Cystic Fibrosis Forum (EXP)

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  1. K

    TX patient with O negative blood?

    Anyone been transplanted lately who has 0 negative blood? I've been waiting for 8 months and they are telling me that one of the reasons is because I have a universal blood type. Apparently, the chances of getting lungs outside of my transplant center is low because lungs with blood type O can...
  2. K

    Feeling nervous

    HI, I've been waiting for 3 1/2 months now (which I know is not long), but it seems that the longer I wait, the more I start thinking and worrying a little about life post TX. Everyone tells me that you have to be very careful after TX, especially around kids. One pre-TX patient, who is a...
  3. K

    Feeling nervous

    HI, I've been waiting for 3 1/2 months now (which I know is not long), but it seems that the longer I wait, the more I start thinking and worrying a little about life post TX. Everyone tells me that you have to be very careful after TX, especially around kids. One pre-TX patient, who is a...
  4. K

    Feeling nervous

    HI, I've been waiting for 3 1/2 months now (which I know is not long), but it seems that the longer I wait, the more I start thinking and worrying a little about life post TX. Everyone tells me that you have to be very careful after TX, especially around kids. One pre-TX patient, who is a...
  5. K

    Feeling nervous

    HI, I've been waiting for 3 1/2 months now (which I know is not long), but it seems that the longer I wait, the more I start thinking and worrying a little about life post TX. Everyone tells me that you have to be very careful after TX, especially around kids. One pre-TX patient, who is a...
  6. K

    Feeling nervous

    HI, I've been waiting for 3 1/2 months now (which I know is not long), but it seems that the longer I wait, the more I start thinking and worrying a little about life post TX. Everyone tells me that you have to be very careful after TX, especially around kids. One pre-TX patient, who is a...
  7. K

    CMV virus and TX

    Just wondering if any of you got CMV positive lungs and how you are doing post transplant. Did you have any complications and how was the treatment? I chose to accept either positive or negative lungs.
  8. K

    CMV virus and TX

    Just wondering if any of you got CMV positive lungs and how you are doing post transplant. Did you have any complications and how was the treatment? I chose to accept either positive or negative lungs.
  9. K

    CMV virus and TX

    Just wondering if any of you got CMV positive lungs and how you are doing post transplant. Did you have any complications and how was the treatment? I chose to accept either positive or negative lungs.
  10. K

    CMV virus and TX

    Just wondering if any of you got CMV positive lungs and how you are doing post transplant. Did you have any complications and how was the treatment? I chose to accept either positive or negative lungs.
  11. K

    CMV virus and TX

    Just wondering if any of you got CMV positive lungs and how you are doing post transplant. Did you have any complications and how was the treatment? I chose to accept either positive or negative lungs.
  12. K

    Not sure what is happening

    Hi, I had part of my lung removed 4 years ago. The lower right lobe with basically gone and I had a giant bleb in my lung that was removed (like a big cyst). My doctor said it was impeding my lung function. He compared it to a plant that has lots of dead leaves on it. If you don't remove the...
  13. K

    Not sure what is happening

    Hi, I had part of my lung removed 4 years ago. The lower right lobe with basically gone and I had a giant bleb in my lung that was removed (like a big cyst). My doctor said it was impeding my lung function. He compared it to a plant that has lots of dead leaves on it. If you don't remove the...
  14. K

    Not sure what is happening

    Hi, I had part of my lung removed 4 years ago. The lower right lobe with basically gone and I had a giant bleb in my lung that was removed (like a big cyst). My doctor said it was impeding my lung function. He compared it to a plant that has lots of dead leaves on it. If you don't remove the...
  15. K

    Not sure what is happening

    Hi, I had part of my lung removed 4 years ago. The lower right lobe with basically gone and I had a giant bleb in my lung that was removed (like a big cyst). My doctor said it was impeding my lung function. He compared it to a plant that has lots of dead leaves on it. If you don't remove the...
  16. K

    Not sure what is happening

    Hi, I had part of my lung removed 4 years ago. The lower right lobe with basically gone and I had a giant bleb in my lung that was removed (like a big cyst). My doctor said it was impeding my lung function. He compared it to a plant that has lots of dead leaves on it. If you don't remove the...
  17. K

    question about o2 and transplant

    No I'm moving to my transplant center in two days to await transplant. I just got evaluated on November 6. I'm anxious but extremely excited at the possibilities that await. How have you been post transplant? Nice to get another response. Take care, Kim
  18. K

    question about o2 and transplant

    No I'm moving to my transplant center in two days to await transplant. I just got evaluated on November 6. I'm anxious but extremely excited at the possibilities that await. How have you been post transplant? Nice to get another response. Take care, Kim
  19. K

    question about o2 and transplant

    No I'm moving to my transplant center in two days to await transplant. I just got evaluated on November 6. I'm anxious but extremely excited at the possibilities that await. How have you been post transplant? Nice to get another response. Take care, Kim
  20. K

    question about o2 and transplant

    No I'm moving to my transplant center in two days to await transplant. I just got evaluated on November 6. I'm anxious but extremely excited at the possibilities that await. How have you been post transplant? Nice to get another response. Take care, Kim
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