Cystic Fibrosis Forum (EXP)

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  1. K

    Got Transplanted 8/22

    Thanks for asking. I ended up with level 2 rejection. THey gave me 3 days of high level doses of prednisone and I'm back to normal. Take care, Kim
  2. K

    Nasseau

    I was transplanted one month ago. I am so nasseauted and sick. Anybody else relate? Any ideas? I'm taking zofran but has anybody used anything else? Is this normal? help! KB
  3. K

    Nasseau

    I was transplanted one month ago. I am so nasseauted and sick. Anybody else relate? Any ideas? I'm taking zofran but has anybody used anything else? Is this normal? help! KB
  4. K

    Nasseau

    I was transplanted one month ago. I am so nasseauted and sick. Anybody else relate? Any ideas? I'm taking zofran but has anybody used anything else? Is this normal? help! KB
  5. K

    Nasseau

    I was transplanted one month ago. I am so nasseauted and sick. Anybody else relate? Any ideas? I'm taking zofran but has anybody used anything else? Is this normal? help! KB
  6. K

    Nasseau

    I was transplanted one month ago. I am so nasseauted and sick. Anybody else relate? Any ideas? I'm taking zofran but has anybody used anything else? Is this normal? help! KB
  7. K

    Got Transplanted 8/22

    Well, after 9 months I got transplanted.Hooray! The first 2 weeks were great and I had a o2 sat at 96. Now at week 3 1/2 I have sats around 92 and am short of breath. I am scheduled for a bronch tomorrow. Anyone else have this? I guess it's pretty normal? Just curious and would like to...
  8. K

    Got Transplanted 8/22

    Well, after 9 months I got transplanted.Hooray! The first 2 weeks were great and I had a o2 sat at 96. Now at week 3 1/2 I have sats around 92 and am short of breath. I am scheduled for a bronch tomorrow. Anyone else have this? I guess it's pretty normal? Just curious and would like to...
  9. K

    Got Transplanted 8/22

    Well, after 9 months I got transplanted.Hooray! The first 2 weeks were great and I had a o2 sat at 96. Now at week 3 1/2 I have sats around 92 and am short of breath. I am scheduled for a bronch tomorrow. Anyone else have this? I guess it's pretty normal? Just curious and would like to...
  10. K

    Got Transplanted 8/22

    Well, after 9 months I got transplanted.Hooray! The first 2 weeks were great and I had a o2 sat at 96. Now at week 3 1/2 I have sats around 92 and am short of breath. I am scheduled for a bronch tomorrow. Anyone else have this? I guess it's pretty normal? Just curious and would like to...
  11. K

    Got Transplanted 8/22

    Well, after 9 months I got transplanted.Hooray! The first 2 weeks were great and I had a o2 sat at 96. Now at week 3 1/2 I have sats around 92 and am short of breath. I am scheduled for a bronch tomorrow. Anyone else have this? I guess it's pretty normal? Just curious and would like to...
  12. K

    Toby inhaled

    Other than coughing, what side effects have you experienced on toby inhaled? My throat feels funny (not hoarse, but almost like my glands are swollen) and my ears hurt. The nurse told me that because it is not IV toby, I shouldn't be experiencing ringing in the ear. Is that true?
  13. K

    Toby inhaled

    Other than coughing, what side effects have you experienced on toby inhaled? My throat feels funny (not hoarse, but almost like my glands are swollen) and my ears hurt. The nurse told me that because it is not IV toby, I shouldn't be experiencing ringing in the ear. Is that true?
  14. K

    Toby inhaled

    Other than coughing, what side effects have you experienced on toby inhaled? My throat feels funny (not hoarse, but almost like my glands are swollen) and my ears hurt. The nurse told me that because it is not IV toby, I shouldn't be experiencing ringing in the ear. Is that true?
  15. K

    Toby inhaled

    Other than coughing, what side effects have you experienced on toby inhaled? My throat feels funny (not hoarse, but almost like my glands are swollen) and my ears hurt. The nurse told me that because it is not IV toby, I shouldn't be experiencing ringing in the ear. Is that true?
  16. K

    Toby inhaled

    Other than coughing, what side effects have you experienced on toby inhaled? My throat feels funny (not hoarse, but almost like my glands are swollen) and my ears hurt. The nurse told me that because it is not IV toby, I shouldn't be experiencing ringing in the ear. Is that true?
  17. K

    TX patient with O negative blood?

    Anyone been transplanted lately who has 0 negative blood? I've been waiting for 8 months and they are telling me that one of the reasons is because I have a universal blood type. Apparently, the chances of getting lungs outside of my transplant center is low because lungs with blood type O can...
  18. K

    TX patient with O negative blood?

    Anyone been transplanted lately who has 0 negative blood? I've been waiting for 8 months and they are telling me that one of the reasons is because I have a universal blood type. Apparently, the chances of getting lungs outside of my transplant center is low because lungs with blood type O can...
  19. K

    TX patient with O negative blood?

    Anyone been transplanted lately who has 0 negative blood? I've been waiting for 8 months and they are telling me that one of the reasons is because I have a universal blood type. Apparently, the chances of getting lungs outside of my transplant center is low because lungs with blood type O can...
  20. K

    TX patient with O negative blood?

    Anyone been transplanted lately who has 0 negative blood? I've been waiting for 8 months and they are telling me that one of the reasons is because I have a universal blood type. Apparently, the chances of getting lungs outside of my transplant center is low because lungs with blood type O can...
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