Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. S

    Wednesday Night Chat !!!

    Hi Joni, <br /> <br />I was wondering if anyone was having trouble posting a new topic. I can reply, but cannot post. <br /> <br />Any help would be appreciated. <br /> <br />Ana
  2. S

    please help make hospital stay better

    I would want to add to the list: the ability to have pet visits. My cat seems to know when I am ill and curls up next to me to comfort me. This brings me much relaxation. Hospital policies may not approve, but I thought I would suggest it anyway Ana
  3. S

    please help make hospital stay better

    I would want to add to the list: the ability to have pet visits. My cat seems to know when I am ill and curls up next to me to comfort me. This brings me much relaxation. Hospital policies may not approve, but I thought I would suggest it anyway Ana
  4. S

    please help make hospital stay better

    I would want to add to the list: the ability to have pet visits. My cat seems to know when I am ill and curls up next to me to comfort me. This brings me much relaxation. <br /> <br />Hospital policies may not approve, but I thought I would suggest it anyway <br /> <br />Ana
  5. S

    50th Birthday for a CFer

    BMH, I love reading about older CF patients! This is fantastic! It certainly gives me hope! Ana
  6. S

    50th Birthday for a CFer

    BMH, I love reading about older CF patients! This is fantastic! It certainly gives me hope! Ana
  7. S

    50th Birthday for a CFer

    BMH, <br /> <br />I love reading about older CF patients! This is fantastic! It certainly gives me hope! <br /> <br />Ana
  8. S

    living alone and being sick

    Erin, My personal experience has taught me that it is OK to ask for help when one is completely overwhelmed. However, you have to feel comfortable in doing so. The reality of this disease is that at some point in our lives, we will lose our independence, because we will not be healthy enough...
  9. S

    living alone and being sick

    Erin, My personal experience has taught me that it is OK to ask for help when one is completely overwhelmed. However, you have to feel comfortable in doing so. The reality of this disease is that at some point in our lives, we will lose our independence, because we will not be healthy enough...
  10. S

    living alone and being sick

    Erin, <br /> <br />My personal experience has taught me that it is OK to ask for help when one is completely overwhelmed. However, you have to feel comfortable in doing so. The reality of this disease is that at some point in our lives, we will lose our independence, because we will not be...
  11. S

    FEV1's and work schedule

    I truly believe this is a personal decision. I still work full time with an FEV1 of 63%. I need to work to keep my mind active. I am still able to deal with all my treatments while still working full time. What is important to remember is that everyone is different. There is no one...
  12. S

    FEV1's and work schedule

    I truly believe this is a personal decision. I still work full time with an FEV1 of 63%. I need to work to keep my mind active. I am still able to deal with all my treatments while still working full time. What is important to remember is that everyone is different. There is no one...
  13. S

    FEV1's and work schedule

    I truly believe this is a personal decision. I still work full time with an FEV1 of 63%. I need to work to keep my mind active. I am still able to deal with all my treatments while still working full time. What is important to remember is that everyone is different. There is no one...
  14. S

    Advice Requested

    Thanks for everyone`s perspective..if I can sum up from what I am understanding is to provide information on a need to know basis and be honest about the information provided. My daughter does see me do all my treatments and knows when I go to the hospital. She knows that I am doing this to...
  15. S

    Advice Requested

    Thanks for everyone`s perspective..if I can sum up from what I am understanding is to provide information on a need to know basis and be honest about the information provided. My daughter does see me do all my treatments and knows when I go to the hospital. She knows that I am doing this to...
  16. S

    Advice Requested

    Thanks for everyone`s perspective..if I can sum up from what I am understanding is to provide information on a need to know basis and be honest about the information provided. <br /> <br />My daughter does see me do all my treatments and knows when I go to the hospital. She knows that I am...
  17. S

    50th Birthday for a CFer

    This thread has made my day! It is so inspiring to see others reaching 50 with this illness. If there is anything I learnt about this illness, is to keep fighting. There will always be bad days, but there are good days as well. It is the good days that we need to hang on to and celebrate...
  18. S

    50th Birthday for a CFer

    This thread has made my day! It is so inspiring to see others reaching 50 with this illness. If there is anything I learnt about this illness, is to keep fighting. There will always be bad days, but there are good days as well. It is the good days that we need to hang on to and celebrate...
  19. S

    50th Birthday for a CFer

    This thread has made my day! It is so inspiring to see others reaching 50 with this illness. If there is anything I learnt about this illness, is to keep fighting. There will always be bad days, but there are good days as well. It is the good days that we need to hang on to and celebrate...
  20. S

    Personality

    Hi Scott, Welcome to the Forum. I know precisely what you mean. I kind of see it as living a double life. To the outside world, I am full of smiles, trying to hide my reality from the people I love as a way to protect them. On the inside, especially when alone, I am quite lonely and down...
Top