Cystic Fibrosis Forum (EXP)

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  1. S

    Personality

    Hi Scott, Welcome to the Forum. I know precisely what you mean. I kind of see it as living a double life. To the outside world, I am full of smiles, trying to hide my reality from the people I love as a way to protect them. On the inside, especially when alone, I am quite lonely and down...
  2. S

    Personality

    Hi Scott, <br /> <br />Welcome to the Forum. <br /> <br />I know precisely what you mean. I kind of see it as living a double life. To the outside world, I am full of smiles, trying to hide my reality from the people I love as a way to protect them. On the inside, especially when alone, I am...
  3. S

    Advice Requested

    Eileen, I responded in the Mother Day thread before I read this one. I had wanted to know how your CF clinic visit went. I am pleased to see that you had a fairly good report. Keep on fighting the Fight. You give me much hope. Ana
  4. S

    Advice Requested

    Eileen, I responded in the Mother Day thread before I read this one. I had wanted to know how your CF clinic visit went. I am pleased to see that you had a fairly good report. Keep on fighting the Fight. You give me much hope. Ana
  5. S

    Advice Requested

    Eileen, <br /> <br />I responded in the Mother Day thread before I read this one. I had wanted to know how your CF clinic visit went. I am pleased to see that you had a fairly good report. <br /> <br />Keep on fighting the Fight. You give me much hope. <br /> <br />Ana
  6. S

    Happy Mothers Day !

    Hi Eileen and Joni, I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started. When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow into adulthood. I wish I...
  7. S

    Happy Mothers Day !

    Hi Eileen and Joni, I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started. When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow into adulthood. I wish I...
  8. S

    Happy Mothers Day !

    Hi Eileen and Joni, <br /> <br />I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started. <br /> <br />When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow...
  9. S

    b12bc passed away

    I am so sorry to hear this news! I am always horrified by the loss of life at such a young age. Breathe easy, Melody! My condolences to the family! Ana
  10. S

    b12bc passed away

    I am so sorry to hear this news! I am always horrified by the loss of life at such a young age. Breathe easy, Melody! My condolences to the family! Ana
  11. S

    b12bc passed away

    I am so sorry to hear this news! I am always horrified by the loss of life at such a young age. <br /> <br />Breathe easy, Melody! My condolences to the family! <br /> <br />Ana
  12. S

    Bree

    Caitlin, I am so sorry for your loss! My thoughts are with Bree and her family! Hold on to the wonderful memories that you had with Bree! Not many of us had the chance to get to know her. If you need to vent or grieve, feel free to reach out to us or PM me. Keep fighting for Bree, Ana
  13. S

    Bree

    Caitlin, I am so sorry for your loss! My thoughts are with Bree and her family! Hold on to the wonderful memories that you had with Bree! Not many of us had the chance to get to know her. If you need to vent or grieve, feel free to reach out to us or PM me. Keep fighting for Bree, Ana
  14. S

    Bree

    Caitlin, <br /> <br />I am so sorry for your loss! My thoughts are with Bree and her family! <br /> <br />Hold on to the wonderful memories that you had with Bree! Not many of us had the chance to get to know her. <br /> <br />If you need to vent or grieve, feel free to reach out to us or PM...
  15. S

    High heart rate problems

    Duke1234, I have the same issue. Doctors are unsure why it is happening. I am not experiencing a lung infection. They have put me on heart medication to deal with the tachycardia? Have the doctors considered the same for you? I know what it feels like and cannot imagine treating the issue.
  16. S

    High heart rate problems

    Duke1234, I have the same issue. Doctors are unsure why it is happening. I am not experiencing a lung infection. They have put me on heart medication to deal with the tachycardia? Have the doctors considered the same for you? I know what it feels like and cannot imagine treating the issue.
  17. S

    High heart rate problems

    Duke1234, <br /> <br />I have the same issue. Doctors are unsure why it is happening. I am not experiencing a lung infection. They have put me on heart medication to deal with the tachycardia? <br /> <br />Have the doctors considered the same for you? I know what it feels like and cannot...
  18. S

    Happy Mothers Day !

    Joni, I would imagine that knowing as a child would have caused anxiety for your son as he was growing up. I am in fact doing as you suggested, as a need to know basis. I am glad to see that others have the same feelings as myself. I know I should start those letters but I just can't seem to...
  19. S

    Happy Mothers Day !

    Joni, I would imagine that knowing as a child would have caused anxiety for your son as he was growing up. I am in fact doing as you suggested, as a need to know basis. I am glad to see that others have the same feelings as myself. I know I should start those letters but I just can't seem to...
  20. S

    Happy Mothers Day !

    Joni, <br /> <br />I would imagine that knowing as a child would have caused anxiety for your son as he was growing up. I am in fact doing as you suggested, as a need to know basis. <br /> <br />I am glad to see that others have the same feelings as myself. I know I should start those letters...
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