy websites to do...
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