Cystic Fibrosis Forum (EXP)

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  1. K

    I just got listed

    Joanne, you don't know how comforting your responses are! Thank you! My sensitivities are so low that when I go on IV's, they give me 3 or 4 different drugs. The triple synergy testing done in Canada showed some triple combinations that might work. I guess I'm just nervous about the pseudo...
  2. K

    I just got listed

    HI Joann, thanks for much for the reply. I went to Barnes, St. Louis. They told me that as long as I have one drug that I am sensitive to, they would transplant me. So far, I have always been sensitive to Colistin IV and I am hoping it continues before I am TX. It hasn't worked that well...
  3. K

    I just got listed

    HI Joann, thanks for much for the reply. I went to Barnes, St. Louis. They told me that as long as I have one drug that I am sensitive to, they would transplant me. So far, I have always been sensitive to Colistin IV and I am hoping it continues before I am TX. It hasn't worked that well...
  4. K

    I just got listed

    HI Joann, thanks for much for the reply. I went to Barnes, St. Louis. They told me that as long as I have one drug that I am sensitive to, they would transplant me. So far, I have always been sensitive to Colistin IV and I am hoping it continues before I am TX. It hasn't worked that well...
  5. K

    I just got listed

    HI Joann, thanks for much for the reply. I went to Barnes, St. Louis. They told me that as long as I have one drug that I am sensitive to, they would transplant me. So far, I have always been sensitive to Colistin IV and I am hoping it continues before I am TX. It hasn't worked that well...
  6. K

    I just got listed

    HI Joann, thanks for much for the reply. I went to Barnes, St. Louis. They told me that as long as I have one drug that I am sensitive to, they would transplant me. So far, I have always been sensitive to Colistin IV and I am hoping it continues before I am TX. It hasn't worked that well...
  7. K

    I just got listed

    Thank you Lizza. I really appreciate the response. I'm so happy for Anna. I've been following her on the site. God bless her!
  8. K

    I just got listed

    Thank you Lizza. I really appreciate the response. I'm so happy for Anna. I've been following her on the site. God bless her!
  9. K

    I just got listed

    Thank you Lizza. I really appreciate the response. I'm so happy for Anna. I've been following her on the site. God bless her!
  10. K

    I just got listed

    Thank you Lizza. I really appreciate the response. I'm so happy for Anna. I've been following her on the site. God bless her!
  11. K

    I just got listed

    Thank you Lizza. I really appreciate the response. I'm so happy for Anna. I've been following her on the site. God bless her!
  12. K

    I just got listed

    Hi, I'm Kim, I'm relatively new to this site and haven't written much. I just got listed and am going through all the emotions. I too am scared at the stats, especially since my doctor said my survival stats are l5-10% ower because I have a drug resistant pseudomonias. I was wondering, did...
  13. K

    I just got listed

    Hi, I'm Kim, I'm relatively new to this site and haven't written much. I just got listed and am going through all the emotions. I too am scared at the stats, especially since my doctor said my survival stats are l5-10% ower because I have a drug resistant pseudomonias. I was wondering, did...
  14. K

    I just got listed

    Hi, I'm Kim, I'm relatively new to this site and haven't written much. I just got listed and am going through all the emotions. I too am scared at the stats, especially since my doctor said my survival stats are l5-10% ower because I have a drug resistant pseudomonias. I was wondering, did...
  15. K

    I just got listed

    Hi, I'm Kim, I'm relatively new to this site and haven't written much. I just got listed and am going through all the emotions. I too am scared at the stats, especially since my doctor said my survival stats are l5-10% ower because I have a drug resistant pseudomonias. I was wondering, did...
  16. K

    I just got listed

    Hi, I'm Kim, I'm relatively new to this site and haven't written much. I just got listed and am going through all the emotions. I too am scared at the stats, especially since my doctor said my survival stats are l5-10% ower because I have a drug resistant pseudomonias. I was wondering, did...
  17. K

    Colistin IV

    Does anyone use colistin IV?
  18. K

    Colistin IV

    Does anyone use colistin IV?
  19. K

    Colistin IV

    Does anyone use colistin IV?
  20. K

    Colistin IV

    Does anyone use colistin IV?
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